Re: daily schedule

[Guest guest]

Soracco wrote:

>

> I just was curious what your days were like? Usually, is in

> school, but now she's off for a week, but then when she gets home

> after school, I do not know what to do! I try to " run her program "

> like what they do at school, but its so hard. I have my 3 year old and

> it just is awful. I hate putting on the DVD for her only and I just am

> not sure how to " play " with the kids!

> We try to play outside, but will eat anything she sees, which

> makes it hard. Driving is out, gas is $4.30 here. UGH! And even going

> to library for story time doesn't work cause she will not sit still.

>

>

>

what abouttt putting her in a kiddie pool??? thats what weve been doing

lately and my daughter loves it. i also do alot of videos and feel guilty.

[Guest guest]

I used to try to do what they do at school too, but you quickly learn they

don't want to do that!

They need a break too. They work at school too. My daughter loves the

Wiggles and so I put in a dvd or tape for her and she watches and dances(her

version) along. I also take her outside to swing in the backyard and she has a

light snack after school sometimes if she seems hungry(usually she will go to

the pantry to get something or she will try to take her older siblings snack

so this is how I know she wants something. When it is time to cook dinner she

will hang around me like a puppy dog until it is ready and sometimes will

play with a music player or fridge magnet -leap frogs or fisher price while I

cook. After dinner I or my husband take turns and play with her with her toys

of choice, usually the same ones over and over for a half hour or so.

I don't stress over this anymore like I used to. We have a Developmental

worker that will be coming back to work with us this week, today actually so I

am looking forward to that. She went to Italy for 6 months to study abroad.

She works with us 2 -3 days a week for a couple of hrs. This gives her

some one on one instead of being shuffled in between the older two's schedules.

That is a thought, do you have someone that could work or play with your

daughter for a couple hrs each day or during the week part time? We went

through the county services to get someone. We don't pay for her. It was hard

being without her all this time. Looking forward to having someone here to help

on occasion. Well, with the warm weather, you could think of getting the

splash pool out too, We have done that and will take her to the big pool when

I can. Also getting a sand box for sensory play is nice too.

Just some thoughts.

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

You know I came about this through another parent who was getting Dt

services. We are on a wait list for Cap waiver9have been for years) and I

think

when I brought up the idea (yes I had to mention it-it was never offered to us)

to get someone to work with us a few days or hours a week they said they

could do that. I called every agency myself and finally went with one that

said

they had workers and could serve my child. We went through our case mgr that

was assigned to us while on the wait list for services. I think this is a

pacifer since we don't get anything else, but hey I'll take it.

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Hi ,

How old is ?? Is there something she taps into?? For example, Birgitta

loves the Wiggles. She will pay attention to anyone singing one of their songs.?

We will sometimes sit in a circle and sing or we (my older children and I) will

sing and dance to the songs.? Birgitta loves the swings so we will all go to the

swing set.? She also loves the water so I will sometimes put a low level of

water in the tub and place both and Birgitta in it.? plays with

his figures and Birgitta just sits and splashes.? Does engage in any

activity that she enjoys and wants to repeat?

?Blessings,

homeschooling Mom to AJ

(13), (10), ^l^, (age 6, Trisomy 18

mosaic AKA 's syndrome) and Birgitta (age 5, adoption finalized

2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

daily schedule

I just was curious what your days were like? Usually, is in

school, but now she's off for a week, but then when she gets home

after school, I do not know what to do! I try to " run her program "

like what they do at school, but its so hard. I have my 3 year old and

it just is awful. I hate putting on the DVD for her only and I just am

not sure how to " play " with the kids!

We try to play outside, but will eat anything she sees, which

makes it hard. Driving is out, gas is $4.30 here. UGH! And even going

to library for story time doesn't work cause she will not sit still.

