Where does it end

[Guest guest]

It is not just about rights, or about infringement of people with

or without disabilities but, think about this.What if you have an

emergency and call an ambulance and the paramedics arrive and your

child hits the paramedic.The paramedic says I am sorry I cannot treat

your child because he hit me. Next the Dr. you take your child to

says I am sorry I cannot treat your child because he hits. Where does

it end.What if the Dr. office starts saying we are going to have to

charge you more because your child is hitting.It is not easy to find

a Dr. that will see a child that is disabled and especially if the

child was not their patient from infancy on.

When my poor little boy suffered with cellulitis I was so scared he

would die. I had him to the eye dr., the heart dr, the

pediatrician,the e.r.,and I wanted a nuerologist to look at him.Why?

Because he looked like he had elephant man syndrome. His beautiful

face was destorted and I was affraid the general pediatrician might

be wrong about his dx of cellulitis.I thought maybe it was not

cellulitis and to this day I am still not sure that it was.Several

different nuerologist told me that they do not treat autistic

patients.I said I am not trying to get him treated for autism but I

need an expert to look at his CT scans and MRIs. I was still told

they do not treat kids with autism.I felt like this was

discrimination.Like others on this list you think well I do not want

a Dr. for my child if they do not want to be my childs Dr. however,

it is scarey after you have called the fifth Dr. office that no wants

to treat your child. Think about this years ago kids with Down

syndrome did not live as long as they do now. Why? Because people did

not care about helping these disabled people live longer.That was

wrong our childrens lives are valuable.However I felt my son was

being treated like his life was not valuable.My opinion is his life

is just a valuable as the next person and he has every right to see a

speicalist or get whatever kind of care he needs. Where do we draw

the line? When is it okay for someone not to help us with our kids?

If we have to keep them in the house and never let them go anywhere

not the movies, the grocery store, church, or a haircut, or school

they will never learn the proper way to act. Where do we draw the

line? Haven't we worked so hard to get our kids accepted and

intergrated in schools, etc.If we take the road less taken we may

take a step backwords in time..I was told by a daycare that they

would have to charge me more because my disabled son was not walking

or potty trained.Was that against the law?No and no one would do

anything about that. I was told daycares are independently owned and

nothing could be done legally to them.The same daycare next told me

that because my son was not walking and potty trained they could no

longer provide service for him. My child was not even violent. This

was about the fact he could not walk and was not potty trained and so

he was getting to big for the (2) year old room and they needed to

move him to the (4) year old room.My son was (4). I asked. " what does

he need to be able to do to move to the (4) year old room " and they

said " walk and be potty trained. " I asked them if they were looking

for a miracle that I wanted that my son walking but I could not make

him walk if he was not ready. I tried desperately to find another day

care but no one would take him for those reasons. My son had a

therapist purposely let him fall the week he was turning (2) years

old and he broke his leg. That is why he was not walking at (4) years

ofletting go. Who in their right mind would stand an infant up and

let go? I for one cannot afford these therapies that others speak of

like ABA because my insurance does not cover it, until last year we

did not have a program to help pay for it, and by the way I have been

on this list for the government provided ABA for over a year. For a

year I have been listening to, he is next on the list for a worker to

do ABA age. Even though he had therapist trying to help him. My son

at (2) was so low muscle toned it was like taking an infant and

standing the infant up to the chair. In my opinion we should email

Fantastic Sams that we are concerned about the manner in which this

mother was treated with her disabled child.

[Guest guest]

Thank you . I want everyone to know that I do not go out

looking for things so I can say discrimination. I've never had a

problem with agencies refusing services or whatever the case might

be. However, a has always got her hair cut there. a did

not hit or kick her like what some might think. She never hit,

kicked, or pushed her when she was cutting the back of her hair. She

sat still. However when Kathy stood in front of a and had the

scissors in her face to trim her hair a did push her away. I

immeditally made a stop. She wasn't trying to be mean, she

felt threatned. I've read a lot of comments on here stating that

basically I was overreacting and should let this go, but I can't. I'm

a strong woman, very independant, I do not look for handouts, but

ladies the point is a was done wrong. I cannot sit back and

accept this womans behavior. I work in customer service, and would be

fired in a hearbeat if I ever spoke to someone like she spoke to me

about my daughter. I would think that if anyone could understand it

would be people in this group. I agree with you when you said that if

we sit back and nothing is done, or try not to bring awareness, then

nothing will change.

