Re: Irma and all, yeast overgrowth

[Guest guest]

Karyn, in a way nice that you found some of the hidden culprit going

on with some of the behavior issues if any going on because once under

the treatments there could also be some withdrawals but all good once

the yeast overgrowth has been treated which at least it has for

. It is healing the gut issues.

Great Plains is one of the lab center which is connected/associates to

the CARE clinics my son attends and the Director of Great Plains son

also follows through at the clinic my son receives his treatments

which is nice to have some research professionals addressing the

testing where needed.

Depending what the DAN doc prescribes or how much knowledge he or she

are into the alternative biomedical intervention even though is

on antibiotics low or high, this is fine.

The DAN doc will make sure to address it with some type of probiotiocs

which they will have to recommend which will probably not contain

other ingredients that will trigger the yeast overgrowth.

Example like some type of Custom Probiotics.

The DAN physician will also refer some food removal while undergoing

the treatments which could trigger off the yeast overgrowth. All worth

it though. It could be something like an elimination of bread that

contain yeast, dairy, fruit juices, limit sugar intake, etc..

Research has indicate that Candida species and other fungi may be a

significant cause of many of the untoward behaviors and health

problems we see with our individuals under the autism spectrum.

The boils, pimple like, rash, etc. will go away or decrease once under

the DAN's treatments.

DAN doc may ask if you would not mind also doing some test for Gluten

sensitivities if any pimple like continues once treatments are done as

this could be some wheat sensitivity involved.

There are many safe ways to treat yeast overgrowth.

Under the links file directly from the listserve under biomed

intervention I might of posted some information on Yeast overgrowth.

Please do not get overwhelm with any of the information because it

could happen when undergoing some of the treatments and dietary

intervention if recommended as it is addressing one challenge at a

time as healing the gut issues or the intestinal flora and of course

being see under the DAN physician or medical physician.

Hope something helps, I know everyone is different in many ways so

prayers that there will be something to help . He has come along

way to where he is at since I have join the list.

Oh, if there are any type of pus like pimple for now and are

interfering, we use to use some type of an OTC antifungal cream

recommended by his medical physician, something like Lotrimin (sp?),

there are even some other ointments similar to it less expensive,

found at department stores or drug stores.

Please ask the physician first before applying it though.

Irma,20,DS/ASD

>

> We just had some testing done at Great Plains and it showed, what I

> interpret it to be, yeast overgrowth. I will be making an appt with

> 's DAN Dr. but thought I would tap your brains.

> Anyone else experienced this a what was the treatment? is on a

> constant low dose antibiotic due to skin issues, I'm sure that isn't

> helping the yeast situation. Anyone had skin conditions like boils or

> large acne on the buttocks and upper legs clear up after treatment for

> yeast?

>

> Help, inquiring minds want to know.

> Thanks in advance,

>

> Karyn, Mom to , 19

>

[Guest guest]

More to share.

http://www.autismspot.com/videos/channel/biomedical

Fungus and Yeast Issues

Identifying and alleviating fungus or yeast issues.

Irma,20,DS/ASD

[Guest guest]

I should have mentioned that has been gf/cf for several years

and currently takes acidophillus.

A light bulb did go off about the sugars though. I have always

seriouly limited sugars but I know he gets juice on a reg. basis at

his supported living arrangement.

And yes, Irma, has come a long way. It certainly hasn't been an

easy journey or comfortable. But, overall he is doing well. There I

go jinksing it. LOL

Karyn

> >

> > We just had some testing done at Great Plains and it showed, what

I

> > interpret it to be, yeast overgrowth. I will be making an appt

with

> > 's DAN Dr. but thought I would tap your brains.

> > Anyone else experienced this a what was the treatment? is

on a

> > constant low dose antibiotic due to skin issues, I'm sure that

isn't

> > helping the yeast situation. Anyone had skin conditions like

boils or

> > large acne on the buttocks and upper legs clear up after

treatment for

> > yeast?

> >

> > Help, inquiring minds want to know.

> > Thanks in advance,

> >

> > Karyn, Mom to , 19

> >

>

[Guest guest]

Sorry guess I forgot or ask you if was on a GFCF diet.

