Re: Karyn

August 21, 2008

they made a new law that kids have to be carried or walk on the bus which just

doesnt work for us Mic is so active. If he sees someone crossing the highway he

thinks he can and I had him by his shirt collar.And he got away from me.Its a

safety issue not what he has is its just me feeling unsafe and we cant just

stay in our own safe world at home.My service coord is looking for a childs

wheelchair so we can be mobile without him in danger. I am going to grief

counseling and I have to take him it costs 50 bucks to take a cab and 15 to take

the bus. He also thinks the bus is like a ride at the fair and hops up and down

when we hit bumps.Im so afraid hes gonna get hurt.Plus theres major construction

going on where we go they tore the sidewalks out and we have to stroll on the

side of the traffic. Im afraid to take him and its so scary. Thats why I am

doing this. I have glaucoma and my license is restricted so we are using public

transportation. I dont care what other people think I just want us to feel

safe. Thanks Laurie

To: @...: KVanRyzin@...: Thu, 21 Aug 2008

20:51:47 +0000Subject: Re: Cafe Press Shirts on Autism

Laurie,Just concentrate on Mic and slowly you won't even notice those other

people. It helps to resolve the situation better if he is getting your undivided

attention and those other people really don't matter.Karyn>> > my

reasoning for purchasing one of these shirts is so people will stop staring and

maybe give me and Mic some understanding and offer a helping hand when we are

out in public in an unsafe situation.Ive been taking Mic out as much as possible

and we are riding public transportation and I am terified Mic is gonna get hurt

because people just dont understand.I will be careful what wording I choose for

this shirt.I wear Mics graduation tee shirt the school had made for the children

and it just says Crossroads Center for children with autism and people are quite

nice and ask me questions about the school.So, I thought if I buy the shirt my

size and I wear it when Im with him people will stop giving us dirty looks when

Mic is stop dropping and flopping on the bus or in the parking lot or when hes

screaming to the top of his lungs in stores. Laurie> > To: @...:

shaugn.davenport@...: Wed, 20 Aug 2008 23:08:54 -0400Subject: RE:

Re: Cafe Press Shirts on Autism> > > > > Actually, it isn't really that

surprising at all. They simply don't care what they sell as long as whatever it

is makes them a profit. Look at the entertainment industry. There are companies

out there, like DreamWorks, that make quality films that entertain and inform

like " Flags of Our Fathers " and " Letters From Iwo Jima " and then turn around and

make bigscreen junkfood like " Tropic Thunder " .It isn't the content of the

product that these companies really care about, it is the end cash value of the

franchise. The reality is that as long as someone will buy this crap, there will

be someone to sell it. Drug dealing wouldn't be very profitable without the

junkies, now would it ;-)Sure the companies should be dinged for stoking the

fire, but the real problem is the customers lighting the match to begin with. At

least Café Press is an equal opportunity offender. It's not personal, they just

make what people will buy and, well, ignorant people can get credit cards. (not

that I am endorsing it or condoning it, just observing)Just a rant. For me, I'd

probably think twice before buying anything from these folks, but that's just

me.From: [mailto: ] On Behalf

Of stamtorch@...: Wednesday, August 20, 2008 9:32 PMTo: @...: Re:

Re: Cafe Press Shirts on AutismUnfortunately, Cafe press is also the

same company that sells the " Don't go Full retard " t-shirtHow unfortunate that

one company can sell such opposite shirts.?Blessings, homeschooling Mom

to AJ (13), (9), ^l^, (age 6, Trisomy 18 mosaic

AKA 's syndrome) and Birgitta (age 5, adoption finalized 2/1/05 !!,

Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome, Autism,

SID) Cafe

Press Shirts on Autism> > > > > Holly, Thanks for telling me about the autism

shirts you bought from Cafe press. I just went online and looked them up. Funny.