I wasn't asked to leave I was told that nobody was willing to cut her

hair and that the one that would be willing would charge an extra $1

for extra hits, kicks, or whatever. I called CARDS after I went back

to the truck, and FS was on their list. The manager at CARDS took it

upon herself to call a lawyer friend and HE was outraged. He told her

that it went against ADA and that it was illegal.

I haven't decided what to do, but I do want everyone to know that I

do not go around looking for trouble. I was totally shocked, and I do

not put my daughter in certain circumstances to get attention. I love

her more than anything in this world, thats why I feel like I have to

speak for her, as to she cannot. I didn't ask for her to be treated

this way. She had always went there, and it was never a problem. If

it was such a problem- FS has my number my address and everything why

didn't they write a letter and just say they don't feel comfortable-

not we refuse to service her needs. Besides I had been in there twice

with my boys since then and still noone said anything to me.

Stella

>

> It is not just about rights, or about infringement of people with

> or without disabilities but, think about this.What if you have an

> emergency and call an ambulance and the paramedics arrive and your

> child hits the paramedic.The paramedic says I am sorry I cannot

treat

> your child because he hit me. Next the Dr. you take your child to

> says I am sorry I cannot treat your child because he hits. Where

does

> it end.What if the Dr. office starts saying we are going to have to

> charge you more because your child is hitting.It is not easy to

find

> a Dr. that will see a child that is disabled and especially if the

> child was not their patient from infancy on.

> When my poor little boy suffered with cellulitis I was so scared he

> would die. I had him to the eye dr., the heart dr, the

> pediatrician,the e.r.,and I wanted a nuerologist to look at

him.Why?

> Because he looked like he had elephant man syndrome. His beautiful

> face was destorted and I was affraid the general pediatrician might

> be wrong about his dx of cellulitis.I thought maybe it was not

> cellulitis and to this day I am still not sure that it was.Several

> different nuerologist told me that they do not treat autistic

> patients.I said I am not trying to get him treated for autism but I

> need an expert to look at his CT scans and MRIs. I was still told

> they do not treat kids with autism.I felt like this was

> discrimination.Like others on this list you think well I do not

want

> a Dr. for my child if they do not want to be my childs Dr.

however,

> it is scarey after you have called the fifth Dr. office that no

wants

> to treat your child. Think about this years ago kids with Down

> syndrome did not live as long as they do now. Why? Because people

did

> not care about helping these disabled people live longer.That was

> wrong our childrens lives are valuable.However I felt my son was

> being treated like his life was not valuable.My opinion is his life

> is just a valuable as the next person and he has every right to see

a

> speicalist or get whatever kind of care he needs. Where do we draw

> the line? When is it okay for someone not to help us with our kids?

> If we have to keep them in the house and never let them go anywhere

> not the movies, the grocery store, church, or a haircut, or school

> they will never learn the proper way to act. Where do we draw the

> line? Haven't we worked so hard to get our kids accepted and

> intergrated in schools, etc.If we take the road less taken we may

> take a step backwords in time..I was told by a daycare that they

> would have to charge me more because my disabled son was not

walking

> or potty trained.Was that against the law?No and no one would do

> anything about that. I was told daycares are independently owned

and

> nothing could be done legally to them.The same daycare next told me

> that because my son was not walking and potty trained they could no

> longer provide service for him. My child was not even violent.

This

> was about the fact he could not walk and was not potty trained and

so

> he was getting to big for the (2) year old room and they needed to

> move him to the (4) year old room.My son was (4). I asked. " what

does

> he need to be able to do to move to the (4) year old room " and they

> said " walk and be potty trained. " I asked them if they were looking

> for a miracle that I wanted that my son walking but I could not

make

> him walk if he was not ready. I tried desperately to find another

day

> care but no one would take him for those reasons. My son had a

> therapist purposely let him fall the week he was turning (2) years

> old and he broke his leg. That is why he was not walking at (4)

years

> ofletting go. Who in their right mind would stand an infant up and

> let go? I for one cannot afford these therapies that others speak

of

> like ABA because my insurance does not cover it, until last year we

> did not have a program to help pay for it, and by the way I have

been

> on this list for the government provided ABA for over a year. For a

> year I have been listening to, he is next on the list for a worker

to

> do ABA age. Even though he had therapist trying to help him. My son

> at (2) was so low muscle toned it was like taking an infant and

> standing the infant up to the chair. In my opinion we should email

> Fantastic Sams that we are concerned about the manner in which this

> mother was treated with her disabled child.

>