- Re: Help - I am going to lose it!!!!!!!!!!!!!!

[Guest guest]

Hi Ali,

was on a pretty low dose of ativan (.13mg up to 4 x a day), but

I gave her one double dose before sending her to school in the

morning. Generally not something I would recommend, but I know a

little about this particular med. Her dose was comparable to an

adult's 1/2mg and they will give up to 2mg a day, so she got 1mg

worth once a day, with an an occasional second dose if she was

stressing out. I was very careful never to exceed the daily dose as

it can be pretty addictive. I always felt she could use more, but

that is why we searched out this specialist and pay through the nose

for his advice. We saw that she was immediately happier on the

Tenex, but we are still in the adjustment stage, it may have to be

increased, I'm just not sure yet.

I guess I got lucky, used the helmet before Meg's was old enough to

figure it out and it worked so well so fast she didn't have time to

outsmart me! Having a child like is humbling, I used to think

I was pretty smart but she manages, with her " low IQ " and all to

outsmart me way more than I am comfortable with! => I can't imagine

how the school hasn't figured out how smart she is! I'm quite sure

she does this to them too!

('s mom, 9, DS, ASD)

> >

> > I'm not sure if anyone has any suggestions but regardless I need

to

> vent especially to people that have some understanding of what I am

> talking about. My daughter Amy (4 yo, DS, ASD) is going to make me

lose

> it soon. Since she has been out of school (she was in preschool 3

> mornings a week), her head banging, hitting, pinching and hair

pulling

> (the later three are all to me and her siblings not hereself) have

been

> out of control. I feel like an abused mother with bruises all over

me. I

> cannot give her the one on one time she is used to as I also have 2

> younger children (3 & 1) but I have been trying my hardest. She

will not

> self play so when I do sit down and try and engage her in an

activity

> she is constantly hitting and pinching me. Then, if I am not giving

her

> the attention she needs then she is banging her head on the wall or

the

> floor. It is driving me nuts. I am trying to be patient and

> understanding with her but I am lacking sleep right now too and with

> this

> > heat I really have no patience!! Then last night she was yawning

and

> banging her head at 6:30 so I put her to bed, she continued to get

out

> of bed and bang her head on the door until I came upstairs. I would

> bring her down and she would keep pinching me and banging her head

so

> then I would take her back upstairs. This continued on until 9:00

when

> she finally fell asleep. Then at 1:30 am she started banging her

head

> again. She did this for an hour before she settled back down again.

This

> is very unlike her. She is usually really good at going to sleep and

> then staying asleep (although she does have possible sleep

apnea??). I

> have read some posting that say their children on are risperidine

(not

> sure of spelling sorry) but she can not take this as she already

tried

> it and had seizures while on it. Are there any other meds that

anyone

> has had success with for reducing agression (without making them a

> zombie)?

> >

> > Anyway, I just needed to vent. Her agression is really starting to

> bother me and I don't know how I am going to do a whole summer of

this.

> She is at the respite house today here in Stratford and has a

worker for

> 10 hours a week but that doesn't seem to be enough. I am having a

hard

> time finding someone to help me who is able to feed her (she has a

> feeding tube) and my in-laws are useless as far as helping me

goes!!!

> >

> > Hope everyone else is having a better summer then me!!!!

> >

> > Ali

> >

> >

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