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[Guest guest]

Hi ,

How exactly were you able to to secure the Developmental worker through your

county? My son is registered with DDD (Division of Developmental Disabilities)

and in our area you are generally put on a waiting list for any kind of respite

services (though we are very fortunate and will be given respite funds for this

summer, we just have to find the individuals ourselves).

I really appreciate your information, because perhaps there is another avenue

that we can pursue with our son's case manager based on your experience.

I'm glad that your daughter and your family all benefit from this extra support!

Best,

To: @...: keith9164@...: Mon, 2 Jun 2008

13:22:57 -0400Subject: Re: daily schedule

I used to try to do what they do at school too, but you quickly learn they don't

want to do that!They need a break too. They work at school too. My daughter

loves the Wiggles and so I put in a dvd or tape for her and she watches and

dances(her version) along. I also take her outside to swing in the backyard and

she has a light snack after school sometimes if she seems hungry(usually she

will go to the pantry to get something or she will try to take her older

siblings snack so this is how I know she wants something. When it is time to

cook dinner she will hang around me like a puppy dog until it is ready and

sometimes will play with a music player or fridge magnet -leap frogs or fisher

price while I cook. After dinner I or my husband take turns and play with her

with her toys of choice, usually the same ones over and over for a half hour or

so. I don't stress over this anymore like I used to. We have a Developmental

worker that will be coming back to work with us this week, today actually so I

am looking forward to that. She went to Italy for 6 months to study abroad. She

works with us 2 -3 days a week for a couple of hrs. This gives her some one on

one instead of being shuffled in between the older two's schedules. That is a

thought, do you have someone that could work or play with your daughter for a

couple hrs each day or during the week part time? We went through the county

services to get someone. We don't pay for her. It was hard being without her all

this time. Looking forward to having someone here to help on occasion. Well,

with the warm weather, you could think of getting the splash pool out too, We

have done that and will take her to the big pool when I can. Also getting a sand

box for sensory play is nice too.Just some thoughts. **************Get

trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL

Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)[Non-text

portions of this message have been removed]

[Guest guest]

THanks everyone. Its just so hard. is 5, she does love pool and

Wiggles and swinging. I am struggling with getting her to stay out of

the leaves or grass etc. Having her dance or interact is still a

challenge.

>

> Hi ,

>

> How exactly were you able to to secure the Developmental worker

through your county? My son is registered with DDD (Division of

Developmental Disabilities) and in our area you are generally put on a

waiting list for any kind of respite services (though we are very

fortunate and will be given respite funds for this summer, we just

have to find the individuals ourselves).

>

> I really appreciate your information, because perhaps there is

another avenue that we can pursue with our son's case manager based on

your experience.

> I'm glad that your daughter and your family all benefit from this

extra support!

>

> Best,

>

>

>

> To: @...: keith9164@...: Mon, 2 Jun 2008 13:22:57

-0400Subject: Re: daily schedule

>

>

>

>

> I used to try to do what they do at school too, but you quickly

learn they don't want to do that!They need a break too. They work at

school too. My daughter loves the Wiggles and so I put in a dvd or

tape for her and she watches and dances(her version) along. I also

take her outside to swing in the backyard and she has a light snack

after school sometimes if she seems hungry(usually she will go to the

pantry to get something or she will try to take her older siblings

snack so this is how I know she wants something. When it is time to

cook dinner she will hang around me like a puppy dog until it is ready

and sometimes will play with a music player or fridge magnet -leap

frogs or fisher price while I cook. After dinner I or my husband take

turns and play with her with her toys of choice, usually the same ones

over and over for a half hour or so. I don't stress over this anymore

like I used to. We have a Developmental worker that will be coming

back to work with us this week, today actually so I am looking forward

to that. She went to Italy for 6 months to study abroad. She works

with us 2 -3 days a week for a couple of hrs. This gives her some one

on one instead of being shuffled in between the older two's schedules.

That is a thought, do you have someone that could work or play with

your daughter for a couple hrs each day or during the week part time?

