Guest guest Posted August 26, 2000 Report Share Posted August 26, 2000 , Here in central Oregon we have two neurosurgeons, and one neurologist whom have been very objective in my dealings with them. Their names are Norwyn Newby, Kendrick and Dick Kholer. Yours Truly, Coby L. Hanes, D.C. Neurologists Colleagues: I am seeking the names of a few good neurologists in Oregon who are of high quality and objective. During my time in practice I was accustomed to working with Knox from Corvallis who I believe was the best neurologist in the state. Unfortunately, for those of you who do not already know, Dr. Knox passed away earlier this year. Due to his excellent examination skills and ability to testify he was a high quality physician and a favorite of many quality lawyers and chiropractors. I am hoping that someone can alert me to someone of similar quality. I am in particular interested in working with someone who agrees that post concussion syndrome exists, can properly diagnose it, and has substantiation for their reasoning. Respectfully, DeShaw, D.C., J.D. deshaw@... 1001 SW 5th Avenue, Suite 1300 Portland, OR 97204 (503) 227-1233 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 , MURIEL LEZAC, PhD. Wk: 494-7772 Used to specializin in POST CONCUSS SYNDROME and psychometric testing. I think she may be getting near retirement but had an associate. Perhaps someone else on the list knows her status. (I learned of her years ago when she used to run a head injury family support group at the Med School Library which I used to refer people at need.) -- Dr. Abrahamson > From: " DeShaw " <deshaw@...> > Date: Tue, 22 Jan 2002 14:41:54 -0800 > " Oregon DC's " < > > Subject: Neurologists > > Doctors: > > Can anyone suggest a good head trauma neurologist in the State in the Salem to > Portland area? I have seen reports from several neurologists in the state and > the only one who impresses me thus far is Grimm. Since he is generally > booked several months in advance I need to know who else is available on a > more immediate basis who will still do a great job. > > Thank you for your help. > > Respectfully, > DeShaw, DC, JD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Your insurance probably happily paid the bill too, right? I wish that I could have pocketed the thousands of dollars that my insurance paid out for all the GI doctors appointments, tests, etc. and the allergist visits that I took my son to... they all got me nowhere. It took two visits with a DAN! to get my son back on track. Unfortunately, that wasn't paid for by insurance. - Sue M. (for the record, I'm happy that insurance paid for the visits... I'm just bothered that those visits did NO GOOD) > > > > From: " J. Krakow " <rkrakow@...> > > Subject: Your Piece on Chelation > > > > Dear Ms. Hart: > > > > Thank you for your intelligent and balanced piece on chelation. > > > > The neurologist conducted no tests and did not review our son's medical > > records - she only observed our son in a small room for about 40 > > minutes. > Wow you were lucky. That's MUCH better than ours. Who neither > spoke or made any eye contact with us the whole maybe 30 seconds he > looked at our son. He called the other doctors out in the hall, spoke to > them and they relayed the info to us - what we already knew. > > No tests, no suggestions and a bill for $485 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Seeing a neuroligist - and having a 24 hour EEG - was one of the best things that we did for our son. We discovered, much to our surprise, that he was having seizures while he slept. He's been on Depakote for about 5 months now. The change was immediate. Within 2 weeks, his attention was better, his motor planning was fantastically improved, and his sensory issues were so dialed-down that they really don't impact his life any more. He's also talking more and more. He was discharged from both PT and OT in December. All of his therapies have been helpful, but the anti-seizure meds were the one truly miraculous intervention that we've had. Absouldtely worth it! in CA " Shane H. " <robin.harmon@...> wrote: What I am wondering is if he should see a neurologist. > This has never been mentioned by any of his current medical > professionals, but I read all the time that others are taking this > route. What do you think? Is it helpful? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 How did they do a 24 hour EEG? Was he admitted to the hospital for a day? My grandson would not let something be attached to him for that long but I suspect he has " staring seizures " . He is Autistic as well. Chris [ ] Re: Neurologists Seeing a neuroligist - and having a 24 hour EEG - was one of the best things that we did for our son. We discovered, much to our surprise, that he was having seizures while he slept. He's been on Depakote for about 5 months now. The change was immediate. Within 2 weeks, his attention was better, his motor planning was fantastically improved, and his sensory issues were so dialed-down that they really don't impact his life any more. He's also talking more and more. He was discharged from both PT and OT in December. All of his therapies have been helpful, but the anti-seizure meds were the one truly miraculous intervention that we've had. Absouldtely worth it! in CA " Shane H. " <robin.harmon@...> wrote: What I am wondering is if he should see a neurologist. > This has never been mentioned by any of his current medical > professionals, but I read all the time that others are taking this > route. What do you think? Is it helpful? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 We went in to see a doctor who specializes in children - including children with autism - to have him hooked-up to the electrodes. The hook-up and take-off processes were absolutely terrible. My son - who was about 2 1/2 and had basically no speech at the time...maybe 10 words - was terrified. They had to bind him to a backboard, and by the time that it was done, he was pretty much hysterical. We used a portable DVD player & that helped a little, but it was really awful because he was so scared. They also put splints on his arms to keep him from touching his head, but we took them off after about an hour when we realized that we could just keep him distracted and keep an eye on him & he left his head (which was wrapped in gauze) alone. He got to watch as much TV as he wanted, drink soda. Anything that would keep him happy. We were at home, so i think that made it easier. The next time that we do it (probably in 2 years) will likely be in a hospital so that video can be taken while he sleeps. I'm not sure how that will go. I would REALLY urge you to think about doing the EEG. Our son's doctor pushed on us hard to do it & i was very resistant. It just seemed like there was no point when we saw NOTHING that indicated seizures. Feel free to e-mail me off list if you'd like more details or some more tips. Good luck to you! in CA > > How did they do a 24 hour EEG? Was he admitted to the hospital for a day? My grandson would not let something be attached to him for that long but I suspect he has " staring seizures " . He is Autistic as well. > > Chris > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Ritlan in Katlyns case caused her to become very spastic. She had very high tone and was in constant pain. Just be carefull with the Ritalin.Once we had HBOT there was no need for the Ritaln. Just my observation. Darin From: Stephani Vidrine <stephanividrine@...> Subject: [ ] neurologists medicaid Date: Wednesday, July 8, 2009, 3:22 PM , right you are it is his neurologist, he had two of them; one back home and the other at TIRR, the one back home does not accept medicaid therefore cannot see my husband anymore, but is very interested in using HBOT to help brain injury, the one at TIRR i think her view on HBOT is that " Humm i went to school for many years i think i know what will help him get better...what do you know about brain injury " and if it really works i could be out of a job... he also used to take medicine proqvil, which cost 500 bucks a month, amantadine (80 bucks), and rilitan (30 bucks), 2x a day to help him stay wake, when he was admitted again after HBOT i told the doctor to take him off those meds (why take them they only mask the probelm not help heal it).. so far we were able to take off proqvil, amantadine.. . hoping after the second 40 set of HBOT i can reduce dosage on riltan (for some reason it help him focus)... His family doctor is very encouraging and says anything that could help him go for it, we have traditional medicaid so we dont have to get referral just show up at a dr's office.... my hope is that the veteran Iraqi study will give huge evidence that hbot works and hopefully add brain injury by trauma as one of the approved on the list of medicaid... GodBless stephanividrine ____________ _________ _________ __ From: <kjo649698verizon (DOT) net> medicaid Sent: Wednesday, July 8, 2009 11:19:38 AM Subject: [ ] Re: naive people You have made a very interesting point about Drs. who might fear they would lose their jobs- let me guess, was it a neurologist you saw? Don't get me wrong, there are some wonderful neurologists out there, but another doctor I know at a major hospital (who deals with them a lot) calls them " Diagnose and Adios " - that is, it is one of the few medical specialties where they can collect a large fee, put a name on what ails you, and then DO ABSOLUTELY NOTHING to help you, all the while hiding behind the excuse that " you can't fix that. " What an excellent gig to have! Who would want to lose that to actual knowledge and curing patients? First you have to learn new things, then you have to actually work and treat some patients, then if things go wrong with the treatment you have to deal with the responsibility and malpractice. How inconvenient. You can't just turn the profession upside down overnight without expecting some resistance. The retraining alone would take a long time. Best wishes with further progress with your husband. - > > yes.. it is all politics, those people make huge profits off the hyperbaric kept  in hospitals, connections with powerful men that can pass or deny laws, they can convince them to believe whatever they want them to and they do it all so " those " people can continue to make money off hyperbaric in hospitals... If people don’t think there is such a thing as " conspiracy " (a scheme for the rich to get richer) then they are naïve very naïve.. I took my husband to get HBOT for 40 treatments (at a freestanding clinic) and he was so much stronger, and he is at TIRR right now, i made it a point to let his doctor and his therapists know about the HBOT, well his doctor " stuck up her nose " I was like what you don't like HBOT? are you afraid you would lose your job?? I do believe that HBOT and therapy combined makes for a wonderful recovery… And the therapists they were glad that he was able to get HBOT in the area that it help his muscles.. And in the area of > thinking, he actually answers yes or no to questions now, it's done wonders:-P stephanividrine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 confused. when i go to my c.m.t. dr. all the symtoms i talk about, he says are not part of cmt but i feel them and when i go on line i find people with cmt are all feeling the same symtoms. what do you believe. i know my body and i am sure a dr. from usc would know, so confused Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 Francine, Many neuromuscular disorders share some of the same symptoms as CMT. Also auto-immune disorders like CIDP. Balance, fatigue, coordination, sensory dysfunction, atropy, tremors, gait problems and more. If you want to see a neurologist who knows CMT in L.A., go to UCLA and see Graves, MD. If you want a neurologist in Santa Barbara, I recommend Mark Corazza or Philip Delio. You may also go on the CMTA website and look at http://www.charcot-marie-tooth.org/resources.php?state=CA & resource=physician & sub\ mit=Search Just type in " California " for the state and hit " search " . Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Francine, Sounds like he doesn't know what CMT symptoms are. In a message dated 6/12/2010 8:50:41 A.M. Pacific Daylight Time, naturefrancine@... writes: what do you believe. i know my body and i am sure a dr. from usc would know, so confused Quote Link to comment Share on other sites More sharing options...
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