Re: Orthotics in London

[Guest guest]

Hi Joana,

I think there is so much value to gain from going to a hospital such as the

National. Yes, they are a teaching hospital and as such there are students that

can observe. However as a patient if that makes you uncomfortable you can ask

the students to leave.

Me? I never ask the students to leave. Each interaction they have with someone

with CMT helps them to learn, to spot symptoms, and hopefully to help someone

else in the future.

If you have not been to a CMT specific doctor for more than a year, you will

need to go to your GP and get re-referred. The active files I believe only last

a year now.

With regard to shoes, I wear New Balance shoes for walking / sports, and I tend

to prefer to wear Birkenstocks for walking around casually in the summer, and

Ugg boots for casual wear in the winter. I have difficulty with buying shoes

due to my high arches, but as I do not wear correction except for with athletic

use, I can find shoes in shops such as & Bromley.

Good luck with your choices and decisions,

Donna in London

[Guest guest]

Hi Donna

Thank you so much again

I 've seing your site and I would like to congralutate you Donna lol

Remembered sent you an email So sweet Donna ...well done you are a great

lesson of life for all of us!!!

Now My internet has been really bad recently, dropping at all times etc but I

will try to catch up with so many messages to see.

Regarding the shoes, we have different problems because I could never use any

sandals like this ones Birkenstocks for walking. I don't hold anything unless

has the strings to hold my feet

Here in UK I always find hard to get shoes because my size, I am 33 and here

ladies starts at 36 more or less but soon I will go to Brazil please God hoping

to get something good out there and insoles too ... Before I used to have a

wonderful shoes from Brasil handmade etc but my feet changed a lot in the last

few years

Donna, I just would like to say that before ...when I was much younger... I coud

walk, dancing and enjoy life much more than now, but CMT got me just after the

menopause, that is the problem ;(

Once more thank you so much Donna

All the best wishes always and good luck with you running lol

Stay beautiful

Hugs

Joana

[Guest guest]

Hi

thanks for these posts. I know there have been several posts on the SAFOs

(silicon ankle foot orthotic) made by Dorset Orthotics in England. I have mild

foot drop and am very active/walking, etc -- CMT1A -- and currently use the much

less expensive Alimed Freedom Soft Food Drop Braces (two alternating pairs last

for about 8 months) but with an upcoming visit to London close by, I was

thinking of making an appointment there to consider them.

Any thoughts or contacts?

thanks again for all the posts

Sam

[Guest guest]

Hi again,

Well, looking at this I kind of brace support...

I can tell you right now (In MY Case) it would be impossible walking with this

thing.

Just to give you some idea if I put a very tight socks kind of elastic one or

bandage around my foot I would not be able to move one step ahead ;(

That is the way I have my feet...kind of loose and weak with double joints

too...

All shoes or sandals can't be hard or pressing my feet at all!!!!

So, we can see how different we are from each other ...

Nowadays I can not use boots either because press the top of my feet!

Thank you again!

Have a great day and good luck my friend

Hugs

Joana

>

> Hi

> thanks for these posts. I know there have been several posts on the SAFOs

(silicon ankle foot orthotic) made by Dorset Orthotics in England. I have mild

foot drop and am very active/walking, etc -- CMT1A -- and currently use the much

less expensive Alimed Freedom Soft Food Drop Braces (two alternating pairs last

for about 8 months) but with an upcoming visit to London close by, I was

thinking of making an appointment there to consider them.

>

> Any thoughts or contacts?

> thanks again for all the posts

>

> Sam

>