Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 When I don't wear my bracing, working out, I end up with pain the next day. So for me it has been beneficial. Joya -- Question about braces Hi, all. Quick question...hope it's an easy one. I was diagnosed in April with CP, have been in PT since then and the pain is almost gone, but I know that this is a condition that I will deal with forever. I am working to lose weight and have a very active lifestyle. I want to continue that. During PT the therapist recommended that I slack off a bit to work on building muscle. Well, my last day of PT is Tuesday and I'm ready to get back to losing weight. Tell me if you have found that using/wearing a brace helpful/harmful/etc. Just curious to know if that has helped anyone. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2005 Report Share Posted May 22, 2005 If it doesn't work, try McConnell taping (see PT for how). Ann Question about braces Hi, all. Quick question...hope it's an easy one. I was diagnosed in April with CP, have been in PT since then and the pain is almost gone, but I know that this is a condition that I will deal with forever. I am working to lose weight and have a very active lifestyle. I want to continue that. During PT the therapist recommended that I slack off a bit to work on building muscle. Well, my last day of PT is Tuesday and I'm ready to get back to losing weight. Tell me if you have found that using/wearing a brace helpful/harmful/etc. Just curious to know if that has helped anyone. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 Here is a link for the LeukoTape kit for the McConnell taping method. I find that the tape works well and temporarily relieves the pain: http://www.reliefdepot.com/store/customer/product.php? productid=64 & cat=18 & page=1 > If it doesn't work, try McConnell taping (see PT for how). > > Ann > Question about braces > > > Hi, all. Quick question...hope it's an easy one. I was diagnosed in > April with CP, have been in PT since then and the pain is almost gone, > but I know that this is a condition that I will deal with forever. I > am working to lose weight and have a very active lifestyle. I want to > continue that. During PT the therapist recommended that I slack off a > bit to work on building muscle. Well, my last day of PT is Tuesday and > I'm ready to get back to losing weight. Tell me if you have found that > using/wearing a brace helpful/harmful/etc. Just curious to know if > that has helped anyone. > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 You may also be able to get this (cheaper) from a medical supply company in your town. Or not. It varies from place to place. Ditto with buying it from a PT clinic, whether you go there or not. Ann Question about braces > > > Hi, all. Quick question...hope it's an easy one. I was diagnosed in > April with CP, have been in PT since then and the pain is almost gone, > but I know that this is a condition that I will deal with forever. I > am working to lose weight and have a very active lifestyle. I want to > continue that. During PT the therapist recommended that I slack off a > bit to work on building muscle. Well, my last day of PT is Tuesday and > I'm ready to get back to losing weight. Tell me if you have found that > using/wearing a brace helpful/harmful/etc. Just curious to know if > that has helped anyone. > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 > Here is a link for the LeukoTape kit for the McConnell taping > method. I find that the tape works well and temporarily relieves the > pain: > > http://www.reliefdepot.com/store/customer/product.php? > productid=64 & cat=18 & page=1 > > I tried this link and it says I'm denied access. nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 You might try this; http://www.reliefdepot.com/store/customer/home.php?cat=18 Mike MT Re: Question about braces >> Here is a link for the LeukoTape kit for the McConnell taping >> method. I find that the tape works well and temporarily relieves the >> pain: >> >> http://www.reliefdepot.com/store/customer/product.php? >> productid=64 & cat=18 & page=1 >> >> > I tried this link and it says I'm denied access. > > nancy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Thanks Mike for the updated link. > You might try this; > > http://www.reliefdepot.com/store/customer/home.php?cat=18 > > Mike > MT > Re: Question about braces > > > >> Here is a link for the LeukoTape kit for the McConnell taping > >> method. I find that the tape works well and temporarily relieves the > >> pain: > >> > >> http://www.reliefdepot.com/store/customer/product.php? > >> productid=64 & cat=18 & page=1 > >> > >> > > I tried this link and it says I'm denied access. > > > > nancy > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 > http://www.reliefdepot.com/store/customer/home.php?cat=18 > > Mike > MT > Thanks! nancy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 http://www.pattstrap.com --- Heidinger <krisalis02@...