We went through the county services to get someone. We don't pay for

her. It was hard being without her all this time. Looking forward to

having someone here to help on occasion. Well, with the warm weather,

you could think of getting the splash pool out too, We have done that

and will take her to the big pool when I can. Also getting a sand box

for sensory play is nice too.Just some thoughts.

**************Get trade secrets for amazing burgers. Watch

" Cooking with Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)[Non-text

portions of this message have been removed]

>

>

>

>

>

>

>

>

[Guest guest]

well today is 's last day of school, I will spend the rest of the week

tweaking possible schedules. I have scl/respite set up for the mornings after I

work as I work nights, but not every night as nurses have odd schedules, usually

only 2-3 nights per week, and I dont take on any extra hours during the summer

as I like to spend it with my boys. will still get up to his alarm, I

just set it for 9am instead of 7am, as he is a teenager and likes to sleep in

like his brother. They will also continue to encourage him to independently get

up and get dressed and make his breakfast. AS it is summer holiday I try not to

work too hard. But I work with him on academics at least one hour in am

and angain in pm. we work on life skills all the time so I dont really have to

schedule that in, nathan does chores and helps cook etc. Also starting this

summer, next week, he will continue his time at the workshop on tues,wed, and

thurs just from 1230 -3pm so now he will get to go on break with his coworkers

and the staff can continue to work on his communication goal with his working

goals--the county also set up the co-city bus for him so he will get to ride

that with his coworkers to/from work how exciting for nathan. We will also fit

in some swimming during the week and maybe short trips to places as gas is high.

likes to go to the library too, and maybe fit in a movie or two this

summer. Hubby is thinking on trying to teach me and nathan to golf this summer,

lol, will let you guys know how that goes, shawna

To: @...: megsoracco@...: Mon, 2 Jun 2008

08:28:52 -0800Subject: daily schedule

I just was curious what your days were like? Usually, is inschool, but

now she's off for a week, but then when she gets homeafter school, I do not know

what to do! I try to " run her program " like what they do at school, but its so

hard. I have my 3 year old andit just is awful. I hate putting on the DVD for

her only and I just amnot sure how to " play " with the kids!We try to play

outside, but will eat anything she sees, whichmakes it hard. Driving is

out, gas is $4.30 here. UGH! And even goingto library for story time doesn't

work cause she will not sit still.

_________________________________________________________________

Enjoy 5 GB of free, password-protected online storage.

http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skyd\

rive_062008

[Guest guest]

I know, summer is a tough time. With Ethan(5 yrs) there is also a

limited amount of things he is really interested in doing. I agree

with the splash pool, we have one in the backyard and Ethan LOVES it.

We also have a big splash pad and waterpark in our neighborhood, and

he loves those too, although I have to have the energy to take him

when we do that. He doesn't listen well in public so that makes

everything twice as hard(so I usually leave the waterpark trips to my

husband ).

We also have a swingset that he loves toplay on and a little

basketball hoop that he actually has been using. He used to only want

to bounce the ball over and over in front of him, but for a while now

he has actually been playing basketball, which is nice to see

something sort of constructive going on.

We also do videos, he loves anything to do with sesame street and

elmo, and I feel guilty about that too. But one thing that makes me

feel a little better is that he has actually learned so much from

sesame street. He has known his abc's and numbers for a year or two

now, and I can honestly say he really picked them up from sesame

street. They have alot of educational stuff on there.

He also goes to a summer preschool program 3 half days a week, which

is a nice break if you can manage it. We have a habilitation worker

for 20 hours a week, and she goes to preschool with him and then also

at home a few days a week, just doing puzzles and coloring and things

like that which he would never do on his own.

I hope maybe there are some useful ideas for you. I know how hard it

can be, you hate just seeing them not doing anything 'purposeful',

and it is so easy to feel guilty. But there have been many days when

the day has goneby and all we have done is watch videos. Honestly, I

would rather have him watch a movie that he may be learning from or

enjoying then sitting and stimming all day which is what he would do

otherwise!

