Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Hi Joan, I would be very interested as it would affect many of the students I work with. If this IS set up, the earlier in the afternoon (US time) would be better for me as I am a 5 hour time difference from NY (so noon in NY is 5pm my time, so 5pm NY is 10pm Ireland...yawn!!!). Of course, I understand that majority rules, just thought I'd add that suggestion if at all possible. Best Jen > Hi all, > > I received a handful of emails privately regarding the eating issues > and a behavior checklist. > > Given that, I have the following question: > > Is there interest in meeting in a 'webinar " type format for a > presentation related to food/picky eating and then a discussion and > problem solving session around it? That is, just for the > group at this point. I don't have funding for this, it is just > something I can offer and am willing to donate some time to it if > there is interest. > > If so, I can set one up for January. > > email me off list: joan@...<joan%40downsyndromenutrition.com> > > Thanks! > joan > > > -- Books just wanna be FREE! See what I mean at: http://bookcrossing.com/friend/nifferdoodle See my photos from my recent trips: http://www.flickr.com/photos/nifferdoodle/ " I've always wanted to have a life someone would want to live vicariously through. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Joan actually this is one of the best idea brewing for January. Should timewise work out for you, would greatly even share this among other group list to take advantage of this opportunity to attend as there is always a need. Thank goodness has graduated from this challenging issue but it would be great for many not to miss out while seeking this mission to accomplish as I have once upon a time. Thank! Irma,20,DS/ASD > > Hi all, > > I received a handful of emails privately regarding the eating issues > and a behavior checklist. > > Given that, I have the following question: > > Is there interest in meeting in a 'webinar " type format for a > presentation related to food/picky eating and then a discussion and > problem solving session around it? That is, just for the > group at this point. I don't have funding for this, it is just > something I can offer and am willing to donate some time to it if > there is interest. > > If so, I can set one up for January. > > email me off list: joan@... > > Thanks! > joan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 This sounds bad...but... I would like to keep this to OUR list. I'm happy to donate my time and professional info here, but it is also a part of how I pay the electric bill. That's one of the things that brings me joy - giving back to the people in this group. Joan > > > > Hi all, > > > > I received a handful of emails privately regarding the eating issues > > and a behavior checklist. > > > > Given that, I have the following question: > > > > Is there interest in meeting in a 'webinar " type format for a > > presentation related to food/picky eating and then a discussion and > > problem solving session around it? That is, just for the > > group at this point. I don't have funding for this, it is just > > something I can offer and am willing to donate some time to it if > > there is interest. > > > > If so, I can set one up for January. > > > > email me off list: joan@ > > > > Thanks! > > joan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 No problem, it was just a suggestion as I was intending to invite other parents to join the listserve who have individuals dealing with some of these issues whose individuals are dx'd with the dual dx's DS & AU. There have been other professionals who also donated their time and bring in some dough for similar reasons which one will understand. Too many reasons among those who I have met along this journey outside of this listserve on the choices they have chosen still not ready to jump aboard which I respect. Thanks on clarifying your intentions and reasons in regards to this topic. Irma > > This sounds bad...but... > > I would like to keep this to OUR list. I'm happy to donate my time and > professional info here, but it is also a part of how I pay the > electric bill. That's one of the things that brings me joy - giving > back to the people in this group. > > Joan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 My son with Down syndrome is not like that, but USED to prefer pizza all the time or spaghetti (GFCF of course) all the time. Now that we have made some changes, he eats most anything. He won't eat mashed potatoes, though, and I cannot quite blame him. (Some food preferences or dislikes are acceptable I think. Major food issues do have a cause. One just must be diligent and think outside the box sometimes.). > > > > > > > > > > > > > > It has been my experience that sometimes I just have to give in and let my 12 year old son, ph, eat what he wants to eat to keep him from having a serious health problem (and to preserve my sanity and peace in our home). ph will starve himself to death if he doesn't get the food he wants. We want him to eat a healthy diet and have tried many times to get him to change to a healthy diet, but we're not willing to reach the point of a feeding tube to do so. We came extremely close to a feeding tube when he was 4. > > > > > > > When ph was 4, we stopped giving him baby food at the insistence of his physician. The doctor told us to stop the baby food cold turkey and force him to eat regular food. Fortunately, ph was eating graham crackers and applesauce in addition to the baby food when we stopped the baby food. He ate only small amounts of applesauce and graham crackers for about a year after we stopped the baby food. We tried everything we could think of to get him to eat the healthy foods the rest of us were eating. Toast was one of the first things, other than graham crackers and applesauce, that ph decided to eat. Chicken nuggets and corn dogs followed when we let him point out what appealed to him during a trip to the grocery store. We were desperate to get food into him! He was down to skin and bones and looked like a concentration camp victim. He very slowly gained weight after we gave in and let him eat what he wanted to eat, not what we wanted him to eat. > > > > > > > > > > > > > > As ph has gotten older, my husband and I have tried numerous times to get him to change his diet by withholding his favorite foods until he tries something new. We tell him he has to eat only one bite before he can have his favorite foods. Every single time he will not try the new food and would rather starve. He throws the offensive food on the floor (and is disciplined for doing so). Are we supposed to forcefully place the food we want him to eat in his mouth and force him to chew and swallow it? (This tactic was suggested by a therapist.) We're not willing to do so. It's too traumatic for all involved. Therefore, we allow him to eat his chosen diet of toast with butter, applesauce, and sausage links with ketchup every day for breakfast; corn dogs with ketchup and tortilla chips every day for lunch; and chicken nuggets with ketchup and tortilla chips every day for dinner. He won't vary from it. He doesn't even like to have someone next to him > > > > > > > eating something that offends his sense of smell or sight. He has tried to throw their food onto the floor and been disciplined for it. Casseroles are the worst offense to him. > > > > > > > ph's 6 siblings (ages 2, 6, 7, 9, 14, & 17) have all tried to get him to try the healthy foods that the rest of us eat. They even help to make it. They tell ph how good it is and offer it to him. He says " yuck " and refuses it. > > > > > > > None of us in our family understand why ph won't at least try something new. We feel that we've done all we can to get him to change and he just won't. > > > > > > > Dena > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.