Re: be optimistic about the treatment for CMT

March 1, 2010

Absolutely Caroline,

You are so right. There is much research for treatment going on all over the

world. Plus partnerships with organizations, biotech corporations, FDA and of

course the STAR initiative. We all know about the first human trials of NT-3,

and the ongoing human trials of Ascorbic Acid. Of special interest is a new

synthetic progesterone antagonist being developed in Germany. (the name escapes

me right now) Regenerative and translational medication developments are just

hitting their stride and well be following these closely.

This coming weekend I am going to an SGL mtg. where I will be hearing more about

the developments from STAR and learn what's beyond. You hear all about that when

I return.

Gretchen

March 1, 2010

Caroline,

Thanks for sharing with us the info. Did he mention anywhere in the conversation

with you about the time frame that we should expect? Given the fact that the

complete map of human genes just found couple years ago, and the research for

CMT is still trying to find the genes that cause the disease as well as the

treatment; I think we maybe need at least 10-15 years from now. Hopefully I can

still be active until that day.

Best,

Minh Vo

March 2, 2010

Hello Vo Minh,

No, he didn't mention the time frame. Try our best to keep us in good health

condition. Then, when the opportunity comes, we are ready to take it. Never give

up hope. Hope is a waking dream.

Caroline

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