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Re: Shadoe s, radio and TV personality to speak out for CMT Awareness!!

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,

With your background in Journalism, I'm sure you could direct a positive image

to former contacts or new contacts. See my original post on this topic. Just a

few clicks to help with national awareness for CMT, no money involved, just a

good way to expand our work for the goal of a world without CMT.

Gretchen

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gretchen,

i don't mean to sound ignorant, but i am not " affiliated " with any newspapers or

magazines. Can you give me some ideas of what i can do to raise awareness of

this. I am meeting with a friend of mind this weekend who is part of a tv

station that broadcasts the telethon. Would this be something that could be of

interest?

Help me brainstorm!

Jackie

Shadoe s, radio and TV personality to speak out for CMT

Awareness!!

 

Hello and Happy August 1st to all. I have some *** big news *** and a very easy

task for you!

First the *** big news!*** As you know the first National Charcot-Marie-Tooth

neuromuscular disease Awareness Week is September 19 – 26, 2010 with events

happening nationwide. This genetically inherited disorder now has Shadoe

s, well known radio and TV personality, working to increase public

recognition of CMT.

(to find out more about Shadoe visit http://www.shadoe.com and

http://en.wikipedia.org/wiki/Shadoe_s )

Now *** your task:*** Please copy and paste the letter below and send to your

local newspaper or magazines you are affiliated with. The Awareness Poster is in

our Files section (look for Awareness Poster - Files are alphabetical) Download

the poster to your computer and be sure to attach with this letter.

The poster was created by Andy Kocher of Andy Kocher Designs. Please give him

credit where applicable. (such as on FB,Blogs, others)

Do you want treatment for CMT? Do you want complete arrestment of CMT? Then

please do this simple task to help out. You may be so encouraged by the poster

you want to tell your friends and fans at FB and other sites.

Remember, Greater Awareness = Greater Funding = Greater Treatment + Greater

Total Arrestment potentials!

Gretchen

******************************************************************

Dear Editor,

The first National Charcot-Marie-Tooth neuromuscular disease Awareness Week is

September 19 – 26, 2010 with events happening nationwide. This genetically

inherited disorder now has Shadoe s, well known radio and TV personality,

working to increase public recognition of CMT. In addition to special events

across the country, the CMT Association will have daily news on their website

http://www.cmtausa.org, ranging from a podcast, featuring renowned medical

professionals, to advocacy and education.

Complete Media Packets will be available soon with more information. In the

meantime, please accept this complimentary electronic poster as our gift. We

would be pleased if you would use it in an upcoming (newspaper/magazine issue)

and highlight it on your webpage, blog or FB page.

Sincerely,

(your name)

(your address)

(your phone)

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Guest guest

Jackie,

I would say when you meet with your TV friend, show a copy of the poster,

explain the 1st ever National CMT week is Sept. 19-26. But I would keep this

seperate from the Telethon. While the Telethon does include CMT as a

neuromuscular disese, with the CMTA heading up a National Week for CMT, this is

seperating CMT from MDA and bringing CMT to the forefront.

You can ask your friend to have a special 'health news' segement one evening,

possibly interviewing you, you can ask your friend to have the station make a

PSA to air using the poster. You can get brochures to all the stations staff and

stress how important National Awareness is. Perhaps the TV station staff may

rally around the week and create an event of their own for it. CMT Awareness

Week is two full weeks AFTER the telethon. By that people have forgotten about

it and it's a good time for 'nothing but CMT'.

Gretchen

>

>

> gretchen,

>

>

>

> i don't mean to sound ignorant, but i am not " affiliated " with any newspapers

or magazines. Can you give me some ideas of what i can do to raise awareness of

this. I am meeting with a friend of mind this weekend who is part of a tv

station that broadcasts the telethon. Would this be something that could be of

interest?

>

> Help me brainstorm!

>

>

>

> Jackie

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