Re: Geri's in the Hospital and needs some help!

[Guest guest]

Thanks Gretchen,

Shes feeling better today :0)

The Atenol about did her in,she was soooo sick from that crap!

They have her on Diovan and another pill that I still forgot to get the name of

but it is suspossed to make her heart not have to work as hard.

She has a leaky valve and there going to do a test to see how bad the leak is

today,I hope that it's not as bad as they think because her heart is in really

good shape otherwise,no heart attacks or blockages.

We have Dr 's book and the list of med's but getting anyone to look at them

is freakin hard,it's like they think she is making it all up!

We hope she will be home this weekend,her BP was down to 182/79 or so this

morning but when she takes the Diovan and the other it goes up for a while but

is coming down in the mornings.

Thanks for replying!

Russ

[Guest guest]

Russ,

So sorry to hear about Geri. These are some BP medications members have

said they take without problems: Ramipril (Altace), Diovan (Valserta), Fursemide

(Lasix), Digoxin (Digitalis). Do you have a copy of the list of Medications to

avoide (in general)? If not, go to

http://www.charcot-marie-tooth.org/med_alert.php click on the highlighted 6 page

Medical Alert Table. Print all this off for her doctors.

We are not medical experts here, but we have learned (and are still learning)

what to avoid. And then, we're all different in our reactions. I would think

switching her meds around to fact would whack out her blood pressure anyway. I

would also hope thhe doctors begin with the smallest dose possible.

Have they checked her electrolyte levels and her heart in general? Has her diet

included salt and fats? Too much is not good for BP.

I send my best for a good outcome and for Geri to be home soon.

Gretchen

[Guest guest]

Russ,

My son has CMT X & I'm the mother (carrier). Before I went for minor surgery, I

was asked to take Metropolol or Atenolol.  I reacted to it by having

mouth/tongue sores. I'm taking now Avapro aand Tiazac T for my hypertension. 

Maybe, she can asked first her doctor if she's able to use it.

Tessie

[Guest guest]

Hope Geri is getting well soon .................

On Wed, Apr 28, 2010 at 4:15 PM, Geri Logan <hotwheels@...> wrote:

>

>

> Thanks Gretchen,

> Shes feeling better today :0)

> The Atenol about did her in,she was soooo sick from that crap!

> They have her on Diovan and another pill that I still forgot to get the

> name of but it is suspossed to make her heart not have to work as hard.

> She has a leaky valve and there going to do a test to see how bad the leak

> is today,I hope that it's not as bad as they think because her heart is in

> really good shape otherwise,no heart attacks or blockages.

> We have Dr 's book and the list of med's but getting anyone to look at

> them is freakin hard,it's like they think she is making it all up!

> We hope she will be home this weekend,her BP was down to 182/79 or so this

> morning but when she takes the Diovan and the other it goes up for a while

> but is coming down in the mornings.

> Thanks for replying!

> Russ

>

>