Does everyone get drop foot and walk funny?

[Guest guest]

Does everyone get drop foot and walk funny? I'm in my 10th year as sufferer of

CMT, but have no outward affects just the pain involved I have been prescribed

braces, but I'm a very stubborn individual and won't get them until I see myself

getting worse. My CMT affects my hands and arms the most and at night I get

restless leg. I take Tramadol for my pain, but I see a doctor tomorrow for a

second opinion and maybe another med for pain I find the Tramadol keeps me

awake. I will keep yu all posted on my situation. Thank You all for this forum.

K. Thorgrimsen

P.S most say I have very defined muscular lower legs.

________________________________

From: Cyndi Saxton <missteawinkie@...>

Sent: Thu, January 14, 2010 2:00:14 PM

Subject: Re: a man asked to see my legs?

 

Sometimes I see people who walk rather funny (not CMTers) and I wonder if they

get asked too.  Then sometimes I see the woman (especially at the mall) wearing

high heels and boy some of them walk funny in those shoes!

Yesterday my daughter and I were at a stop light and a man was walking across

the street in the cross walk in front of us and he obviously had CMT or some

similar condition.  I said " Look, he has CMT " and I thought how odd it was like

a was recognizing an alien from my home planet! LOL 

Cyndi

[Guest guest]

,

No. I do not have footdrop or walk funny. I was diagnosed 40 + years ago and do

not need leg braces nor have I ever needed them. I have a slight indentation in

my peroneal muscle, but it still works. I walk fine, just need in-shoe orthotics

(since the 90's) for cushioning and good shoes. Because my peroneal muscle is

still functioning, I do not have footdrop. I also do not have pain.

Gretchen

[Guest guest]

Hi ,

I don't walk funny or have foot drop yet, although I have disabling pain and

fatigue.

I too have well-defined leg muscles, at least I did until the year or two.  They

are finally starting to fade.  The same is true for my family members with CMT. 

Very large calf muscles that don't go away until the later stages.

This is not uncommon.  It's called " calf hypertrophy " and it's been

identified to occur  " occasionally " in families with CMT1A.  Perhaps that's the

type you have?

http://neuromuscular.wustl.edu/time/hmsn.html#IA

Others in my family don't have pain.  It's an odd disease, in the way it affects

everyone so differently.  Please do share your experiences.

[Guest guest]

I am a funny person.

I have foot drop.

I walk gracefully.

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