Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Hi, my name is and I am 22 years old and diagnosed with CMT1A. I was diagnosed at age 16, after my mom was diagnosed about a month prior through an EMG and a genetic test. Around this time I started to have severe pain in my groin. I had an MRI done and was found to have hip dysplasia, because it was caught so late I had early signs of arthrosis. After I had my son, who is now 3, the pain because unbareable. I saw an Orthopedic Surgeon at Loyola University in IL, and he performed a hip reconstruction surgery on my last April, called a Periacetabular Osteotomy. Right now I barely have any pain in my hip, but am having other problems, with my shoulder, and hands. Just wanted to share my story and see if anyone else had any similiar symptons/experiences. Quote Link to comment Share on other sites More sharing options...
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