[Guest guest]

Elie still love Sesame Street and he is 23. I am MUCH older than that and I

have now watched Sesame Street for over 30 years and still love it. In

fact, our first dog after we married was named Sesame in honor of the

show!! I agree that there is much learning on that show. We watch it in 2

languages and that is helpful too. Makes both sides of the brain work.

> I know, summer is a tough time. With Ethan(5 yrs) there is also a

> limited amount of things he is really interested in doing. I agree

> with the splash pool, we have one in the backyard and Ethan LOVES it.

> We also have a big splash pad and waterpark in our neighborhood, and

> he loves those too, although I have to have the energy to take him

> when we do that. He doesn't listen well in public so that makes

> everything twice as hard(so I usually leave the waterpark trips to my

> husband ).

> We also have a swingset that he loves toplay on and a little

> basketball hoop that he actually has been using. He used to only want

> to bounce the ball over and over in front of him, but for a while now

> he has actually been playing basketball, which is nice to see

> something sort of constructive going on.

> We also do videos, he loves anything to do with sesame street and

> elmo, and I feel guilty about that too. But one thing that makes me

> feel a little better is that he has actually learned so much from

> sesame street. He has known his abc's and numbers for a year or two

> now, and I can honestly say he really picked them up from sesame

> street. They have alot of educational stuff on there.

> He also goes to a summer preschool program 3 half days a week, which

> is a nice break if you can manage it. We have a habilitation worker

> for 20 hours a week, and she goes to preschool with him and then also

> at home a few days a week, just doing puzzles and coloring and things

> like that which he would never do on his own.

> I hope maybe there are some useful ideas for you. I know how hard it

> can be, you hate just seeing them not doing anything 'purposeful',

> and it is so easy to feel guilty. But there have been many days when

> the day has goneby and all we have done is watch videos. Honestly, I

> would rather have him watch a movie that he may be learning from or

> enjoying then sitting and stimming all day which is what he would do

> otherwise!

>

>

>

>

--

Sara - Life is a journey- we choose the path.

[Guest guest]

hehehe, glad to see, nathan is 16 and watches it daily too, shawna

To: @...: pastmidvale@...: Wed, 4 Jun 2008

11:39:53 -0500Subject: Re: Re: daily schedule

Elie still love Sesame Street and he is 23. I am MUCH older than that and Ihave

now watched Sesame Street for over 30 years and still love it. Infact, our first

dog after we married was named Sesame in honor of theshow!! I agree that there

is much learning on that show. We watch it in 2languages and that is helpful

too. Makes both sides of the brain work.On Wed, Jun 4, 2008 at 11:29 AM,

lcoedurbin wrote:> I know, summer is a tough time. With

Ethan(5 yrs) there is also a> limited amount of things he is really interested

in doing. I agree> with the splash pool, we have one in the backyard and Ethan

LOVES it.> We also have a big splash pad and waterpark in our neighborhood, and>

he loves those too, although I have to have the energy to take him> when we do

that. He doesn't listen well in public so that makes> everything twice as

hard(so I usually leave the waterpark trips to my> husband ).> We also have a

swingset that he loves toplay on and a little> basketball hoop that he actually

has been using. He used to only want> to bounce the ball over and over in front

of him, but for a while now> he has actually been playing basketball, which is

nice to see> something sort of constructive going on.> We also do videos, he

loves anything to do with sesame street and> elmo, and I feel guilty about that

too. But one thing that makes me> feel a little better is that he has actually

learned so much from> sesame street. He has known his abc's and numbers for a

year or two> now, and I can honestly say he really picked them up from sesame>

street. They have alot of educational stuff on there.> He also goes to a summer

preschool program 3 half days a week, which> is a nice break if you can manage

it. We have a habilitation worker> for 20 hours a week, and she goes to

preschool with him and then also> at home a few days a week, just doing puzzles

and coloring and things> like that which he would never do on his own.> I hope

maybe there are some useful ideas for you. I know how hard it> can be, you hate

just seeing them not doing anything 'purposeful',> and it is so easy to feel

guilty. But there have been many days when> the day has goneby and all we have

done is watch videos. Honestly, I> would rather have him watch a movie that he

may be learning from or> enjoying then sitting and stimming all day which is

what he would do> otherwise! > >> >-- Sara - Life is a journey- we

choose the path.

