Re: Early Onset CMT with mitofusion 2 mutations and brain involve...

[Guest guest]

Oh you have big brain ventricles. Now I know why you are so smart! One of my

CMT kids has small blood vessels. Our doctor blames the CMT. Once when I was a

teenager a new PT was testing my hand involvement. She began showing me her own

hand strength and finger dexterity. I was less then impressed and asked her what

the big deal was. I like you never did anything special with that information.

lol.

In a message dated 7/1/2010 4:41:22 P.M. Pacific Daylight Time,

gfijig@... writes:

,

I don't know for sure, but I am supposing early-onset would be from 0-5

years old. This article refers to * Axonal * CMT, which is Type 2. Like I

have. No MRI's invented yet when I was a kid. Much later in life, after a fall

from a horse, the neurologist told me my CAT scan showed 'enlarged brain

ventricles'. I said " oh " - like who cares? To this day that piece of news

has done nothing one way or another. On the other hand maybe it's why I don't

sleep because I'm always thinking of new ideas, lol

Gretchen