I have autism what wrong with you? I love it. Cyndi B > > > > > >

__________________________________________________________> Talk to your Yahoo!

Friends via Windows Live Messenger. Find out how.>

http://www.windowslive.com/explore/messenger?ocid=TXT_TAGLM_WL_messenger_yahoo_0\

82008> > [Non-text portions of this message have been

removed]>-----------------------------------------------------------------------\

---------------Checkout our homepage for information, bookmarks, and

photos of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the archives

for our list.

http://groups.yahoo.com/group/-----------------------------------------\

---

August 21, 2008

I used a harness and straps for ELie when he was between 4-8 because he was

soo very unsafe in the street. Then I made a loop that went around his

waist only that I held the end of. I originally made a velcro loop, but he

unzipped that in no time, so I made a big button and button hole on the loop

around his waist. The nylon starpping copmes in lovely colors at the fabric

store.

On Thu, Aug 21, 2008 at 5:15 PM, laurie drago wrote:

>

> they made a new law that kids have to be carried or walk on the bus which

> just doesnt work for us Mic is so active. If he sees someone crossing the

> highway he thinks he can and I had him by his shirt collar.And he got away

> from me.Its a safety issue not what he has is its just me feeling unsafe and

> we cant just stay in our own safe world at home.My service coord is looking

> for a childs wheelchair so we can be mobile without him in danger. I am

> going to grief counseling and I have to take him it costs 50 bucks to take a

> cab and 15 to take the bus. He also thinks the bus is like a ride at the

> fair and hops up and down when we hit bumps.Im so afraid hes gonna get

> hurt.Plus theres major construction going on where we go they tore the

> sidewalks out and we have to stroll on the side of the traffic. Im afraid to

> take him and its so scary. Thats why I am doing this. I have glaucoma and my

> license is restricted so we are using public transportation. I dont care

> what other people think I just want us to feel safe. Thanks Laurie

>

> To: @... <%40yahoogroups.comFrom>:

> KVanRyzin@... <KVanRyzin%40aol.comDate>: Thu, 21 Aug 2008 20:51:47

> +0000Subject: Re: Cafe Press Shirts on Autism

>

> Laurie,Just concentrate on Mic and slowly you won't even notice those other

> people. It helps to resolve the situation better if he is getting your

> undivided attention and those other people really don't matter.Karyn>> > my reasoning for purchasing one of these

> shirts is so people will stop staring and maybe give me and Mic some

> understanding and offer a helping hand when we are out in public in an

> unsafe situation.Ive been taking Mic out as much as possible and we are

> riding public transportation and I am terified Mic is gonna get hurt because

> people just dont understand.I will be careful what wording I choose for this

> shirt.I wear Mics graduation tee shirt the school had made for the children

> and it just says Crossroads Center for children with autism and people are

> quite nice and ask me questions about the school.So, I thought if I buy the

> shirt my size and I wear it when Im with him people will stop giving us

> dirty looks when Mic is stop dropping and flopping on the bus or in the

> parking lot or when hes screaming to the top of his lungs in stores. Laurie>

> > To: @...: shaugn.davenport@...: Wed, 20 Aug 2008 23:08:54

> -0400Subject: RE: Re: Cafe Press Shirts on Autism> > > > >

> Actually, it isn't really that surprising at all. They simply don't care

> what they sell as long as whatever it is makes them a profit. Look at the

> entertainment industry. There are companies out there, like DreamWorks, that

> make quality films that entertain and inform like " Flags of Our Fathers " and

> " Letters From Iwo Jima " and then turn around and make bigscreen junkfood

> like " Tropic Thunder " .It isn't the content of the product that these

> companies really care about, it is the end cash value of the franchise. The

> reality is that as long as someone will buy this crap, there will be someone

> to sell it. Drug dealing wouldn't be very profitable without the junkies,

> now would it ;-)Sure the companies should be dinged for stoking the fire,

> but the real problem is the customers lighting the match to begin with. At

> least Café Press is an equal opportunity offender. It's not personal, they

> just make what people will buy and, well, ignorant people can get credit

> cards. (not that I am endorsing it or condoning it, just observing)Just a

> rant. For me, I'd probably think twice before buying anything from these

> folks, but that's just me.From:

<%40yahoogroups.com>[mailto:

> ] On Behalf Of

> stamtorch@...: Wednesday, August 20, 2008 9:32 PMTo: @...: Re:

