NDSC Pre-Conference

[Guest guest]

HI All,

I've been pretty swamped and not checking in as often as I like.

Sorry. Mom's back on chemo already, 's graduating from college

Sunday (yay!) and Andy will go through commencement this June.

BUT.

Beth, my trusted helper, sent me a heads up that you all were

talking about the conference in Boston. I cruised a few posts and can

offer the following information.

Dr. Capone, Toni , and I will be doing a preconference

workshop that sounds all " fluffy, " but is intended for folks whose

kids have or similar. Toni is a master with words!

I'm sure Dr. Capone will address in his workshops - he has a

new study coming out, so there is information to share.

As for getting a table and doing marketing, I don't know how that

would go over. Meaning, it's expensive. $190 for the table, plus

shipping, and this year they have some special group handling the

boxes which adds another layer of fees. Not sure what they are yet, I

don't want to know.

Additionally, if I don't run out of money before I accomplish this

task, I hope to talk into putting together an initial

e-learning presentation regarding that we can offer for

families (and professionals) who can't come to conventions.We'll see.

Anyway.

Here is the preconference information:

E) Holding On and Moving Ahead When Life with DS Includes Issues of

Autism Spectrum or Disruptive Behavior Disorders

Capone, M.D., Kennedy Krieger Institute; Assistant Professor of

Pediatrics, s Hopkins University School of Medicine, NDSC Board

Member, Baltimore, MD. Joan Guthrie Medlen, R.D., L.D., Project

Director, Creating Solutions, author of The Down Syndrome Nutrition

Handbook, Portland, OR. Toni , B.A., Project Coordinator,

Exceptional Children's Assistance Center, NDSC Board Member, son, NC

When a family's journey with DS includes travels along the

autistic or behavior disorder spectrum, life can quickly become

and remain difficult. Building capacity in response to chronic

medical and behavioral complexity requires re sources, problem-

solving, a sense of humor and myriad other supports. This

session will identify strategies and practical tools to assist with

managing medical and behavioral challenges in ways likely

to promote greater ease and better days for the entire family.

Note: To aid planning for this session, those registering will be

contacted in advance to identify specific concerns and issues.

Take care,

Joan

(Andy's stressed out Mom)