Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 Dear friends, One scholar in Taiwan uses 15 years to find the treatment ,Myozyme, for Pompe disease and has got patents and found drug companiese in USA (FDA approved) and Europe (EU approved) to produce the medicine for Pompe disease. He specializes in rare genetic disorder. I emailed him to ask how likely the treatment for CMT can be found before I die? The following is his response: " There are many, many more researchers doing reserach in developing treatment for Charcot-Marie-Tooth disease than Pompe disease, I'm optimistic that there will be new treatment. " Let's be optimistic : ) Caroline Quote Link to comment Share on other sites More sharing options...
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