's surgery

[Guest guest]

We've been out of touch because we spent some time in upstate NY, and then we

were getting ready for 's eye muscle surgery.

Well did have her surgery last Wednesday. The rest of the day was pretty

rough, because keep throwing up. The worst was when she threw up her

Zithromax. After that we switched to the eye drops that they had given us as

backup. We hated the thought of putting drops in 3 times a day. However, we

were afraid she'd fight getting the Zithromax on Thursday - especially after

having it come back up the day before!

We saw Dr. Avallone Friday morning. 's eye lids were really swollen when

she woke up Friday, and she seemed to be feeling worse then on Thursday. He was

afraid she was getting an infection, so we switched back to the Zithromax when

we got home. This morning she took the last of the 4 remaining doses, and seems

to be doing good. I called the doctor, and he said to not worry about the 5th

dose, since she's doing good. Her eyes look pretty good - expect for the red

of course. It hard getting used to her eyes looking so awfully red.

She finally started school this afternoon, and she must be doing good, because

they haven't called to say otherwise!

[Guest guest]

Hi Jayne,

I've been away working and missed that was having this surgery. My

husband went through this surgery years ago at age 11. Good to hear that all

went well. It certainly didn't sound too pleasant. Hopefully the recuperation

will be quick.

Charlyne

Subject: 's surgery

To:

Date: Friday, October 3, 2008, 9:17 PM

Hello everyone,

Thank you for all the wonderful thoughts and prayers yesterday for 's

surgery.  They worked!   did really well yesterday.  EVERYONE was so

wonderful at the hospital.  No offense to those that work in the health care

field but I'm sure most of you can relate to how there is usually at least ONE

really mean, cranky, unfriendly nurse in the bunch when you are IN the

hospital.  Not this time, everyone was wonderful.

 

The worst part for me was when I went back with him to the OR.  We have never

been asked if we wanted to go back before it was always him being wheeled off

and me left with my tears welled up. 

 

They asked if he wanted to walk or ride in the bed, he wanted to walk.  He

walked back into the surgery ward and started to shake more and more as we got

closer to the OR.  Then when it was time to go into the OR and cross that line

INTO the room, he didn't want to at all.  " No thank you! "   (my always polite

son!)  After much coaxing and getting nowhere, I finally sat in a chair and got

him to sit on my lap.  We wheeled into the OR and we basically had to hold him

while they held the mask on him.  He took forever it seemed to fall asleep.  It

was awful for me, he was signing Daddy and asking for Daddy and . Ugh,

breaking my heart.  Then we put him up on the table and after a few minutes it

was time for me to leave.  He took a good amount of time to get to the next

level of being under.  He fought it off pretty long - hmmm, break my heart some

more why don't you little boy!  Parenting is hard work and so heartbreaking at

times.

 

He came out of surgery about 2 hours later and did so well with the wake up. 

Usually our worst part, the wake up.  He's usually very restless, thrashing

everywhere, crying.  Not this time, he just slept and then woke up rather

slowly.  It was really remarkable to me - he woke up in the middle of being

still really out of it and signed " potty " .  I said to the nurse, " He's signing

that he has to go to the bathroom??? "   I didn't think he really had to go but

she got the bed " pitcher " and by the time she came back he was back out.  I

think he felt " something " down there and must have thought, " I have to go to the

bathroom. "   I was so proud!  LOL!

 

He continued to do well once we got home and got up this morning doing really

well after meds.   In fact, I think he did a little too much dancing to Jack's

Big Music Show - he had his meds and was feeling good and I think he overdid

it.  He spent a good chunk of time under a blanket on the floor this afternoon,

he's got to be sore.  Overall he's doing great though.

 

The surgery went the best route possible, everything we had hoped for.   The

doctor was able to get in there and pull both testicles down.  My poor boy has 5

incisions though!  One through the belly button, two through his groin, and two

in his scrotum.  OUCH to any man on earth!  He's such a trooper.  His poor

scrotum is really bruising up though now, it's got to be sooooo tender.

 

The doctor did say that the two testicles were very different, one was much

smaller.  He admitted his ignorance in knowing if men with Ds are infertile.  I

told him that most are but a few have fathered children.  He thought that was

the case as the testicles just don't look like they would be able to produce the

sperm needed.  But, they are down none-the-less, it only took one surgery, and

it's over.  I'll take that!

 

He's been in pj's all day and I have given Motrin and Tylenol with codeine.  I

think I'll be able to go to just regular Tylenol and Motrin now.  The worst is

having to put the Neosporin on his scrotum and then stick some gauze on it 4 x 

day!  Poor guy shakes when I get near them. 

 

Can I just say, I'm glad I don't own those things!

 

So overall, a successful surgery and it went as well as one could hope given the

situation.  I only cried a short while at the early stage of his surgery but I

pulled it together!

 

thanks again for the prayers,

Jayne

 

 

 

check out the view from my shoes at

www.wickedbusymomto 3.wordpress. com

[Guest guest]

Hi Jayne,

I must agree what a trooper indeed. What an update on , prayers

that he recovers well.

Hugs!

Irma,20,DS/ASD