Adult hood is daunting

[Guest guest]

I know how much the waivers that Elie has are worth. What I am afraid to

hear is what the bookkeeper is assessing costs to be. She has claimed that

it costs $50/day (one example) to provide personal supports and transport

for my son. Her figures are not correct, but even if they were, his

personal support waiver is for $128/day at 290 days in the year. That comes

to about $40,000. I want the money spent as his ISP is written. She wants

it spent on direct service in the home (thus cutting transportation down) .

We don't want services ONLY in the home as he needs to be out in the

communty. As you can see from this VERY BRIEF run down, there will be war

on Tuesday morning. MOM and DAD and advocate against money grubbing,

profiteering bookkkeeper. Let us hope that my support coordinator and her

supervisor (both will be there) can A. keep me smiling and pleasant B. Help

her see the lite!!! (preferably before I draw blood.)

>

> Hi Sara,

> I am not exactly certain what you were referring to regarding the financial

> calculations that you needed to prove. My thinking is that all nonprofits

> must file financial reports to the state that would be open to the public

> under FOI. Georgia may have some of this info online. I do not think you

> will have this information before Monday but it may be someplace to get your

> questions answered if you run into difficulty.You also have the right to ask

> about Elie's cost of services, when, where etc. Good Luck! You will be in my

> thoughts. My state's DS Congress has recently started a group directly

> related to transition services from school to working adults. I am just

> getting my feet wet in this area, oh joy.

> Charlyne

> Mom to Zeb 15

>

> Sara Cohen <pastmidvale@... <pastmidvale%40gmail.com>> wrote: Oh

> Charlyne: Wit kissed with a sweet sharp tongue. Love it. And perfect

> timing.

>

> I am going to an ISP meeting (next statge after IEP). I have been informed

> by the underground spy ring that the new financial people at my son's

> agency

> are planning to gut his services - even though I have the waiver to pay for

> them!!! I will practice with my husband the pleasant smile and the sharp

> knife. Been searching for ammo for proving that the financial calculations

> being made are not right. So far I can prove part but not all. But it is

> only Friday nite. And we are not even talking about goals and objectives -

> we are talking flat about dollars. ARGGGGGGGGG

>

> On 5/16/08, charlyne olko

<charlyne1121@...<charlyne1121%40sbcglobal.net>>

> wrote:

> >

> > Dear Holly & Group,

> > Be careful what you wish for! There are times that ignorance is bliss. I

> > spent the last 13 yrs. going from training workshops to seminars learning

> > everything possible to become a good advocate for my child and eventually

> > others, mostly parents with disabilities themselves. I became smart

> enough

> > to pick up on every false excuse, procedural violation and undue reasons

> for

> > denials of services, wronged placements etc. It taken over my life and

> makes

> > my blood boil. Many times I wish to be that naive Mom back 13 yrs ago. I

> > haven't posted much only because I am in the middle of special ed issues

> > myself, due process, mediation, manifestation determination and a

> multitude

> > of state complaints, all in that order. I have a guest room dedicated to

> > well over 4000 documents and growing not included the students I advocate

> > for. I live in a district where retribution runs high. I believe I am one

> of

> > the only parents to not leave home without my sped attorney. I rarely

> post

> > IEP issues for

> > fear of frightening parents. School districts have access to the best and

> > brightest group of sped attorneys your money can't buy but your tax

> dollar

> > does. The national board of educators sponsors yearly LPR conferences

> > featuring the brightest sped attorneys in the country that teach your

> > superintendents, sped directors and board attorneys legal ways to deny

> > services. Parents and sped attorneys representing parents are not allowed

> to

> > attend. I can't tell you how much I would love to get into one of these

> > conferences! The sped ed world is not a level playing field. We all need

> to

> > be reminded that negotiation is an art practiced with wit kissed with a

> > sweet sharp tongue. Follow your gut. If it doesn't feel right most times

> it

> > isn't. Wondering about placement but afraid to ask? Tease out the answers

> > with questions. What will the day look like? How many students in the

> > classroom? Be smart but not too smart. Wishing you all successful IEP

> > meetings this season.

> > Charlyne

> > Mom to Zeb 15

> >

> > Holly Giglio <hgiglio@... <hgiglio%40earthlink.net> <hgiglio%

> 40earthlink.net>> wrote: This

> > sounds like a case for Charlene. I know she is the one I think about when

> I

> > start questioning what the school can and can't do. I hope one day I have

> > her knowledge about the law.

> > Holly

> >

> >

> >

> >