Re: Ongoing minor (?) illness

[Guest guest]

With all those antibiotics, I would be thinking about yeast or fungal

overgrowth, causing stomach pain, sinus infection, Eustachian tube issues.

> Nick has been sickly for the past 4 months, upper resp., sinus inf.,

> pneumonia, etc. Most recently a sinus infection, started with

> augmentin then switched to zithromax, when Nick refused to take Aug.

> No more sinus drainage, but Nick is very tired, taking naps in school,

> twice a day. This is not usual for him. Could this be heart

> related, (his " hole " has grown a little)? I know there are lots of

> " bugs " going around, but this is going on too long. Just thought I

> would ask. He did have his ear tubes removed last Thursday by Dr.

> Mousakes, and then slept for over 3 hours after! We see the ped.

> again tomorrow and I am wondering where we should go from here.

> Because Nick is non-verbal and doesn't express sickness or pain, I am

> worried we are missing something! Thank you for any suggestions.

> Joni

>

>

>

--

Sara - Life is a journey- we choose the path.

[Guest guest]

Hi Joni

I am just throwing this out there as a suggestion even though it probably

isn't it but I was wondering if Nick has any seizure disorders? I know seizures

are unrelated to respitory etc but awhile back Amy kept needing to have a nap

about 20 min after she woke up and then again at school in late morning and then

again in the afternoons. She too had a cold at the time and we are also looking

into possible sleep apnea issues so we just thought it was all of that. Turns

out she was having absence seizures (staring spells) which were making her

tired. Since increasing her seizure meds she has been awake more often.

I also agree about the reflux too as Amy had that as well and had reoccuring

pneumonias and problems sleeping at night as a result.

Good luck with finding out what is wrong.

Ali, mom to Amy 4 1/2 (DS/ASD), 3 1/2 and Olivia 18 months

pcjoni12871 wrote:

Nick has been sickly for the past 4 months, upper resp., sinus inf.,

pneumonia, etc. Most recently a sinus infection, started with

augmentin then switched to zithromax, when Nick refused to take Aug.

No more sinus drainage, but Nick is very tired, taking naps in school,

twice a day. This is not usual for him. Could this be heart

related, (his " hole " has grown a little)? I know there are lots of

" bugs " going around, but this is going on too long. Just thought I

would ask. He did have his ear tubes removed last Thursday by Dr.

Mousakes, and then slept for over 3 hours after! We see the ped.

again tomorrow and I am wondering where we should go from here.

Because Nick is non-verbal and doesn't express sickness or pain, I am

worried we are missing something! Thank you for any suggestions.

Joni

---------------------------------

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[Guest guest]

Joni,

Just wondering if Nick has had annual thyroid tests done?

I do not see his age listed so I am just going to use my son as an

example here. When I became DJ's mommy ( he was 2) I had a complete

multi disciplinary work up done at the Marcus Center DS Clinic which

was at the time very similar to Kennedy Kreiger. He was seen by

everyone from the dept head of genetics to behavior dept. It took

days.

I mention this because these doctors were not only very thorough but

provided me with info that has helped us thru the years.

A couple of things they mentioned is by virtue of the down syndrome

many times peds may mistake thyroid problem characteristics with

typical ds characteristics. (Examples being fatigue, weight dry skin

etc)

Another thing was that again due to ds, our guys immune systems are

impacted. Takes them longer to get well or shake a cold or be more

susceptical to illnesses.

This info served me well, especially when DJ started acting more tired

than usual. He was always underweight but suddenly started gaining

weight. It took almost a year for me to convince my pediatricians

that something was wrong based on the weight gain & fatigue. DJ was

going into 5th grade when one of the ped doctors actually listened &

realized how much wt he had gained from Sept to Aug. Ordered blood

test.

The blood tests showed that his thyroid had stopped working. DJ now

sees a endocrine specialist, takes thyroid meds & will for life.

Somewhere between thyroid tests (Aug-Aug), his thyroid stopped

working & the peds just attributed the wt gain/fatigue to " being

downs " .

I am not saying that your Nick has any problems. I am VALIDATING

your concerns as a Mom. You know your child better than anyone-his

habits, his ways. Please tell your ped ALL your concerns & do not

feel silly or bad doing so. Remind them of his heart & the need for

thyroid tests, how often he has been ill, etc.

Once everything else is ruled out it may just be that compromised

immune system needs a break & time to get back to 100%.

Hugs,

Kris

>

> Nick has been sickly for the past 4 months, upper resp., sinus

inf.,

> pneumonia, etc. > No more sinus drainage, but Nick is very tired,

taking naps in school,

> twice a day. This is not usual for him. .

> Joni

>

[Guest guest]

i would request a full work up if its been this long, cbc, chem 8 or 14,

thyroid, and maybe even a blood culture to make sure not septic or anything. I

know ther is lots of strep pneomonia going around whre i live and its taking

several weeks to recover for most of these patients. will keep nick in my

thoughts and prayers he feels better very soon, shawna

 

Wishing all a very Merry Chirstmas!

 http://sewshawna.blogspot.com

________________________________

To:

Sent: Wednesday, December 10, 2008 4:21:57 PM

Subject: Ongoing minor (?) illness

Nick has been sickly for the past 4 months, upper resp., sinus inf.,

pneumonia, etc. Most recently a sinus infection, started with

augmentin then switched to zithromax, when Nick refused to take Aug.

No more sinus drainage, but Nick is very tired, taking naps in school,

twice a day. This is not usual for him. Could this be heart

related, (his " hole " has grown a little)? I know there are lots of

" bugs " going around, but this is going on too long. Just thought I

would ask. He did have his ear tubes removed last Thursday by Dr.

Mousakes, and then slept for over 3 hours after! We see the ped.

again tomorrow and I am wondering where we should go from here.

Because Nick is non-verbal and doesn't express sickness or pain, I am

worried we are missing something! Thank you for any suggestions.

Joni

[Guest guest]

Ask for bloodwork. The fatigue and frequent illnesses need a CBC to check out to

rule out a bunch of things, including leukemia, and it wouldn't hurt to check

his chemistries and thyroid level too. If the bloodwork shows nothing out of

whack, I'd check with the cardiologist. It really is not normal for a little boy

to be so fatigued, though I'm not sure how old Nick is.

Beth, mom to , age 8, with DS, autism, and a leukemia survivor; also mom to

, 14, and , 11

Ongoing minor (?) illness

Nick has been sickly for the past 4 months, upper resp., sinus inf.,

pneumonia, etc. Most recently a sinus infection, started with

augmentin then switched to zithromax, when Nick refused to take Aug.

No more sinus drainage, but Nick is very tired, taking naps in school,

twice a day. This is not usual for him. Could this be heart

related, (his " hole " has grown a little)? I know there are lots of

" bugs " going around, but this is going on too long. Just thought I

would ask. He did have his ear tubes removed last Thursday by Dr.

Mousakes, and then slept for over 3 hours after! We see the ped.

again tomorrow and I am wondering where we should go from here.

Because Nick is non-verbal and doesn't express sickness or pain, I am

worried we are missing something! Thank you for any suggestions.

Joni