Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 In a message dated 12/1/00 9:32:39 AM Pacific Standard Time, egroups writes: > started Seroquel over Thanksgiving. We were to adjust the dose from 25 mg > twice a day to as much as 100 twice a day- giving each dose a couple of > days > to work. well, for the time being we settled on 50 at night and 25 for > school. Seems to be working nicely. thanks for the heads up about > cataracts. the doc didn't mention it and neither did the info I had > researched. > > Sara > > > > > > > > > > ________________________________________________________________________________\ _____ > Sara: Thanks for the info! You can go to WebMD and look up any med to see the side effects also, if the doc doesn't tell you everything. So far, this is the only serious side effect; at least it doesn't damage kidneys, liver, etc....did you notice any off the wall behavior before the Seroquel kicked in, as Leah did with Ashton?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Leah: What concerns me the most is the " hangin in there " part where Ashton went nuts before the Seroquel really " kicked in " ....what behaviors did you see and how long did this last before you upped dose and/or she became better?? Thanks for all your information.......doc wants him on 25 mg at bedtime and again in the a.m......I'm concerned this is too low a dose for for the next two weeks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 In a message dated 12/1/00 9:32:39 AM Pacific Standard Time, egroups writes: > This is exactly what I'm talking about Leah, only for us, I don't think it can get any worse.....or can it??!! Lol, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 I wasn't sure wether to post this or not but here goes for what its worth. One of the moms who has been there done that with nearly every med and has been advising me (she has a 14 yr old dtr " only " autistic:-) gave me a strong heads up about seroquel. Apparently her daughter had a very rare but recognized reaction to it (while they were at a party hoho). She began to hallucinate and scream, thought someone had stolen her sneakers which were on her feet, and that people were trying to stab her~ whatever...anyway just one isolated incident of a bad acid trip type reaction to watch out for. She told me if I ever tried it on just to make sure we were somewhere I could control her. I don't know where the hell that is, Rikers island maybe. We're doing the clonidine thing now at bedtime. We'll see. Jim went away for 3 days and went off the frigging wall....NO sleep, peed all over her room one day, next day pooped in her pants reached in and grabbed some and flung it at the walls. I ended up giving her melatonin again to try to get her to sleep. Well, she slept for 7 hours and woke up in a pool of blood...16 days since her last period. Everything covered with blood. Looked like a crime scene. Sheesh. I've had it. I just comfort myself with how blessed I am to have been chosen to be a SPECIAL PARENT ahahahahahahahahahahaha Sherry the maniac hey Joan and why don't you stop over here while you're in Miami and check out our new Christmas decorations. Deck the halls with blood and poo poo fa la la la la la la la la Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Sherry, I am so sorry that you are going through this...I hear your desperation. I think that all of us who have kids with severe behavior problems can identify with the " ...they're coming to take me away, ha ha... " syndrome! You are in my prayers. Hang in there. Terry Mom to , 13 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 How close are you to Miami, Sherry? I thought about you more than once today. Email me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Sherry: Have you considered deproprovera for the periods or some other modulation of the timing of them? What does the good doctor have to say about her frequent periods? (I sure hope the answer isn't " it's just one of those odd things kids with disabilities can have " because that's not an acceptable answer) I would have to wonder that the hormonal issues aren't a big part of her behavior at times.? I don't have any articles about depo provera, but maybe there is one at ds-health.com, or perhaps someone can find some info? I know *I* want to go nuts the days before mine....... j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2000 Report Share Posted December 9, 2000 Sherry: Admittedly I know little about depo provera (sp)....cuz I got all boys. We have other issues.... Our commjunity skills trainer (actually dear friend--except her mother is MY age...) uses it. If you want I can connect the two of you. I'm not sure why she does or how long she has, or what kind of research she's done.....I just konw she's my dear friend who once was in teh Army and I want her to go to college.... let me know So what's with all the clouds? j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Anyone have any problems with Seroquel? We thought Logan's behaviors were due to withdrawal of Risperdal, but know we don't know. Logan only takes Seroquel at night and it works great for sleep, but he is having worsening behaviors during the day. Kicking, biting (himself and others), screaming, inconsolability, trying to climb out of the window...need I say more? If it wasn't Easter I would page the Dr. today, but we are going to muddle through the day. I was just curious if anyone had any similar experiences because right now I can't see the forest for the trees. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 and all, I had a question, those of you who have been asking or sharing about the meds and possible side effects from them. Do most of the meds have color dye? This is something to consider as several of my son's doc's usually suggest this to me. They may be having some reaction to the additives added. Depending on what the doc's suggest, a trial basis could be included by using a wet paper towel to remove the color dye off, see if this would decrease anything, along with removing any of the food color dye from the food or drinks they eat or drink as a trial basis. Many learning and behavior problems begin in your grocery cart! http://www.feingold.org/pg-overview.html Never hurts with a trial simple like this to see if this is part of the culprit. Irma,19,DS/ASD > > Anyone have any problems with Seroquel? We thought Logan's behaviors were > due to withdrawal of Risperdal, but know we don't know. Logan only takes > Seroquel at night and it works great for sleep, but he is having worsening > behaviors during the day. Kicking, biting (himself and others), screaming, > inconsolability, trying to climb out of the window...need I say more? > > > > If it wasn't Easter I would page the Dr. today, but we are going to muddle > through the day. I was just curious if anyone had any similar experiences > because right now I can't see the forest for the trees. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 had problems with a lot of meds. Of course the drs always told us it was just getting him through the first few weeks then it would help him. Forget that. We never made it. Unfortunately when he was on the seroquel we were also using other meds. We took him off all of them and he did much better. We then started over. I would never retry the seroquel again knowing how respondes to that group of drugs. Karyn > > Anyone have any problems with Seroquel? We thought Logan's behaviors were > due to withdrawal of Risperdal, but know we don't know. Logan only takes > Seroquel at night and it works great for sleep, but he is having worsening > behaviors during the day. Kicking, biting (himself and others), screaming, > inconsolability, trying to climb out of the window...need I say more? > > > > If it wasn't Easter I would page the Dr. today, but we are going to muddle > through the day. I was just curious if anyone had any similar experiences > because right now I can't see the forest for the trees. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Dylan did take seroquel in the past.. He took it for bedtime. But during the day, just like urs just being so angry or frustrated hurt other kids.. SO we stop giving the medicine.. But he still take risperdal during the day.. Dylan 9 yrs old, deaf ds adhd --- " L. Davenport " wrote: > Anyone have any problems with Seroquel? We thought > Logan's behaviors were > due to withdrawal of Risperdal, but know we don't > know. Logan only takes > Seroquel at night and it works great for sleep, but > he is having worsening > behaviors during the day. Kicking, biting (himself > and others), screaming, > inconsolability, trying to climb out of the > window...need I say more? > > > > If it wasn't Easter I would page the Dr. today, but > we are going to muddle > through the day. I was just curious if anyone had > any similar experiences > because right now I can't see the forest for the > trees. > > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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