Re: CMT Adult Stem Cell Patient

[Guest guest]

Hi Joana,

I found the CMT gentleman and sent him an email and he replied my email.

In the email, he told me that he feels his CMT symptom improved.

He is not sure how the long improved symptom will last.

The tricky part is that I am not sure wether the clinic might ask or pay him to

ask something positively.

But I do find people on News channel to talk about how their sons' visions were

improved after stem cell therapy in China.

Hope the above might be helpful.

Caroline

[Guest guest]

Hi Caroline

I hope all is well

Thank you so much!

Yes...interesting this about the gentleman

I also heard about China...treatments in China

Hum... it would be very good if I could go to China hehe

but I have no idea how to go about this...

It would be nice to find out more about stem cells and CMT

I wonder about this too

Thank you again Caroline

Kind regards

Joana

>

> Hi Joana,

>

> I found the CMT gentleman and sent him an email and he replied my email.

>

> In the email, he told me that he feels his CMT symptom improved.

> He is not sure how the long improved symptom will last.

>

> The tricky part is that I am not sure wether the clinic might ask or pay him

to ask something positively.

>

> But I do find people on News channel to talk about how their sons' visions

were improved after stem cell therapy in China.

>

> Hope the above might be helpful.

>

> Caroline

>

[Guest guest]

Hi, Joana

I have reaserched how to go to stem cell clinic in China. Here are the

steps:

1) find the websites of the clinic in China

2) email or call to make appointments

3) prepare money to pay

4) buy airline tickets and fly to China and stay in a hotel or a place the

clinic arrange for you

5) receive stem cell therapy

Whether or not to take the above 5 steps depend on how brave you

are.

I know some people can see with their eyes after stem cell therapy in China.

I am not sure about CMT right now.

Hope the above information might be helpful.

Caroline

[Guest guest]

Joana,

Please be extremely cautious about " medical tourism " to China, Mexico or other

countries. Not only is this incredibly expensive, and not covered by insurance,

it may also be potentially dangerous for multiple reasons. " Medical Tourism " is

popular because it is so new and yet experimental, there is no evidence based

published research on this for CMT and just because one person says it helped -

why hasn't he spoken up to others? Why is this information so secret? Don't you

think if stem cells replacement were a treatment or even arrested CMT all

together that we would all have it?

If you are serious about getting help, I suggest you follow Donna's advice in

London, or, if you absolutely feel you need to become in " medical tourism " , then

consider coming to the USA and seeing Mike Shy and his clinicans at Wayne State.

Of course you will also need the financial resources to do this.

CMT is a genetically inherited disorder that has been in the human family for 6

- 7 million years. That means it is so deeply embedded in you. There is no

currently available treatment. Earlier this week, I posted the news about

Pharmax. You may want to join the CMT France to talk about this and find

connected researchers who may know about trials. NT-3 is still in research

trials stages and so is Vitamin C (Ascorbic Acid) - in the USA and Europe. Great

progress is being made. Genetic Engineering of DNA itself is still a long ways

off.

Help for symptoms management is out there, if you want it, you must be prepared

to make changes in your life, such as considering AFOs to help you walk, wearing

different shoes, physical therapy, scaling back on such intensive work at the

gym, etc. Good nutrition is also very important in maintaining optimum health,

CMT or not.

You are in the grieving process right now. Don't think of what you used to do,

but think about what you will do and what a good life you will have with the

help you get.

If you feel better in Brazil, consider staying there. Just the climate alone is

so different than the UK. That would make anyone feel better! Not to mention you

have family and friends there for love and support.

You may want to look in our Files for Dr. 's list of supplements for CMT.

Look in the Supplements and Vitamins Folder for this. There is additional

information there as well.

Gretchen

[Guest guest]

Just my 2 cents.

I have met, and listened to, folks with MS who traveled to Costa Rica for stem

cell therapy, and their results were - while not a cure - remarkable. They went

from not walking, to walking, etc. Obviously, the treatments were not successful

for everyone, but for these, it was. The clinic there was run/owned by U.S.

physicians, who could not provide this treatment in the U.S. due to FDA

regulations.

I say 'was', because the Costa Rican government has now shut down all stem cell

therapy clinics due to pressure from - get this - the FDA. I guess Costa Rica is

our 51st state.

To be fair in response to the FDA, et al, we do know that many of the studies

which are considered 'gold-standard' and published in medical journals are

faulty, in large part due to conflicts of interest and bias. That's a shame.

