Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Barb: My daughter used to mouth everything too, especially around that age. She's 8 now and hasn't done it for many years. I guess you could say she grew out of it. We just kept offering things to chew on (chewy tubes, etc.). Heidi -- Wisconsin, USA (Mom to 8 w/ DS, ASD, epilepsy; Clara 3) No two flowers bloom in exactly the same way, but all are beautiful ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Chewy objects help some children. Talk to your OT about what safe chewy objects can be used that at a later date you can wean him off of. My son chewed his hands, especially the pads near the thumb until we got him chew toys - several different textures and kinds. But he is now 24. i am sure there are better, more esthetic devices then what we created - I bought LOTS of dog toys at that point!!!! > > > Hello, > I am new to this group and have a 3 and a half year old boy with down > syndrome and autism. I hope to get some ideas on helping my little guy and > to share some things that have worked for us. I do have a question for > anyone out there whose child mouths everything, like mine does. We used to > think he would grow out of this as he teeth came in and I do know that this > is one big sensory way he explores things, but it is getting to the point of > being a health issue. We are doing the brushing/joint compressions, but any > other ideas? > Barb > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Hi barb, I give Jemma an icy pole a day it seems to help as she has oral sensory seeking behaviours. This also helped reduce her teeth grinding, Belinda Mum to jemma ds/asd 4 1/2 ________________________________ To: Sent: Mon, 29 March, 2010 7:13:08 AM Subject: (unknown) Hello, I am new to this group and have a 3 and a half year old boy with down syndrome and autism. I hope to get some ideas on helping my little guy and to share some things that have worked for us. I do have a question for anyone out there whose child mouths everything, like mine does. We used to think he would grow out of this as he teeth came in and I do know that this is one big sensory way he explores things, but it is getting to the point of being a health issue. We are doing the brushing/joint compressions, but any other ideas? Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Try giving him a vibrating toothbrush Sent via BlackBerry from T-Mobile (unknown) Hello, I am new to this group and have a 3 and a half year old boy with down syndrome and autism. I hope to get some ideas on helping my little guy and to share some things that have worked for us. I do have a question for anyone out there whose child mouths everything, like mine does. We used to think he would grow out of this as he teeth came in and I do know that this is one big sensory way he explores things, but it is getting to the point of being a health issue. We are doing the brushing/joint compressions, but any other ideas? Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2010 Report Share Posted October 4, 2010 This was on facebook today (thanks, Irma!). Sent from my iPhone Dear family and friends, I understand that we will be visiting each other for some get-togethers this year. Sometimes these visits can be very hard for me, but here is some information that might help our visit to be more successful. As you probably know, I am challenged by a hidden disability called Autism, or what some people refer to as Pervasive Developmental Disorder (PDD). Autism/PDD is a neurodevelopmental disorder which makes it hard for me to understand the environment around me. I have barriers in my brain that you can’t see, but which make it difficult for me to adapt to my surroundings. Sometimes I may seem rude and abrupt or silly and out of control, but it is only because I have to try so hard to understand people and at the same time, make myself understood. People with autism have different abilities. Some may not speak, some will write beautiful poetry. Others are whizzes in math (Albert Einstein was thought to be autistic), or may have difficulty making friends. We are ALL different and need various degrees of support. Sometimes when I am touched unexpectedly, it might feel painful and make me want to run away. I get easily frustrated, too. Being with lots of other people is like standing next to a moving freight train and trying to decide how and when to jump aboard. I feel frightened and confused a lot of the time. This is why I need to have things the same as much as possible. Once I learn how things happen, I can get by OK. But if something, anything, changes then I have to relearn the situation all over again! It is very hard. When you try to talk to me, I often can’t understand what you say because there is a lot of distraction around. I have to concentrate very hard to hear and understand one thing at a time. You might think I am ignoring you – I am not. Rather, I am hearing everything and not knowing what is most important to respond to. Get-togethers are exceptionally hard because