Willows Challenge

[Guest guest]

" Willow's Challenge "

At the CMT SGL meeting in Vegas last weekend, Dave Hall, CMTA Executive

Director, gave us a big challenge for each our support groups and the STAR

initiative. On the flight home, I thought about this and how I wanted to involve

everyone in . So here's my spin on the challenge.

If all 2,318 members donated $5.00 toward STAR, we would raise $11,590.

If all of us contributed $10 we would raise 23,180.

If we ask 5 friends to give at $5 each we would raise an additional $69,540.

If we ask 10 friends to give $10 we could raise $254,980.

Today is a perfect time to start the challenge and end with the closing of

Peripheral Neuropathy Week May 21. This gives us 2 months to " work it " !

Certainly a newsworthy story for your local media too!

In addition, all members could save our change/coins every day and throw

in a big jar labeled " Willow's Challenge " . (Family and friends could add their

change to the jar too) At the end of Peripheral Neuropathy Week, add up our

change, and donate to the STAR initiative.

We CAN do it!

We are on the threshold of treating and completely arresting a debilitating

genetic disorder that is 6-7 million years old. It's an exciting time with the

advent of the STAR Initiative and HTS (High Thorouput Sceening). Your

participation in " Willows Challenge " will intensify CMT research and soon there

will be " a world without CMT " .

At the end of Peripheral Neuropathy Week, May 21 when writing a check to the

CMTA, include a note that states " This donation is from " Willow's

Challenge " for the STAR Initiative. Or simply put " Willows Challenge " in the

note section of the check.

Checks may be sent to the STAR Initiative at the Charcot-Marie-Tooth Association

2700 Chestnut Street, Chester, PA 19013.

Your gifting can also be made online at

https://secure.charcot-marie-tooth.org/donate_350K.php where it says " In Honor

Of " put " Willows Challenge " .