Gretchen is correct, that we have to be very careful when considering

complementary, or experimental, therapies. That same caution applies to

standard, traditional medical treatments, as well.

In a perfect world, everyone would be compulsively honest, including

scientists/researchers.

>

> Joana,

>

> Please be extremely cautious about " medical tourism " to China, Mexico or other

countries. Not only is this incredibly expensive, and not covered by insurance,

it may also be potentially dangerous for multiple reasons. " Medical Tourism " is

popular because it is so new and yet experimental, there is no evidence based

published research on this for CMT and just because one person says it helped -

why hasn't he spoken up to others? Why is this information so secret? Don't you

think if stem cells replacement were a treatment or even arrested CMT all

together that we would all have it?

>

> If you are serious about getting help, I suggest you follow Donna's advice in

London, or, if you absolutely feel you need to become in " medical tourism " , then

consider coming to the USA and seeing Mike Shy and his clinicans at Wayne State.

Of course you will also need the financial resources to do this.

>

> CMT is a genetically inherited disorder that has been in the human family for

6 - 7 million years. That means it is so deeply embedded in you. There is no

currently available treatment. Earlier this week, I posted the news about

Pharmax. You may want to join the CMT France to talk about this and find

connected researchers who may know about trials. NT-3 is still in research

trials stages and so is Vitamin C (Ascorbic Acid) - in the USA and Europe. Great

progress is being made. Genetic Engineering of DNA itself is still a long ways

off.

>

> Help for symptoms management is out there, if you want it, you must be

prepared to make changes in your life, such as considering AFOs to help you

walk, wearing different shoes, physical therapy, scaling back on such intensive

work at the gym, etc. Good nutrition is also very important in maintaining

optimum health, CMT or not.

>

> You are in the grieving process right now. Don't think of what you used to do,

but think about what you will do and what a good life you will have with the

help you get.

>

> If you feel better in Brazil, consider staying there. Just the climate alone

is so different than the UK. That would make anyone feel better! Not to mention

you have family and friends there for love and support.

>

> You may want to look in our Files for Dr. 's list of supplements for

CMT. Look in the Supplements and Vitamins Folder for this. There is additional

information there as well.

>

> Gretchen

>

[Guest guest]

Thank you all!!!!!!

Yes...

Gretchen is 100% right and you too

We all have to be very, very careful indeed!!!!!!!!!

Next time when I will be in Brazil will see my doctor and ask

him regarding this matter too

The only thing they told me is to take Vit C and L Carnitine

and regular exercices of course!

All the best wishes to to you all!

Hugs

Jo

> >

> > Joana,

> >

> > Please be extremely cautious about " medical tourism " to China, Mexico or

other countries. Not only is this incredibly expensive, and not covered by

insurance, it may also be potentially dangerous for multiple reasons. " Medical

Tourism " is popular because it is so new and yet experimental, there is no

evidence based published research on this for CMT and just because one person

says it helped - why hasn't he spoken up to others? Why is this information so

secret? Don't you think if stem cells replacement were a treatment or even

arrested CMT all together that we would all have it?

> >

> > If you are serious about getting help, I suggest you follow Donna's advice

in London, or, if you absolutely feel you need to become in " medical tourism " ,

then consider coming to the USA and seeing Mike Shy and his clinicans at Wayne

State. Of course you will also need the financial resources to do this.

> >

> > CMT is a genetically inherited disorder that has been in the human family

for 6 - 7 million years. That means it is so deeply embedded in you. There is no

currently available treatment. Earlier this week, I posted the news about

Pharmax. You may want to join the CMT France to talk about this and find

connected researchers who may know about trials. NT-3 is still in research

trials stages and so is Vitamin C (Ascorbic Acid) - in the USA and Europe. Great

progress is being made. Genetic Engineering of DNA itself is still a long ways

off.

> >

> > Help for symptoms management is out there, if you want it, you must be

prepared to make changes in your life, such as considering AFOs to help you

walk, wearing different shoes, physical therapy, scaling back on such intensive

work at the gym, etc. Good nutrition is also very important in maintaining

optimum health, CMT or not.

> >

> > You are in the grieving process right now. Don't think of what you used to

do, but think about what you will do and what a good life you will have with the

help you get.

> >

> > If you feel better in Brazil, consider staying there. Just the climate alone

is so different than the UK. That would make anyone feel better! Not to mention

you have family and friends there for love and support.

> >

> > You may want to look in our Files for Dr. 's list of supplements for

CMT. Look in the Supplements and Vitamins Folder for this. There is additional

information there as well.

> >

> > Gretchen

> >

>