maddie off meds?

[Guest guest]

Donna,

I am just wondering how you got Maddie off all of her meds and what brought you

to that idea? How is she doing without anything? Is she sleeping at night? Any

behaviors? I mean all kids have behaviors, but you know what I mean? I am

contemplating trying this with ash again....

 

leah

Subject: Re: Re: Dr. Capone

To:

Date: Wednesday, September 24, 2008, 6:34 PM

In a message dated 9/24/2008 6:30:16 P.M. Eastern Daylight Time,

reginasarno@ yahoo.com writes:

We are from Pennsylvania, Chester County. So cool you also go down

to see Capone. He is the best and helpful! Sigh...relief. to

Sarno

we have Aetna (although I think we had Keystone at the time) and they

said that because we live in Philly where we already have a DS clinic at CHOP,

KKI was not necessary. I haven't tried in years, since we only go once

a year. And now, not at all.....G-D forbid any further Maddie crises..then

it'll be GEORGE, HERE WE COME.

Donna

************ **Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpo p.com/?NCID= emlcntuswall0000 0001)

[Guest guest]

In a message dated 9/25/2008 10:13:00 A.M. Eastern Daylight Time,

leahbbaker@... writes:

Donna,

I am just wondering how you got Maddie off all of her meds and what brought

you to that idea? How is she doing without anything? Is she sleeping at

night? Any behaviors? I mean all kids have behaviors, but you know what I mean?

I

am contemplating trying this with ash again....

leah

Hey Leah,

First off, good to see you *back on* .........We got Maddie off meds

accidentally. This past summer we went to Florida and I had Jen (her sitter

who used to be her aide...she watches Maddie for us sometimes) here for Maddie.

I had a LOT on my mind, and forgot to fill her abilify.....had asked

if I could have my ped do it since my life was too nuts to cram in a

Baltimore trip, and so was in the process of getting my ped to contact

....ped was on vacation, and I left in the middle of all this, forgetting

to get

some refills to hold us over. So I'm IN Florida, and Jen runs out....so I

said lets see what happens. Maddie did fine. So we come home, and notice

her behaviors seemed better, and her appetite decreased. I think that now

that she's done with puberty, she doesn't need it. And while you can't

leave Maddie alone for 5 minutes (well, less than that) without paying a price

(she's so mischevious and fast), we couldn't while she was on meds either.

Her behaviors spiked again last month, but I attributed it to our dog dying

(she adored Muggsie) and she suddenly was VERY bored without him. The

last couple weeks, she's coming back to *normal*. We just feel like as long

as

her behaviors aren't out of control, and aren't inhibiting her ability to

learn and causing her pain (the reason we started when she was 9 was because

she was SO uncomfortable in her own skin...I called it literally " jumping out

of her skin " ...it was a horrible time), we would try to keep her off them.

So far, so good. I have NO problem with meds, and will put her back on if

we need to.....I think of risperdal as saving her sanity when we

started....but if she's okay without them, why not? Her sleep hasn't changed

at

all...but we do still give her a nightly melatonin. As mischevious as she

is

while awake, we are very lucky in that she does go to bed eagerly....even if

she's not sleeping, she likes laying in her bed with her giant stuffed dogs (or

sneaking out and trying on ALL her clothes..and I mean ALL...but hey, I

figure it gives me peace and I can clean up in the morning....and it makes for

LOTS of humor in the Duffey household...there's many a morning we go in to wake

her and find her sound asleep with THREE bathing suits, various pj's and

socks and shoes on.....LOLOL Oh to be a fly on the wall)

Donna

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

If you guys remember, when Tori got sick in March with Strep, we couldn't get

her to take the Anitbiotics and had to fight with her-we would give that first

before her others. Well, we got tired of fighting finally, and because she

hated the antibiotics, and refused to take the 2nd and 3rd meds we weren't able

to get them into her. Well, after a week, she seemed " different " . She, still

to this day, only takes her Risperdal, her Synthroid and her Prevacid. No more

Depakote, no more Prozac. When her bad behaviors start to escalate, we start to

rule out causes (thryoid, sick, Autism). Fortunately, we have lucked out so far

and all have been more health related than Autism. We'll stay this track for as

long as we can, knowing that we may have to go back to the others in the future.

Liz

Re: maddie off meds?

In a message dated 9/25/2008 10:13:00 A.M. Eastern Daylight Time,

leahbbaker@... writes:

Donna,

I am just wondering how you got Maddie off all of her meds and what brought

you to that idea? How is she doing without anything? Is she sleeping at

night? Any behaviors? I mean all kids have behaviors, but you know what I

mean? I

am contemplating trying this with ash again....

leah

Hey Leah,

First off, good to see you *back on* .........We got Maddie off meds

accidentally. This past summer we went to Florida and I had Jen (her sitter

who used to be her aide...she watches Maddie for us sometimes) here for

Maddie.

I had a LOT on my mind, and forgot to fill her abilify.....had asked

if I could have my ped do it since my life was too nuts to cram in a

Baltimore trip, and so was in the process of getting my ped to contact

....ped was on vacation, and I left in the middle of all this,

forgetting to get

some refills to hold us over. So I'm IN Florida, and Jen runs out....so I

said lets see what happens. Maddie did fine. So we come home, and notice

her behaviors seemed better, and her appetite decreased. I think that now

that she's done with puberty, she doesn't need it. And while you can't

leave Maddie alone for 5 minutes (well, less than that) without paying a price

(she's so mischevious and fast), we couldn't while she was on meds either.

Her behaviors spiked again last month, but I attributed it to our dog dying

(she adored Muggsie) and she suddenly was VERY bored without him. The

last couple weeks, she's coming back to *normal*. We just feel like as long as

her behaviors aren't out of control, and aren't inhibiting her ability to

learn and causing her pain (the reason we started when she was 9 was because

she was SO uncomfortable in her own skin...I called it literally " jumping out

of her skin " ...it was a horrible time), we would try to keep her off them.

So far, so good. I have NO problem with meds, and will put her back on if

we need to.....I think of risperdal as saving her sanity when we

started....but if she's okay without them, why not? Her sleep hasn't changed

at

all...but we do still give her a nightly melatonin. As mischevious as she is

while awake, we are very lucky in that she does go to bed eagerly....even if

she's not sleeping, she likes laying in her bed with her giant stuffed dogs

(or

sneaking out and trying on ALL her clothes..and I mean ALL...but hey, I

figure it gives me peace and I can clean up in the morning....and it makes for

LOTS of humor in the Duffey household...there's many a morning we go in to

wake

her and find her sound asleep with THREE bathing suits, various pj's and

socks and shoes on.....LOLOL Oh to be a fly on the wall)

Donna

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)