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Re: in a hurry/ sexuality

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Unmentionable? Head scratching... is he referring to sex? If so, a very touchy

subject (no pun intended), but I am curious to hear from Ed and others how CMT

has affected their sexuality. Gretchen, are you up to moderating such a

discussion? :)

Lynna

CC:

From: edwinrmore@...

Date: Tue, 17 Aug 2010 11:13:47 -0400

Subject: Re: in a hurry

Hello All,

I've felt that way for many years now. Gave up sports first then flying

airplanes and eventually the unmentionable. I've been collecting my favorite

movies and videos of past activities against the day I am invalided and have

hundreds of them.

EdM from NH

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Lynna,

Yes, sure OK with me as long as it is CMT related and keep it positive, please.

However, some may prefer to discuss this privately or not at all. We've had some

discussions before on this I think.

And all I can say is never hurry on this. Much too good to rush through it,

IMO.

Gretchen

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I wonder about the sexual implications of CMT in men vs. women.  I have not

noticed any changes in my own sex life, but I have talked to men who

experience

decreasing sensation as the CMT progresses.

Ann

 

 

________________________________

From: Lynna <lynnanicholas@...>

Sent: Tue, August 17, 2010 12:01:47 PM

Subject: RE: in a hurry/ sexuality

 

Unmentionable? Head scratching... is he referring to sex? If so, a very touchy

subject (no pun intended), but I am curious to hear from Ed and others how CMT

has affected their sexuality. Gretchen, are you up to moderating such a

discussion? :)

Lynna

CC:

From: edwinrmore@...

Date: Tue, 17 Aug 2010 11:13:47 -0400

Subject: Re: in a hurry

Hello All,

I've felt that way for many years now. Gave up sports first then flying

airplanes and eventually the unmentionable. I've been collecting my favorite

movies and videos of past activities against the day I am invalided and have

hundreds of them.

EdM from NH

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Actually, this is one of the things I was talking about, specifically.

>

>

> Unmentionable? Head scratching... is he referring to sex? If so, a very touchy

subject (no pun intended), but I am curious to hear from Ed and others how CMT

has affected their sexuality. Gretchen, are you up to moderating such a

discussion? :)

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Hi,

I have noticed this, and it can help or hurt. It helps because it allows for a

longer time for female partners to enjoy the experience, but it can hurt in that

it may take so long that that the male partner becomes tired out, which can lead

to frustration at the lack of completion for the male.

This is from the sex and sexuality material in this discussion group's files, as

well as from personal experience.

The yoga I have been doing does make intimate relations easier to accomplish.

Hope that wasn't TMI.

On Aug 17, 2010, at 4:24 PM, Ann Gilmer wrote:

> I wonder about the sexual implications of CMT in men vs. women. I have not

> noticed any changes in my own sex life, but I have talked to men who

experience

> decreasing sensation as the CMT progresses.

>

> Ann

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On Facebook I belong to a group called 'Charcot-Marie-Tooth' that has a very

frank discussion topic on sexuality, called 'I'm going to apologize in advance

for the vulgarity of this discussion topic.. Sorry,'. It's sometimes pretty raw,

but it's like the topic that dare not speak its name.

O

Re: in a hurry

Hello All,

I've felt that way for many years now. Gave up sports first then flying

airplanes and eventually the unmentionable. I've been collecting my favorite

movies and videos of past activities against the day I am invalided and have

hundreds of them.

EdM from NH

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