May I ask who monitors him while undergoing the dietary intervention

and supplements? Does the Medicaid help pay for any of the diet or

supplements? Sorry for the questions.

It is just that this is all one of those issues informing the

Texas Dept. of Disability & Aging of several who benefit from the

biomedical approach. Especially since is suppose to be on one

of the top Medicaid Waiver Programs and they would like to know

everything on his Medical visits and supplements so that they could

assist with what they can.

I would love for them not have known but many know and are

aware of his set backs and his latest updated progress. I just did not

want to stir any red flags.

Just amazed on the accommodation with what you had mentioned for

where he is living at. Are they updated with the biomedical approach?

I am just impressed, really, do not hear much of this as I have been

told by several HCS agencies that they will accommodate to some

extreme but most of the expenses have to be by family or wherever the

extra finance comes from.

This is one of the reasons why I decided to become 's

Care Provider so that he may continue living at home while I am around

to teach him as much as possible.

OMG! LOL, yes no jinxing when there is at least one hurdle tackled.

It will of course always be better than the past, one hurdle at a time

as we just go with the flow.

I look forward hearing an update when is seen by the DAN physician.

Irma,20,DS/ASD

>

> I should have mentioned that has been gf/cf for several years

> and currently takes acidophillus.

> A light bulb did go off about the sugars though. I have always

> seriouly limited sugars but I know he gets juice on a reg. basis at

> his supported living arrangement.

> And yes, Irma, has come a long way. It certainly hasn't been an

> easy journey or comfortable. But, overall he is doing well. There I

> go jinksing it. LOL

>

> Karyn

[Guest guest]

Karyn,

We experienced the same problem about two years ago and even now

testing done in Oct. showed still an overgrowth of yeast. I believe I

saw a post that said 'Pro-biotics', and what worked best for my son

before and even now is The Powdered Strawberry mixed with Acidopholis

(sp?) Milk. We were told that it was the best natural way to go with

the Acidopholis as it is a natural pro-biotic. Because Little

(we should start calling him Big ) can detect almost anything

added to his food I initially spent the better part of a month at my

ex's house trying to find a way to get him to take it. He as well had

to take antibiotics due to a positive Lyme Titer. After 90 days of

treatment of that we ended up mixing the powder into cultured yogurt

and freezing it into popsicles. He munched those down, we also used

the Acidopholis (I know I'm spelling that wrong) milk to make

strawberry milkshakes.. more like an Icee as we used Ice instead of

Ice Cream. He would drink some of that and then I got some strawberry

syrup and used that to mix with it and he would drink that right up.

Right now he's doing the cultured yogurt pops again. It has really

made a big difference because it helps reduce the 'sludge' in the

intestines - he seemed to have a better overall appearance after doing

a 60 day treatment last time. This time I haven't seen him yet but

will in a few weeks before Christmas.... Best of luck to you.

E. , Sr.

>

> We just had some testing done at Great Plains and it showed, what I

> interpret it to be, yeast overgrowth. I will be making an appt with

> 's DAN Dr. but thought I would tap your brains.

> Anyone else experienced this a what was the treatment? is on a

> constant low dose antibiotic due to skin issues, I'm sure that isn't

> helping the yeast situation. Anyone had skin conditions like boils or

> large acne on the buttocks and upper legs clear up after treatment for

> yeast?

>

> Help, inquiring minds want to know.

> Thanks in advance,

>

> Karyn, Mom to , 19

>

[Guest guest]

Irma and ,

Thanks for the responses. At 's first group home three of the

four guys had autism so they were quite well informed. His failed

placement, even though they were a program for people with autism,

was lousy and uninformed. His current home is a supported living

arrangement so it is just and a housemate in a ranch style home

with 24/7 staff. 1 on 1 staff part of the day or evening so the guys

aren't stuck at him because they are both quite independent thinkers

when it comes to where they are going and what they are doing in the

community. This type of placement is not the norm in our area. Group

homes of 4 to 8 beds are the norm. and his housemate both ended

up together and in this setting because 's group home failed him

and his housemate was not managing in a group home either.

