Expanded Medical Alert List

[Guest guest]

Auggie,

Go to http://www.charcot-marie-tooth.org/med_alert.php at the top it is titled

Medical Alert

then a brief paragraph is written:

The medications listed below are potentially toxic to CMT patients. Vincristine

has been proven hazardous and should be avoided by all CMT patients, including

those with no symptoms. The remainder of the medications listed below present

varying degrees of potential risk for worsening CMT neuropathy. Before taking

any medication or changing medication, all CMT patients should make sure the

treating physician is fully aware of their medical condition.

Right after that paragraph, you will see

Click here to view expanded Medical Alert table.

The " Click here " is highlighted in blue. Click on that to view the expanded

medical alert list.

[Guest guest]

Still nothing.

I've gone to the link you provided below, using both Safari, and Firefox, but

there is no blue link following the first paragraph you noted below ... no link

period. None. Zip.

My two browsers are up-to-date, so any suggestions?

>

> Auggie,

>

> Go to http://www.charcot-marie-tooth.org/med_alert.php at the top it is

titled

>

>

> Medical Alert

>

>

> then a brief paragraph is written:

>

>

> The medications listed below are potentially toxic to CMT patients.

Vincristine has been proven hazardous and should be avoided by all CMT patients,

including those with no symptoms. The remainder of the medications listed below

present varying degrees of potential risk for worsening CMT neuropathy. Before

taking any medication or changing medication, all CMT patients should make sure

the treating physician is fully aware of their medical condition.

>

>

> Right after that paragraph, you will see

>

>

> Click here to view expanded Medical Alert table.

>

>

> The " Click here " is highlighted in blue. Click on that to view the expanded

medical alert list.

>

[Guest guest]

According to the site, you must be logged in to view the expanded medical

information. That requires membership.

The only " Click here " I see is the paragraph " Neurotoxic Medications and

Worsening of Neuropathy "

> >

> > Auggie,

> >

> > Go to http://www.charcot-marie-tooth.org/med_alert.php at the top it is

titled

> >

> >

> > Medical Alert

> >

> >

> > then a brief paragraph is written:

> >

> >

> > The medications listed below are potentially toxic to CMT patients.

Vincristine has been proven hazardous and should be avoided by all CMT patients,

including those with no symptoms. The remainder of the medications listed below

present varying degrees of potential risk for worsening CMT neuropathy. Before

taking any medication or changing medication, all CMT patients should make sure

the treating physician is fully aware of their medical condition.

> >

> >

> > Right after that paragraph, you will see

> >

> >

> > Click here to view expanded Medical Alert table.

> >

> >

> > The " Click here " is highlighted in blue. Click on that to view the expanded

medical alert list.

> >

>

[Guest guest]

Sorry -- once logged in I do see that " Click Here " .

>

>

> >

> > Auggie,

> >

> > Go to http://www.charcot-marie-tooth.org/med_alert.php at the top it is

titled

> >

> >

> > Medical Alert

> >

> >

> > then a brief paragraph is written:

> >

> >

> > The medications listed below are potentially toxic to CMT patients.

Vincristine has been proven hazardous and should be avoided by all CMT patients,

including those with no symptoms. The remainder of the medications listed below

present varying degrees of potential risk for worsening CMT neuropathy. Before

taking any medication or changing medication, all CMT patients should make sure

the treating physician is fully aware of their medical condition.

> >

> >

> > Right after that paragraph, you will see

> >

> >

> > Click here to view expanded Medical Alert table.

> >

> >

> > The " Click here " is highlighted in blue. Click on that to view the expanded

medical alert list.

> >

>

[Guest guest]

Augold & Gretchen,

FYI, when I click on Gretchen's link (in Firefox) it takes me directly to the

list itself. There is no blue link following the 1st paragraph, the whole list

is right there.

For kicks and giggles, I went through Google to the CMTA website. On the left

sidebar of the homepage, about six inches down, there is a red box with the

words Medical Alert. Just beneath that the words Click Here are in bold to view

the list. I clicked on it and went to the same place Gretchen's link goes.

There is one med under High Risk, 20 under Moderate Risk, 23 under

Uncertain/Minor Risk, and 16 under Negligible/Doubtful Risk.

Augold, if there is nothing but a header when you go to that link, perhaps try

Internet Explorer. Most pages these days are compatible with Firefox, but

sometimes they really just want IE.

> >

> > Auggie,

> >

> > Go to http://www.charcot-marie-tooth.org/med_alert.php at the top it is

titled

> >

> >

> > Medical Alert

> >

> >

> > then a brief paragraph is written:

> >

> >

> > The medications listed below are potentially toxic to CMT patients.

Vincristine has been proven hazardous and should be avoided by all CMT patients,

including those with no symptoms. The remainder of the medications listed below

present varying degrees of potential risk for worsening CMT neuropathy. Before

taking any medication or changing medication, all CMT patients should make sure

the treating physician is fully aware of their medical condition.

> >

> >

> > Right after that paragraph, you will see

> >

> >

> > Click here to view expanded Medical Alert table.

> >

> >

> > The " Click here " is highlighted in blue. Click on that to view the expanded

medical alert list.

> >

>

[Guest guest]

I think that Adiamycin should be moved from the minor or uncertain risk group to

a much higher risk group. I took adriamycin/cytoxin chemotherapy for breast

cancer and it severely exacerbated my CMT and neuropathy including the open

wound I had on my foot. I also had neutropenia which resulted in a two-month

hospital and rehab stay and I had to learn to walk again. I still have major

pain in my legs and back resulting from the neutropenia. About a year ago, I

learned that I have congestive heart failure due to damage done to my heart by

the adiamycin. It is a powerful and very dangerous drug!

________________________________

From: gfijig <gfijig@...>

Sent: Mon, June 28, 2010 2:59:55 PM

Subject: Expanded Medical Alert List

Auggie,

Go to http://www.charcot-marie-tooth.org/med_alert.php at the top it is titled

Medical Alert

then a brief paragraph is written:

The medications listed below are potentially toxic to CMT patients. Vincristine

has been proven hazardous and should be avoided by all CMT patients, including

those with no symptoms. The remainder of the medications listed below present

varying degrees of potential risk for worsening CMT neuropathy. Before taking

any medication or changing medication, all CMT patients should make sure the

treating physician is fully aware of their medical condition.

Right after that paragraph, you will see

Click here to view expanded Medical Alert table.

The " Click here " is highlighted in blue. Click on that to view the expanded

medical alert list.