Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 My 27 year old son, who has CMT, has had a challenge with his left foot for about 5 years but his right leg and foot were strong. Yesterday he tripped on his left foot causing him to land heavily on his right foot which twisted a little. He felt a pins and needles sensation(tingling) in his foot but no pain. He then found he could not move his foot and had instant foot drop. Obviously he was very concerned but thought maybe he had pinched a nerve and the feeling and movement would return.It hasn't. There is still no pain or swelling and he saw our family Doctor today who basically said it was due to CMT and as we are all used to hearing " nothing could be done " and he should be fitted with an AFO. My son is devastated! I know with my CMT symptoms they have progressed gradually, I have foot drop but it has developed over the past 10 years. Is this possible to develop instant foot drop on a strong healthy leg due to injury? Any information or sugggestions would be greatly appreciated. We are located in Ontario. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Did your " family doc " do Xrays? It seems that an Orthopedist is more knowledgeable in this. To blame this on CMT is uneducated, dismissive thinking. Your son may have a tendon or other type on injury, that if seen, quickly, can be healed. Don't waste time with Family Docs when something like this happens. Very few, and I mean very few know much. Go to an orthopedist. If you don't have one find one, or go to the ER and ask who the ortho on call is. Chances are that orthopedist won't know much about CMT, but is better treated by a professional with a background in orthopedics or sports rehabilitation. And whoa on the AFOs until you have seen both the ortho AND the neurologist. Proper care of his foot (rest and ice, maybe Tylenol or something,) may do wonders. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 i would make an appointment with a neurosurgeon. i am no doctor but it sounds like he has been dealing with a pinched nerve in his left leg for years and the fall may have triggered the disc to move a fraction and pinch off the nerve entirely. i have cmt too and have severe spinal stenosis and my right leg is much weaker and its due to a nerve being compressed. Instant foot drop caused by injury My 27 year old son, who has CMT, has had a challenge with his left foot for about 5 years but his right leg and foot were strong. Yesterday he tripped on his left foot causing him to land heavily on his right foot which twisted a little. He felt a pins and needles sensation(tingling) in his foot but no pain. He then found he could not move his foot and had instant foot drop. Obviously he was very concerned but thought maybe he had pinched a nerve and the feeling and movement would return.It hasn't. There is still no pain or swelling and he saw our family Doctor today who basically said it was due to CMT and as we are all used to hearing " nothing could be done " and he should be fitted with an AFO. My son is devastated! I know with my CMT symptoms they have progressed gradually, I have foot drop but it has developed over the past 10 years. Is this possible to develop instant foot drop on a strong healthy leg due to injury? Any information or sugggestions would be greatly a ppreciated. We are located in Ontario. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Tell him not to give up yet. It might just take sometime for the ligaments to return to normal. Strange things happen with CMT for better and for worse. I recommend an ace bandage In a message dated 8/20/2010 8:55:04 A.M. Pacific Daylight Time, kotack@... writes: My 27 year old son, who has CMT, has had a challenge with his left foot for about 5 years but his right leg and foot were strong. Yesterday he tripped on his left foot causing him to land heavily on his right foot which twisted a little. He felt a pins and needles sensation(tingling) in his foot but no pain. He then found he could not move his foot and had instant foot drop. Obviously he was very concerned but thought maybe he had pinched a nerve and the feeling and movement would return.It hasn't. There is still no pain or swelling and he saw our family Doctor today who basically said it was due to CMT and as we are all used to hearing " nothing could be done " and he should be fitted with an AFO. My son is devastated! I know with my CMT symptoms they have progressed gradually, I have foot drop but it has developed over the past 10 years. Is this possible to develop instant foot drop on a strong healthy leg due to injury? Any information or sugggestions would be greatly appreciated. We are located in Ontario. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I had another thought. Maybe he pinched something in his back when he fell and that cause the drop foot. A chiropractor could help with that. I am holding out hope that this is fixable. In a message dated 8/20/2010 8:55:04 A.M. Pacific Daylight Time, kotack@... writes: My 27 year old son, who has CMT, has had a challenge with his left foot for about 5 years but his right leg and foot were strong. Yesterday he tripped on his left foot causing him to land heavily on his right foot which twisted a little. He felt a pins and needles sensation(tingling) in his foot but no pain. He then found he could not move his foot and had instant foot drop. Obviously he was very concerned but thought maybe he had pinched a nerve and the feeling and movement would return.It hasn't. There is still no pain or swelling and he saw our family Doctor today who basically said it was due to CMT and as we are all used to hearing " nothing could be done " and he should be fitted with an AFO. My son is devastated! I know with my CMT symptoms they have progressed gradually, I have foot drop but it has developed over the past 10 years. Is this possible to develop instant foot drop on a strong healthy leg due to injury? Any information or sugggestions would be greatly appreciated. We are located in Ontario. