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Visiting Ian

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Hi everyone,

I went out to visit Ian yesterday. He's having something of a difficult

time with the transition from one 1:1 aide (who left for another job but who

will continue to come back on a part-time basis) to another (who Ian

actually requested, and is a really nice guy -- and a GUY, which has always

worked well for Ian as he's gotten older). He's had a few behavioral

episodes -- collapsing himself on the bathroom floor, hiding under his bed,

refusing to go to school. I wasn't planning to go out yesterday as we are

bringing him home next weekend for a family wedding and then we'll be at

Parents' Weekend the weekend after that, but he seemed to need to see me.

And we had a good time. Lunch at Friendly's, which is a favorite haunt of

ours and where they treat him SO well. Then shopping at WalMart, FYE, and

Borders, our usuals, and then over to Fly Creek Cider Mill, another usual.

It's the same routine each time, and to deviate from it is to invite the

pouts from Ian.

I am concerned about him as he appears to be regressing in certain areas.

For instance, he's having toilet accidents -- some, I think, on purpose as

part of his behavioral episodes ( " oh yeah? well, take that! " ), but

yesterday's I do believe was accidental. I haven't had to clean him up from

one of these in a long, long time. We had to stop in a JC Penney to buy new

underwear and camp out in the ladies' room for a while to clean up (he was

horrified at having to be in the ladies' room, but I couldn't very well go

with him into the men's room!).

Our plan is to have him graduate in June of 2010 and then move him back

closer to home, to a group home and a supervised job. It's going to be a

nasty transition for him. Poor guy is screwed either way -- he stays there,

he misses his family; he comes back here, he misses his friends there.

CK

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

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  • 2 months later...

Ck, what a wonderful turn out despite Ian being under the weather,

such bondness. Hope Ian is feeling well after receiving some

TLC.

Irma,20,DS/ASD

>

> Hi everyone,

>

> I went to see Ian yesterday. While I was driving out, I got a phone

call

> from one of his aides, telling me he was sick and did I want to

cancel the

> visit? Now, what kind of mother would I be if I did that? He was

expecting

> me, and he was sick! Of course I wanted to continue!

>

> So instead of going on the shopping trip we usually do when I visit, we

> stayed in his room, with him lying down in bed, and we watched

Lassie Come

> Home, the old movie with Roddy MacDowell and . It was a

> lovely movie -- real hokey -- and we both enjoyed it. I had never

seen it

> before.

>

> I stayed till dinnertime and was about to leave when the house

managed said,

> Ian set the table for you to stay and eat with us. So I stayed.

How could

> I not?

>

> Next time I see him will be to retrieve him for Thanksgiving.

>

> Meanwhile, I got news on Friday that I will be needing knee surgery

sometime

> soon. I have to see an orthopedic surgeon first, and I hope that

will be

> soon so I can get this all behind me. It's terribly inconvenient.

> CK

> Mom to Ian (2/89),

> (9/90),

> and Rose (6/94)

>

>

>

>

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