Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Margaret, You are so funny.Oh no my wording was just a bit off. Bernard Rimland died but to my knowledge his son is still living. I have been giving the B-6/mag with so much success I am considering pulling him off Abilify afterall it was not helping him.All these meds seem to stop for right at 2 years of him being on them. Of course I will slowly pull him off and never just stop the med.Dr. Capone suggested depakote for with the Abilify which I was going to try but I wanted to try this after I read the research before I started the depakote. Of course Margaret the B-6 may stop working after 2 years we shall see. I am not opposed to meds at all I have seen them help it is just since we are doing biomedical that I wanted to try a different path. It is working so far. We ran out of B-6 and he went right back to be defiant,stubborn, and aggressive. Now 2 days back on the B-6/mag and his attitude is wonderful again. > > <<Dr. Bernard Rimland had an autistic child >> > > Hi, Everyone........I assume he still has this child or did he die? > I wouldn't want to follow his suggestions if the child wasn't still alive!!! > > Ali....if Topamax doesn't work for seizures, have you tried the Depakote? > Gareth had a hard time with Depakote initially, but when the doc went back and > started him at a VERY lose dose, worked him up over a month long period, he > was OK. Depakote helps with anxiety and behavioral issues, too. It is > considered a mood stabilizer, too. > > Take care, Everyone. > Margaret > **************Make your life easier with all your friends, email, and > favorite sites in one place. Try it now. > (http://www.aol.com/?optin=new- dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Cyndy: Tori was on Depakote for a while too-courtesy of Dr. Capone...and it did work. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 I am pretty sure that I asked Amy's developmental pediatrician about depakote once and she said it is the same as valproic acid which she is already on for her seizures. It doesn't seem to help her behaviours any though. Question - I live in Canada so we do not have DAN doctors so I am just wondering what a DAN doctor is?? Thanks. Ali Liz DeSantis wrote: Cyndy: Tori was on Depakote for a while too-courtesy of Dr. Capone...and it did work. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Ali, DAN stands for Defeat Autism Now Doctors. This is a group of Dr.'s that believe they can make a deference in the lives of autistic children by treating the autism with biomedical intervention, including changing their diets to GF/CF.There are test that they do on autistic kids that show the DAN doctors which direction to go in treating the problems autistic kids have. We started doing the protocol in April of 2008 and we have seen a difference in our son. Some people claim that they see dramatic results while other people say they do not see any change.I have always believed in meds and that meds do help my son but I just decided to try this approach after modern medicine failed to help my son recover from cellulitis of the face and head from July of 2006. I have pics of with cellulitis on our photo link. The DR. here were not listening to me say that is not well and something more is going on. I finally have my back and he is improving cognitively everyday.Will he ever be president more than likely no, but will his communication skills and his quantity of life improve, yes. Sincerely, Cyndi B > > I am pretty sure that I asked Amy's developmental pediatrician about depakote once and she said it is the same as valproic acid which she is already on for her seizures. It doesn't seem to help her behaviours any though. > > Question - I live in Canada so we do not have DAN doctors so I am just wondering what a DAN doctor is?? Thanks. > > Ali > > Liz DeSantis wrote: > Cyndy: Tori was on Depakote for a while too-courtesy of Dr. Capone...and it did work. > > Liz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 valproic acid can have positive and negative affects on behavior. did she have these behaviors before the valproic acid? If you are looking to use valproic acid to have a positive affect on behavior it usually is given at much higher doses than for seizure control. Karyn > Cyndy: Tori was on Depakote for a while too-courtesy of Dr. Capone...and it did work. > > Liz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 She has been on the valproic acid for 3 years now. I know for sure that she didn't have any of these behaviours before the valproic acid but I don't think these behaviours started until she had been on it for 1 1/2 years. Actually I think the behaviours started after she had her feeding tube put it in which is why I usually end up going back to stomach problems being the main cause of her pain or discomfort. We are waiting for her sleep study on Jan 5th in which they also do an EEG and then if it doesn't reveal anything then we will start weaning her off of the valproic acid. Ali kvanryzin wrote: valproic acid can have positive and negative affects on behavior. did she have these behaviors before the valproic acid? If you are looking to use valproic acid to have a positive affect on behavior it usually is given at much higher doses than for seizure control. Karyn > Cyndy: Tori was on Depakote for a while too-courtesy of Dr. Capone...and it did work. > > Liz > > Quote Link to comment Share on other sites More sharing options...
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