[Guest guest]

Hi

When my son was your child's age, I worked outside the home so there

was never really this issue for us during the week. By the time he

came home from daycare it was a challenge to get dinner/bath done

before he fell asleep.

Different story on the weekends! So it was almost like having two

schedules: one for week days & one for weekends.

My son is now 13 and I have not been working outside the home for the

past couple of years. When that happened, there were MAJOR adjustments

for everyone.

Initially, I went thru a temporary insanity and created a schedule that

exhausted everyone. Mommy guilt about " time lost " when I worked played

a huge part in my schedule fixation.

Fortunately I came to my senses and relaxed and observed and

prioritized what I wanted to see happen or not happen.

In our case, what I did not want to see happen was for my son to become

dependent on being entertained or played with at X hour of the day.

Which he would have based on my " observations " that like clockwork he

would ask for snack or lunch at the same time that he would have them

at school or daycare. And the fact that he would have preferred

someone else doing things for him.

Since he did not know how to really " play " with toys, I incorporated

mini play sessions thru out the day. This ranged from making

pnutbutter playdough to playing " dressup " with mommy & daddy clothes to

getting his action figures & stuffed toys together for a " picnic " at

snack or lunch time.

We made tents out of sheets. Had a marching band in the yard. And an

inexpensive wading pool on the deck to swim in every day it was sunny.

We made silly faces with (washable)lipsticks, blew bubbles,

played " store " or Mcs drive thru with real money and just made

alot of messes both inside & outside.

Most activities except swimming lasted less than 20-30 minutes.

You will notice that each of these activities are fun but ALSO teaches

or reinforces a skill.

We are old parents with grandchildren, no friends with children and a

hill for a back yard. It has been a stretch for us in many ways

including times of financial woe that did not allow for paying for

activities.

But the hilly yard made for a great session of rolling, for a slip &

slide time and for seeing how many times mom or dad would fetch the

ball or car at the bottom of the yard (grr). We made part of our decks

into a play area with sandbox, little basketball goal & pool. I catch

some rays while my son " swims " or pedals his green maching thru the

pretend drive thru for a drink or a cheeto that he asks for & pays for.

The point is that you can just take everyday activities & turn them

into playtime & learning time. You can make breakfast into a tea party

or naptime into a campout with a sheet tent. Just use your imagination

and/or you inner child memories:)

And remember, if you put an object into each hand and march around just

singing or blowing a birthday horn outside, chances are there is not

alot of time or hands or opportunity to eat grass:)

It really sometimes helps if other children are involved cause they

also come up with variations on the theme. I've " used " my young

granddaughters many times when they visit...if my son sees them allow

face painting or touching playdough or playing dress up, then he

tolerates & participates more readily (re sensory issues)

And sometimes, it is ok to just do " discovery " things. Like sit

outside with a flashlight in the night time or " dig " a hole in the

garden or try to find the moon or see fire flys...Or watch a dvd for

the 1 millionth time or play a computer or video game for the 1

millionth time that day:)

Hope these ideas help. Please try to discard guilt and live in the

moment...the moment of your choosing. Which de-stresses one. Play

with abandon all the things you wished you could have done as a child.

You'll have fun then and so will your children:)

Peace.

Kris, whose now 13 year old son has been playing spiderman2 gamecube

over and over and over since summer vacation began...intervention has

begun! No doubt he will go into major withdrawal like a junky....LOL