there are so many different people, places and things going on that are out of my ordinary realm. This may be fun and adventurous for most people, but for me, it’s very hard work and can be extremely stressful. I often have to get away from all the commotion to calm down. It would be great if I had a private place set up to where I could retreat every time I go to get-togethers. If I cannot sit at the meal table, do not think I am misbehaved or my parents have no control over me. Sitting in one place for even five minutes is often impossible for me. I feel so antsy and overwhelmed by all the smells, sounds, and people – I just have to get up and move about. Please don’t hold up your meal for me – go on without me, and my parents will handle the situation the best way they know how. Eating in general is hard for me. If you understand that autism is a sensory processing disorder, it’s no wonder eating is a problem! Think of all the senses involved with eating. Sight, smell, taste, touch AND all the complicated mechanics that are involved. Chewing and swallowing is something that a lot of people with autism have trouble with. I am not picky – I literally cannot eat certain foods as my sensory system and/or oral motor coordination are impaired. Don’t be disappointed if Mom hasn’t dressed me in the best clothes there are. It’s because she knows how much stiff and frilly clothes drive me buggy! I have to feel comfortable in my clothes or I will just be miserable. When I go to someone else’s house, I may appear crabby. Things have to be done in ways I am familiar with or else I might get confused and frustrated. It doesn’t mean you have to change the way you are doing things – just please be patient with me, and understanding of how I have to cope. Mom and Dad have no control over how my autism makes me feel inside. People with autism often have little things that they do to help themselves feel more comfortable. The grown-ups call it “self-regulation†or “stimming.†I might rock, hum, flick my fingers, tap a string, or any number of different things. I am not trying to be disruptive or weird. Again, I am doing what I have to do for my brain to adapt to your world. Sometimes I cannot stop myself from talking, singing, laughing, or doing an activity I enjoy. The grown-ups call this “perseverating†which is kinda like self-regulation or stimming. I do this only because I have found something to occupy myself that makes me feel comfortable. Perseverating behaviors are good to a certain degree because they help me calm down. Please be respectful to my Mom and Dad if they let me “stim†for a while as they know me best and what helps to calm me. Remember that my Mom and Dad have to watch me much more closely than the average child. This is for my own safety, and preservation of your possessions. It hurts my parents’ feelings to be criticized for being over-protective, or condemned for not watching me close enough. They are human and have been given an assignment intended for saints. My parents are good people and need your support and not rude remarks. Gatherings are filled with sights, sounds, and smells. The average household is turned into a busy, frantic, festive place. Remember that this may be fun for you, but it’s very hard work for me to conform. If I fall apart or act out in a way that you consider socially inappropriate, please remember that I don’t possess the neurological system that is required to follow some social rules. I am a unique person – an interesting person. I will find my place at these celebrations that is comfortable for us all, as long as you’ll try to view the world through my eyes! -Author Unknown I do not know who wrote this, I do feel it can help so many, Bless the child that wrote this letter. Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2010 Report Share Posted November 17, 2010 Ana: How old is your son..and what is his diagnosis? Did the school personnel help find him? Liz > > > My > son run away from the school last thursday,teachers and paraprofesional > didnt know,was Leo " s dad( classmate) how find by > casuality...what do you think I need to do...! I want to go to police > department and report the accident and negligent or wait and wait... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2010 Report Share Posted November 17, 2010 Contact your state's child protection agency and report the incident. Charlyne Subject: (unknown) To: Date: Wednesday, November 17, 2010, 10:20 PM  My son run away from the school last thursday,teachers and paraprofesional didnt know,was Leo " s dad( classmate) how find by casuality...what do you think I need to do...! I want to go to police department and report the accident and negligent or wait and wait... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2010 Report Share Posted November 18, 2010 Perfect reason to call an IEP meeting and schedule a 1:1 aid. If they cannot keep him safe, that is an issue they need to deal with at the school level. This can go in the IEP under " Other issues " . You don't say how old he is? And Ana, don't feel alone - my son too had an 'eyes on' person for years in school - one person assigned to make sure my son didn't leave the area he was supposed to be in. By about age 15, this was more casual, but someone was always aware of his location. > > > My > son run away from the school last thursday,teachers and paraprofesional > didnt know,was Leo " s dad( classmate) how find by > casuality...what do you think I need to do...! I want to go to police > department and report the accident and negligent or wait and wait... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2010 Report Share Posted November 18, 2010 nathan “eloped†from school just ONCE and that was all it took---ofcourse make sure the police know, they need up to date photo’s on your son, his disabilities and ways to get a hold of who is needed etc. Also the school needs a better system in place, for nathan he got a 1 on 1 aid at all times. We looked into different locators etc but at that time they didn’t have such good stuff availabe, even the internet wasn’t much available back then. Now nathan has a cell phone with parent chaperone so I can find him if need be which does help a little. I also think elopement is a developmental thing, nathan seemed to outgrow it just fine. shawna From: Ana Vaca Sent: Wednesday, November 17, 2010 9:20 PM To: Subject: (unknown) My son run away from the school last thursday,teachers and paraprofesional didnt know,was Leo " s dad( classmate) how find by casuality...what do you think I need to do...! I want to go to police department and report the accident and negligent or wait and wait... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 This is good and also I like what she said...although we we certainly want cures we sure do need people to work on methods to improve the quality of life along the way till those cures are found!!!!!Annie To: From: macookson@... Date: Mon, 3 Jan 2011 21:38:44 -0500 Subject: (unknown) onday, January 3, 2011 3:00 pm B-Calm device finding uses for autistic children By EMILY CHRISTENSEN, emily.christensen@... wcfcourier.com wcfcourier.com (IA) CEDAR FALLS, Iowa --- Mornings in the Hooper house are getting better. Hooper, an Ankeny mother, used to spend hours getting her son Jaxon, 7, to fall asleep at night. The late nights translated to early morning battles and long days. The nail tech brought up her problem during a salon appointment and was pleased to hear of a potential solution. Jo Aukes, an Ankeny special education teacher, had seen great success using an audio sedation system with her students, namely those on the autism spectrum or with attention deficit hyperactivity disorder. While using the device, designed by retired Cedar Falls dentist Ken Budke and built by Curtis Carroll, an Ankeny mechanical engineer, Aukes's students were able to concentrate on school work or simply enjoy activities, like eating lunch, with their classmates. Aukes offered to loan Hooper a set of the b-Calm headphones and soundtrack. Most nights, her son now falls asleep within 10 minutes of his head hitting the pillow. " It is amazing. I was absolutely skeptical. We've tried everything and you will try anything when you are fighting with a kid to get him to sleep for two hours, " said Hooper, whose son has ADHD. The handheld audio sedation device blends noise masking signals with live recording of natural environments. A similar device was first released in January 2008 for Budke's dental patients. He realized the device might have further reaching potential when an autistic patient found comfort in the chair and at home while wearing the headset. " My goal is not to find the cause or cure for autism, but to find a better quality of life for those with it, " said Budke, who also started a non-profit, Champions of Autism, to promote awareness. " We know this will not work on every child, but for those that it does help, it can be a blessing. " An area foundation recently contacted Budke and offered to pay for up to 50 units that could be donated to local families who might benefit from the headgear. Budke said the units are most likely to help those with noise sensory issues. " We want to give them these headsets with the hope of reuniting the child with the family, " Budke said, adding that many children with noise sensory sensitivities are unable to participate in family outings, like eating at a restaurant. Budke said if the units work at home he hopes parents also will try to get them included in their child's individualized education plan. Aukes does progress monitoring for her students who use the devices and has seen positive results when the headgear is used. " Anytime the students had the headphones on their comprehension was anywhere from 20 to 40 percent higher. It's big, " she said. Copyright 2011 wcfcourier.com. Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 Yup!!! My DH really thinks 's ready for a toddler bed. He feels that is unlikely to leave the bed and wander, since doesn't prefer walking into a dark room and can't turn on the hall light (too short and it's not climbable). Sigh. Sent from my iPhone > > This is good and also I like what she said...although we we certainly want cures we sure do need people to work on methods to improve the quality of life along the way till those cures are found!!!!!Annie > > To: > From: macookson@... > Date: Mon, 3 Jan 2011 21:38:44 -0500 > Subject: (unknown) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > onday, January 3, 2011 3:00 pm > > B-Calm device finding uses for autistic children > > By EMILY CHRISTENSEN, emily.christensen@... > > wcfcourier.com > > wcfcourier.com (IA) > > > > CEDAR FALLS, Iowa --- Mornings in the Hooper house are > > getting better. > > > > Hooper, an Ankeny mother, used to spend hours > > getting her son Jaxon, 7, to fall asleep at night. The late nights > > translated to early morning battles and long days. The nail tech > > brought up her problem during a salon appointment and was > > pleased to hear of a potential solution. > > > > Jo Aukes, an Ankeny special education teacher, had seen > > great success using an audio sedation system with her > > students, namely those on the autism spectrum or with > > attention deficit hyperactivity disorder. While using the device, > > designed by retired Cedar Falls dentist Ken Budke and built by > > Curtis Carroll, an Ankeny mechanical engineer, Aukes's > > students were able to concentrate on school work or simply > > enjoy activities, like eating lunch, with their classmates. > > > > Aukes offered to loan Hooper a set of the b-Calm headphones > > and soundtrack. Most nights, her son now falls asleep within > > 10 minutes of his head hitting the pillow. > > > > " It is amazing. I was absolutely skeptical. We've tried > > everything and you will try anything when you are fighting with > > a kid to get him to sleep for two hours, " said Hooper, whose > > son has ADHD. The handheld audio sedation device blends > > noise masking signals with live recording of natural > > environments. A similar device was first released in January > > 2008 for Budke's dental patients. He realized the device might > > have further reaching potential when an autistic patient found > > comfort in the chair and at home while wearing the headset. > > > > " My goal is not to find the cause or cure for autism, but to find > > a better quality of life for those with it, " said Budke, who also > > started a non-profit, Champions of Autism, to promote > > awareness. " We know this will not work on every child, but for > > those that it does help, it can be a blessing. " > > > > An area foundation recently contacted Budke and offered to > > pay for up to 50 units that could be donated to local families > > who might benefit from the headgear. Budke said the units are > > most likely to help those with noise sensory issues. > > > > " We want to give them these headsets with the hope of > > reuniting the child with the family, " Budke said, adding that > > many children with noise sensory sensitivities are unable to > > participate in family outings, like eating at a restaurant. > > > > Budke said if the units work at home he hopes parents also will > > try to get them included in their child's individualized education > > plan. Aukes does progress monitoring for her students who > > use the devices and has seen positive results when the > > headgear is used. > > > > " Anytime the students had the headphones on their > > comprehension was anywhere from 20 to 40 percent higher. > > It's big, " she said. > > > > Copyright 2011 wcfcourier.com. > > > > Sent from my iPhone > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 If I were in your shoes, I would pursue PANDAS or the like. To: From: drkathyp@... Date: Fri, 7 Jan 2011 18:23:16 -0800 Subject: (unknown) I have never responded to any emails prior. I do however read them.. I have been a chiropractor for 26 years... prior to i was and still am a clinical nutritionist. I have a practice which incorporates both nicely...My daughter, Drew, is 11 yo w/ Ds and autism. She was never vaccinated and did not become autistic until age 9. She spoke, and could read and write, none of which she currently has command over. With this said I have seen tragedies from vaccines as well as without.. I can say that diet plays a huge role in all aspects of her health... The most amazing was the specific carbohydrate diet which i found extremely limiting and time consuming but perservered.. I am convinced that genetics has an important role in the neurodevelopment of our children... do i think vaccines are the are the major factor in the 600% increase in autistic children? I think it is one of the many facets including environmental toxins, food preservatives and additives that our immature guts cannot process. I know that in Drews case, after a serious GI infection she changed in front of my eyes... I am still amazed how little the Drs. know about it all!!!! Quote Link to comment Share on other sites More sharing options...
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