> Re: Cafe Press Shirts on AutismUnfortunately, Cafe press is also

> the same company that sells the " Don't go Full retard " t-shirtHow

> unfortunate that one company can sell such opposite shirts.?Blessings,

> homeschooling Mom to AJ (13), (9), ^l^,

> (age 6, Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age

> 5, adoption finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal

> Alcohol Syndrome, Autism, SID) Cafe Press Shirts on Autism> > >

> > > Holly, Thanks for telling me about the autism shirts you bought from

> Cafe press. I just went online and looked them up. Funny. I have autism what

> wrong with you? I love it. Cyndi B > > > > > >

> __________________________________________________________> Talk to your

> Yahoo! Friends via Windows Live Messenger. Find out how.>

>

http://www.windowslive.com/explore/messenger?ocid=TXT_TAGLM_WL_messenger_yahoo_0\

82008>

> > [Non-text portions of this message have been

> removed]>----------------------------------------------------------Checkout

> our homepage for information, bookmarks, and photos of our kids.

> Share favorite bookmarks, ideas, and other information by including them.

> Don't forget, messages are a permanent record of the archives for our list.

>

http://groups.yahoo.com/group/-----------------------------------------\

---Yahoo!

> Groups Links

January 9, 2010

I think - that it could be becauseour kids cannot process what happens to

them. And so they need to repeat it endlessly - without the hope that

everything will come out alright - just the anxiety provoking things.

One of Elie's 'silly' if you will fears is moving sidewalks. He stepped on

one once in an airport, felt uncomfortable wanted off, had a meltdown -

because once you are on you have to wiat for debartatiion point. Seems

little - but when he goes in an airport, he immediately wants a chair - no

sidewalk. And he looks terrified, and his heart rate goes up, etc.

>

> Hi, Everyone.....Karyn....thank you for sharing the bit about . I

> was always under the impression that PTSD was from war/fighting - not

> emotional trauma. The doc recommended that we try therapy and she is going

> to

> find someone for us that deals with special needs kids. She said he's at

> the

> point where he can't 'turn off the episodes' and any sort of anxiety or

> upsetting situation will make him shut down again. It's the

> paranoia/hallucinations/zombie individual that makes me so sad. He's had so

> many surgeries

> that I have lost count, maybe that is the major problem.

>

> Take care, Everyone.

> Margaret

>

January 9, 2010

Margaret,

I think our kids inability to understand many of the medical procedures that are

done to them make them very vulnerable. The whole idea that someone is invading

your body space and body itself and causing you pain, sometimes when you are

already in pain must be very confusing. Not to mention the physical pain some of

our kids suffer from medical conditions that aren't curable or even detectable.

On top of abusive/neglectful home for the first 6 years of life, and a lousy

gene pool (not counting the ds), also spent lots of time in the hospital

with no family present during his first three years of life.

Now that has more verbal skills he can tell me things that really haunt

him, like the " mean Jan nurse " when he was hospitalized with a bowel obstruction

when he was about 10 or 11. He had another bowel obstruction over Christmas,

arrggg, and the minute they said bowel obstruction he got upset. Fortunately he

trusts that if I say it isn't going to happen then it isn't. IT also helps that

at 120 lbs and having destroyed a group home the hosp staff don't force things

on him like when he was a child.

Hopefully we got through the current hospitalization without more damage. He

seems OK and we were with him through it all. We do have a recurrence of bed

wetting which seems to happen with he is feeling insecure.

Good luck, I wish we had more resources when we were wading through it with

. We just know we can never leave him without people that make him feel

safe.

Karyn

>

> Hi, Everyone.....Karyn....thank you for sharing the bit about . I

> was always under the impression that PTSD was from war/fighting - not

> emotional trauma. The doc recommended that we try therapy and she is going

to

> find someone for us that deals with special needs kids. She said he's at the

> point where he can't 'turn off the episodes' and any sort of anxiety or

> upsetting situation will make him shut down again. It's the

> paranoia/hallucinations/zombie individual that makes me so sad. He's had so

many surgeries

> that I have lost count, maybe that is the major problem.

>

> Take care, Everyone.

> Margaret

>

January 9, 2010

Wow, what you said about repeating instead of processing, my gosh we see that

with . I remember a time when his speech therapist was here from Early

Intervention, fell off his little ride-on car. So the rest of the

session, he'd climb up, fall himself off again, and cry. He knew how to ride

the car (and did, the next time he played with it) but that day it was up, fall,

cry.

He does that a lot when he gets hurt.

Sent from my iPhone