> wrote: > > > > > http://www.reliefdepot.com/store/customer/home.php?cat=18 > > > > Mike > > MT > > Thanks! > > > > nancy > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Hey everybody: We just picked up Bryce's first (and perhaps last) set of orthotic/braces (after dealing with the spawn of all that is evil - aka health insurance company United Health Care). Anyway, Bryce seemed pretty excited while he was being fitted (these are the type that are molded to his feet and extend about 1/2 way up his calf) - they've got a cool race car on them & everything...anyway, that was then (yesterday morning) - followed by us trying to locate some bigger shoes to accomodate the brace. Once we did, and he tried them on with the braces, he decided he " HATED " them and told us in many different ways that he does NOT want to wear them. The purpose of the braces is to hopefully correct or limit Bryce from hyperextending his knees when walking (happens more when he kicks it into 5th gear) that sometimes causes him to lose his balance and fall down. We will no force these braces on him if he is dead set against them - on the one hand it seems good that the braces may help him from falling, but he indicated they slow him down - and he can't run as fast with them. Also, there is no way he can put them on himself - let alone put them on himself & then put on his own shoes. Seems like he'd potentially be losing some of his independence - which runs completely contrary to what we're trying to do. Any thoughts? Anyone else with kids who've had braces and how long it took for them to be accepted - if ever? Any adults on here that can relate any of their stories about wearing braces when walking? Thanks - hope yer all havin' nice weekends...Mitch __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 The company should adjust the braces until they are comfortable. It is common that the first try is not comfortable. Lori wrote: > Hey everybody: > > We just picked up Bryce's first (and perhaps last) set > of orthotic/braces (after dealing with the spawn of > all that is evil - aka health insurance company United > Health Care). Anyway, Bryce seemed pretty excited > while he was being fitted (these are the type that are > molded to his feet and extend about 1/2 way up his > calf) - they've got a cool race car on them & > everything...anyway, that was then (yesterday morning) > - followed by us trying to locate some bigger shoes to > accomodate the brace. Once we did, and he tried them > on with the braces, he decided he " HATED " them and > told us in many different ways that he does NOT want > to wear them. The purpose of the braces is to > hopefully correct or limit Bryce from hyperextending > his knees when walking (happens more when he kicks it > into 5th gear) that sometimes causes him to lose his > balance and fall down. > > We will no force these braces on him if he is dead set > against them - on the one hand it seems good that the > braces may help him from falling, but he indicated > they slow him down - and he can't run as fast with > them. Also, there is no way he can put them on > himself - let alone put them on himself & then put on > his own shoes. Seems like he'd potentially be losing > some of his independence - which runs completely > contrary to what we're trying to do. > > Any thoughts? > > Anyone else with kids who've had braces and how long > it took for them to be accepted - if ever? Any adults > on here that can relate any of their stories about > wearing braces when walking? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Mitch, I wore braces til like 2nd grade, when my MDA Dr said they were a waste of time and energy. I had braces similar to the ones you are talking about and ones that went up my whole leg and around my waist. I hated wearing them but I finally did. Don't think then I had much choice. They did slow me down tho. I say give him the choice. If he has valid reasons for not wearing them, then agree w/him. Kimi In a message dated 1/14/2006 3:58:48 P.M. Eastern Standard Time, mongomustgolf@... writes: Hey everybody: We just picked up Bryce's first (and perhaps last) set of orthotic/braces (after dealing with the spawn of all that is evil - aka health insurance company United Health Care). Anyway, Bryce seemed pretty excited while he was being fitted (these are the type that are molded to his feet and extend about 1/2 way up his calf) - they've got a cool race car on them & everything...anyway, that was then (yesterday morning) - followed by us trying to locate some bigger shoes to accomodate the brace. Once we did, and he tried them on with the braces, he decided he " HATED " them and told us in many different ways that he does NOT want to wear them. The purpose of the braces is to hopefully correct or limit Bryce from hyperextending his knees when walking (happens more when he kicks it into 5th gear) that sometimes causes him to lose his balance and fall down. We will no force these braces on him if he is dead set against them - on the one hand it seems good that the braces may help him from falling, but he indicated they slow him down - and he can't run as fast with them. Also, there is no way he can put them on himself - let alone put them on himself & then put on his own shoes. Seems like he'd potentially be losing some of his independence - which runs completely contrary to what we're trying to do. Any thoughts? Anyone else with kids who've had braces and how long it took for them to be accepted - if ever? Any adults on here that can relate any of their stories about wearing braces when walking? Thanks - hope yer all havin' nice weekends...Mitch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 whoa! that was a long time ago when I wore them. We didn't get anything cool like a race car though! lucky him! I remember I wore them mostly because when I walked, I tended to walk on the side of my feet. The braces made me keep my feet flat and it was very hard to get used to. I didn't totally hate them eventually, but I do remember being pinched by them often! ouch! Like if the skin it moved just the wrong way around the top it would totally hurt. They sound like the same type of brace but perhaps for different reasons. If it helps him to NOT fall it sounds like a good thing. Maybe give it time to see if he gets used to them or if they just never work out? Hard decision. Ok I was no help! lol <mongomustgolf@...