Re: Peripheral Neuropathy Week is here!

[Guest guest]

Mark,

You are amazing - an amazing " goose " , as we all are! As for #1 on that list,

there will be more info out about that later this summer. Since it's on the East

Coast, you may want to block out the dates on your calendar now.

Really great about you and the Cub Scouts! You're a dynamite father!

Gretchen

[Guest guest]

Thanks Gretchen! I wish I had your energy, enthusiasm, dedication, and knowledge

of CMT. I wish I felt the way you described as I was trudging through the woods,

up and down hills, across uneven fields, stone roads and paths, and slept in a

tent because my son had a Scout outing. Do that with a couple carbon fiber poles

strapped to your legs, holding your feet up and keeping you from flexing your

ankles in anyway, shape or form. I was really wondering how I was going to make

it to work on Monday morning because by 4pm Saturday I had no idea how I would

make it to lights out that night and be up to more activities Sunday morning. It

is amazing how much easier this was just 6 years ago with our older son. But #1

got to do all these things I and I was right there with him, #2 will not miss

out on anything he wants even if I have to crawl to make it happen for him.

Thanks for the kind words. As always, you are an amazing person for your

perspectives on life with CMT.

Mark

>

> Mark,

>

> You are amazing - an amazing " goose " , as we all are! As for #1 on that list,

there will be more info out about that later this summer. Since it's on the East

Coast, you may want to block out the dates on your calendar now.

>

> Really great about you and the Cub Scouts! You're a dynamite father!

>

>

> Gretchen

>