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Thanks ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 My sister had a sudden, one sided profound foot drop when she was about 21. Probably pinched a nerve or something. It was 6 months before it gradually came back to the same as the other foot, but it did. She is now 43 and has not needed AFOs yet. My dad has also had similar experiences but not so dramatic or longstanding. I wouldn't despair yet. Holli > > My 27 year old son, who has CMT, has had a challenge with his left foot for about 5 years but his right leg and foot were strong. Yesterday he tripped on his left foot causing him to land heavily on his right foot which twisted a little. He felt a pins and needles sensation(tingling) in his foot but no pain. He then found he could not move his foot and had instant foot drop. Obviously he was very concerned but thought maybe he had pinched a nerve and the feeling and movement would return.It hasn't. There is still no pain or swelling and he saw our family Doctor today who basically said it was due to CMT and as we are all used to hearing " nothing could be done " and he should be fitted with an AFO. My son is devastated! I know with my CMT symptoms they have progressed gradually, I have foot drop but it has developed over the past 10 years. Is this possible to develop instant foot drop on a strong healthy leg due to injury? Any information or sugggestions would be greatly appreciated. We are located in Ontario. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 I had what I thought was an " instant foot drop " incident a few days ago. I'm 60yrs old and have CMT. I, too, didn't have dropfoot.just numb feet and hands..and issues with balance. I do use a cane for balance. Here's what happened.I went to the basement to watch my grandkids play a game on the Wii. My oldest grandchild was sitting in my favorite lounge chair so I pulled up an old kitchen chair. My youngest wanted to sit in my lap and watch. We sat and watched for about an hour then decided to go upstairs. I got up but could not lift my right ankle or the toes of my right foot. I was devastated! Called my family practice doctor and my neurologist and left messages. Hours later my neurologist called back. After explaining what occurred we concluded that the nerves had become pinched. He said that they would most likely recover and that it probably is exacerbated because of the CMT. I had noticed that I was beginning to that could get my toes and ankle to flex upward slightly and after a couple of days I'm about 70%. After reading your situation, I would get second and third opinions that your son has instant dropfoot. One other thing that I have found helpful. I saw a writeup and video in LER (Lower Extremity Review) magazine recently re: a device called the AFX and have been using it to strength my ankles and toes. I feel very good with the results and use it twice a week. You might want to ask your PT and/or neurologist about it. http://www.afx-online.com/ Best wishes, wheels Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Wheels, Do you like the AFX? I follow them on Twitter and have been thinking of getting one. Thanks, Donna ~~~~~~~~~~~~~~~~~ I TRI because I CAN! www.myfitnessyear.com ~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hi Clyde, Thank you so much for your reply to my email; which has given me more hope (I have passed it on to my son). The Neurologist is on vacation but we will see him on his return. Hopefully he will give a more promising prognosis than the Family Doctor. Unfortunately my son is taking to heart the doctor's opinion that this situation is permanent. I really appreciate you taking the time to pass on your experience....you have brightened my day. Just to put a face to the names, not sure if you saw our Family on the Canadian CBC TV show, " Dragon's Den " ? Our family invented the heated slippers, " CosySoles " , which were originally intended to help those affected with CMT . Our entire family appeared on the show, including my son Jordan. Thanks again! Warm wishes, From: Clyde Wheeler Sent: Saturday, August 21, 2010 10:02 AM Subject: Re: Instant foot drop caused by injury I had what I thought was an " instant foot drop " incident a few days ago. I'm 60yrs old and have CMT. I, too, didn't have dropfoot.just numb feet and hands..and issues with balance. I do use a cane for balance. Here's what happened.I went to the basement to watch my grandkids play a game on the Wii. My oldest grandchild was sitting in my favorite lounge chair so I pulled up an old kitchen chair. My youngest wanted to sit in my lap and watch. We sat and watched for about an hour then decided to go upstairs. I got up but could not lift my right ankle or the toes of my right foot. I was devastated! Called my family practice doctor and my neurologist and left messages. Hours later my neurologist called back. After explaining what occurred we concluded that the nerves had become pinched. He said that they would most likely recover and that it probably is exacerbated because of the CMT. I had noticed that I was beginning to that could get my toes and ankle to flex upward slightly and after a couple of days I'm about 70%. After reading your situation, I would get second and third opinions that your son has instant dropfoot. One other thing that I have found helpful. I saw a writeup and video in LER (Lower Extremity Review) magazine recently re: a device called the AFX and have been using it to strength my ankles and toes. I feel very good with the results and use it twice a week. You might want to ask your PT and/or neurologist about it. http://www.afx-online.com/ Best wishes, wheels Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hi - I have a pair of Cosy Soles and also bought a pair for my sister who has CMT also. They are wonderful! I could not do without them, especially in the winter! I'll be sure to check out " Dragon's Den. " Thanks! Clyde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hi Donna - I enjoy my 2x a week workout (sometimes 3x) with the AFX and feel stronger in the ankles and toes because of it. IT WORKS FOR ME! I was given the elastic bands to work with from the physical therapist but my grandkids love to tie them in knots (and they would constantly slip off of my feet. The AFX fixes that problem and a few more. I love the additional strengthening exercises. I truly believe that it has helped me recover more quickly from my " instant foot drop " incident which ended up only being a badly pinched nerve. -wheels From: [mailto: ] On Behalf Of Donna DeWick Sent: Sunday, August 22, 2010 10:38 AM Subject: Re: Instant foot drop caused by injury Wheels, Do you like the AFX? I follow them on Twitter and have been thinking of getting one. Thanks, Donna ~~~~~~~~~~~~~~~~~ I TRI because I CAN! www.myfitnessyear.com ~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
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