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/Gareth Update

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Hi, Everyone..........Gareth has had both T & A removed and still

had/has severe sleep apnea. He uses the C-PAP machine nightly. Best of luck

to

you and your son.

Update.......we just got back from the ER. Gareth had his second 'major'

seizure today at school and scared the heck out of everyone. It lasted longer

than 5 minutes and by the time I got there, they were debating to call 911.

I took him to the ER, everything came back normal, and we got sent home. The

doctor switched him back to the Depakote instead of the Topamax, so now we

will have to deal with the weight gain some how. He's scheduled for his

pilonidal surgery July 15th. They will send him home with a 'marsupial wound'

instead of doing the more involved 'flap' . I have flashbacks of his surgery

(while in Chicago) and being sent home with a marsupial......it's not going to

be an enjoyable summer for him or I having to change the dressings and

repack.

Take care, Everyone.

Margaret

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