Introduction - Angie Phiffer

[Guest guest]

I am a 30 year old mother of two boys ages 10 and 4. I have been having problems

for about 7 years walking. It wasn't horrible until about 4 years ago. 3 years

ago I was diagnosed with Neuropathy but the doctors had no idea why and I had

other medical issues come up so my problems walking was put on the back burner

and never got moved to the front.

About a month and a half ago, my blood pressure shot up and my doctor made me go

to the ER. The neurologist who examined me looked at my feet and mentioned CMT.

I have no known family history of it but my grandparents died 25+ years ago so I

don't have a lot of family medical history. When I went for my follow-up, the

neurologists I saw did their tests and thought a genetic test was warranted and

an EMG. Both of them came back that i do have CMT.

I have a lot of problems walking. If I walk too far or too fast, my legs start

burning/cramping in my lower legs and then my lower legs and feet fall asleep

and I will fall over if I keep trying to walk and my ankles start twisting

because I can't feel them. It is starting to get hard to type sometimes which is

my job and I'm dreading that becoming difficult. I also have a lot of

neuropathic pain in my legs and arms. I don't know what to do for it, but I'm

hoping they can help me when I go for my appointment at the MDA clinic. Nice to

meet you all.

Angie Phiffer