> wrote: Hey everybody: We just picked up Bryce's first (and perhaps last) set of orthotic/braces (after dealing with the spawn of all that is evil - aka health insurance company United Health Care). Anyway, Bryce seemed pretty excited while he was being fitted (these are the type that are molded to his feet and extend about 1/2 way up his calf) - they've got a cool race car on them & everything...anyway, that was then (yesterday morning) - followed by us trying to locate some bigger shoes to accomodate the brace. Once we did, and he tried them on with the braces, he decided he " HATED " them and told us in many different ways that he does NOT want to wear them. The purpose of the braces is to hopefully correct or limit Bryce from hyperextending his knees when walking (happens more when he kicks it into 5th gear) that sometimes causes him to lose his balance and fall down. We will no force these braces on him if he is dead set against them - on the one hand it seems good that the braces may help him from falling, but he indicated they slow him down - and he can't run as fast with them. Also, there is no way he can put them on himself - let alone put them on himself & then put on his own shoes. Seems like he'd potentially be losing some of his independence - which runs completely contrary to what we're trying to do. Any thoughts? Anyone else with kids who've had braces and how long it took for them to be accepted - if ever? Any adults on here that can relate any of their stories about wearing braces when walking? Thanks - hope yer all havin' nice weekends...Mitch __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2006 Report Share Posted January 16, 2006 Thanks for replies on this topic. The braces actually seem to be a good fit - but, at least for Bryce, the braces do seem to immobilize his ankles. The apparent idea behind the braces is to cause bryce to walk " heal-to-toe " and to limit the movements that sometimes cause him to hyper-extend his knees (followed by losing balance & sometimes falling). Bryce tends to " toe " walk - and for him to generate speed (kick it into 5th gear) he swings his legs ever so slightly 'around' his body (since his hips & quads were the muscle groups most affected). While I want him to fall less - to avoid injury - the biggest thing he wants to do is go faster. The braces will do one thing for sure - and that is to slow him down - which may be the main reason he tells us to stick this things in our ears. Do any of ya'll who've worn these sort of braces believe they really helped you? That's my primo, numbero uno question - one that the orthotics company rep or the physical therapist who recommended braces - seem unable to specifically answer - " do they help? " The braces " may " help for this or that in Bryce's gait. Thus far Bryce (who is 5 years old) - has told us he does not want to wear the braces because " they don't help him run like Dash (of the movie The Incredibles). " That's all he's " saying " - but I don't think it's all he's thinking (as he seems to always be a couple of ideas ahead of everyone). Is anybody on this list currently using braces for assistance with walking and do you think it helps you? Thanks. Mitch --- Joy <j0yeuxx@...> wrote: > whoa! that was a long time ago when I wore them. We > didn't get anything cool like a race car though! > lucky him! > I remember I wore them mostly because when I > walked, I tended to walk on the side of my feet. The > braces made me keep my feet flat and it was very > hard to get used to. > I didn't totally hate them eventually, but I do > remember being pinched by them often! ouch! Like if > the skin it moved just the wrong way around the top > it would totally hurt. > They sound like the same type of brace but perhaps > for different reasons. If it helps him to NOT fall > it sounds like a good thing. Maybe give it time to > see if he gets used to them or if they just never > work out? Hard decision. Ok I was no help! lol > > > > <mongomustgolf@...> wrote: > Hey everybody: > > We just picked up Bryce's first (and perhaps last) > set > of orthotic/braces (after dealing with the spawn of > all that is evil - aka health insurance company > United > Health Care). Anyway, Bryce seemed pretty excited > while he was being fitted (these are the type that > are > molded to his feet and extend about 1/2 way up his > calf) - they've got a cool race car on them & > everything...anyway, that was then (yesterday > morning) > - followed by us trying to locate some bigger shoes > to > accomodate the brace. Once we did, and he tried them > on with the braces, he decided he " HATED " them and > told us in many different ways that he does NOT want > to wear them. The purpose of the braces is to > hopefully correct or limit Bryce from hyperextending > his knees when walking (happens more when he kicks > it > into 5th gear) that sometimes causes him to lose his > balance and fall down. > > We will no force these braces on him if he is dead > set > against them - on the one hand it seems good that > the > braces may help him from falling, but he indicated > they slow him down - and he can't run as fast with > them. Also, there is no way he can put them on > himself - let alone put them on himself & then put > on > his own shoes. Seems like he'd potentially be losing > some of his independence - which runs completely > contrary to what we're trying to do. > > Any thoughts? > > Anyone else with kids who've had braces and how long > it took for them to be accepted - if ever? Any > adults > on here that can relate any of their stories about > wearing braces when walking? > > Thanks - hope yer all havin' nice weekends...Mitch > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 The best thing to do would be to go to/or back to your Orthotist and be evaluated/re-evaluated. There are so many differen't kinds of AFOs, not all work for the same person. Read back through 11 years of our archived posts on AFOs, KAFOs, SAFOs, DAFOs, Helios, Blue Rockers, Toe-Offs etc. Gretchen Quote Link to comment Share on other sites More sharing options...
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