Where can our kids go.....Fair tothe family

[Guest guest]

We go and have gone many places that Elie doesn't like./ We do use a w/c

now - we used to use a jogging buggy and before that we had a trail along

pull buggy. He can be miserable if he wants- we try to help that by taking

favorite items of his. But he goes casue the family goes. And if it is a

place where his acting out would be an issue, we leave him home with a

respite provider. But he has been to graduations (for my other kids), gone

to and on a boat ride of the Fontana Dam (and screamed the whole time) which

he hated, but the whole family was going - no one wanted to be left out.

But he got to sit on the shore when we hiked to an old homestead and mine.

It was dead winter and he wasn't going in the water , no one else was

around, and I had him in view the whole time - but I left him!!! He has

been to Disney twice with a w/c,. Our theory is that he has to learn to

live in this world. He can't do that hiding in his room. But I do not take

him to concerts if he doesn't want to go or anyother place where if he acts

out others will be affected (and that includes synagogue). Altho, I have

taken him to houses of worship where he sits on the floor (or lies on the

floor) As long as he is quiet, he can stay.

On Mon, May 19, 2008 at 9:18 AM, STELLA HARRELSON

wrote:

> Thank you Jean. I can only say that I learned from it.

> I'm a single mom, so it is truly hard at times. I'm

> just glad I found this support group. I used to think

> that I was going through this by myself, and of course

> wondering why she done certain things. Once I joined

> this group I realized that a does A LOT of the

> same things. I'm glad I'm not alone. I have two sons

> ages 8 and 6, so they help me some. The police

> officers asked them to help me look out for her. So

> now every time the door opens, it CHIMES LOUD. One of

> us is running to the front door to see who it is. I

> have locks, but with two other children and the

> weather being so pretty, I can't keep them locked in

> all the time. I feel so bad for them.

>

> I have a question. How does everyone manage to be fair

> with the other children in the family? a

> doesn't do good with new activities, and at times I

> feel like they don't get to do things because of her.

> I took them to the creek Saturday. Guess what, she

> hated it. I had to carry her because she would not

> touch the sand, then she patted the water with her

> hands, but refused to get into the water. She kept

> hitting her head because she was hot. We ended up

> having to leave because she was acting out so much.

> The boys understand, but I can see disappointment in

> their faces.

>

>

>

--

Sara - Life is a journey- we choose the path.