Re: Peripherial Neuropathy Week is here! - CCSVI

[Guest guest]

Related - in a way - to Peripheral Neuropathy Week:

CCSVI (Chronic Cerebrospinal Venous Insufficiency) is a HUGE issue within the MS

community, following successful treatments in Italy. They are now at the

'confirming-the-research' stage.

MS has long been considered an autoimmune disease - and who knows - but

researchers found a high incidence of MS in those with - basically - blocked

veins. Once surgery was performed to open the veins, there were dramatic

improvements.

One of the proposed studies is located in Buffalo, N.Y., and is looking for

'other neurological' as one of the types of control groups. If any of you CMTers

live in the Buffalo area, it would be interesting to have your data in this

study. This is not a treatment study, but rather a study to examine the

cerebrospinal venous capacity, via doppler/imaging/etc.

Go here for more information, or to sign up, and please let us know about your

participation:

http://nationalmssociety. org/news/news-detail/index.aspx?nid=2510

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> May 17 - 21 is Peripherial Neuropathy Week!

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> 2010 marks the 6th year that Peripheral Neuropathy Awareness is placed on the

Federal Calendar of Health Observances. This includes Charcot Marie Tooth

neuromuscular syndrome. This is so that we all can alert the public to ensure

diagnosis, raise awareness and call attention to the need for more research,

treatment and final arrestment.

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> What you can do:

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> 1. Mark your calenders now for the Neuropathy Summitt Dec 3-5 2010 to be held

in Washington D.C. for all doctors, researchers, patients, caregivers interested

in peripheral neuropathy and it's effects.

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> 2. Urge your Senator to support the Pro - Neurology amendment to the patient

protection and affordable care Act (H.R. 3590) passed by the US Senate 12/24/09

(Sample letter in our Files section titled " Neurology Amendment " )

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> 3. Participate in the Willows Challenge for CMT and STAR

/message/55687

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> 4. Start a CMT Support Group

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> 5. Join a CMT Support Group

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> 6. Shop online at iGive and support the Charcot Marie Tooth Association.

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> 7. Talk to 5 new people this week about CMT and how it affects you or your

loved ones.

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> 8. Be part of the solution, consider gifting $5.00 or more to eradicate CMT

from our world.

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> 9. Follow me on Facebook for more ideas throughout the week. Watch how

Peripheral Neuropathy and the Empire State Building come together!

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> Gretchen

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