's placement and care is funded through a waiver. He now has

what is termed a fully funded slot so the state and feds foot the

whole bill. Well, to make life complicated the waiver doesn't pay for

room and board which is what his SSI and supplemental is supposed to

cover but our county has to provide some assistance during the high

heating cost months.

is not our financial responsibiltiy since he turned 18 years

old. We are his guardians so we manage his finances. As his parents

we still buy him things but legally the county must make sure his

needs are met without our financial input.

His DAN Dr. is paid by his medical assistance. I am fairly sure they

are not reimbursing one iota of what they should for the time this dr

spends with us but he is the Dad of a child with autism so devotes

part of his practice to this.

I am really jumping around. has a set amount that can be paid

through his waiver. His supplements are paid for through this. I am

hoping for an in-home testing device for his coagulation time (has to

do with his artificial heart valve).

, my heart goes out to you with your son's current situation.

I will never forget the school that came to a meeting with a lawyer

and plans to do an involuntary commitment on . Now he is going

wonderful in school.

has no problem taking meds or supplements. We do acidophillus

but I'm wondering if we will have to increase it. Of course I found

out that his thyroid meds need increasing which will throw off his

other meds. ARGGGG

Karyn

> >

> > We just had some testing done at Great Plains and it showed, what

I

> > interpret it to be, yeast overgrowth. I will be making an appt

with

> > 's DAN Dr. but thought I would tap your brains.

> > Anyone else experienced this a what was the treatment? is

on a

> > constant low dose antibiotic due to skin issues, I'm sure that

isn't

> > helping the yeast situation. Anyone had skin conditions like

boils or

> > large acne on the buttocks and upper legs clear up after

treatment for

> > yeast?

> >

> > Help, inquiring minds want to know.

> > Thanks in advance,

> >

> > Karyn, Mom to , 19

> >

>

[Guest guest]

Thank you for sharing this Karyn.

I really hope that there is a way to educate the Texas Medicaid

committees on how it is being documented for those who suffer from

multiple food allergies and benefit from dietary supplements.

This place does sound like a good fit, I know never perfect but they

are addressing the areas where it involves some of the health issues

in alternative medical approach once all the other health issues are

taken care of.

Plus managing to have the waiver funds assist here, this is wonderful.

Hope I do not step out of bound here asking this question, where is

this place? Sounds like some of our state agencies could learn from

it. Appreciate it very much, this is one of my mission here on

figuring out how to get this ball rolling first while living at home

in regards to having the Texas Disability Agency aware on how to go

about it as they are trying to assist 's biomedical approach

treatments which I was told where it will not stir any red flags.

Seems like the agency is under could probably contact where

is at and inquire how they go about it. Of course not going to

jump for joy as it is baby steps here especially when Federal funds

are involved.

Sorry for rambling, as I had mentioned where lives, this is the

first time to hear where accommodation when an alternative medical

approach is being implemented.

Really thank you for sharing some of this, one can learn from other

states.

Oh no, not his thyroid, at least you are staying on top of things

which I also enjoy reading when you post of your visit with .

, glad y'all were able to figure out something for your son and

his mom is also involved keeping you updated when you are not around.

Prayers for all you do and thensome taking your mission that extra

mile for many who are on this journey, right along similar to your

challenges,thank you.

Irma,20,DS/ASD

>

> Irma and ,

> Thanks for the responses. At 's first group home three of the

> four guys had autism so they were quite well informed. His failed

> placement, even though they were a program for people with autism,

> was lousy and uninformed. His current home is a supported living

> arrangement so it is just and a housemate in a ranch style home

> with 24/7 staff. 1 on 1 staff part of the day or evening so the guys

> aren't stuck at him because they are both quite independent thinkers

> when it comes to where they are going and what they are doing in the

> community. This type of placement is not the norm in our area. Group

> homes of 4 to 8 beds are the norm. and his housemate both ended

> up together and in this setting because 's group home failed him

> and his housemate was not managing in a group home either.

> 's placement and care is funded through a waiver. He now has

> what is termed a fully funded slot so the state and feds foot the

> whole bill. Well, to make life complicated the waiver doesn't pay for

> room and board which is what his SSI and supplemental is supposed to

> cover but our county has to provide some assistance during the high

> heating cost months.

> is not our financial responsibiltiy since he turned 18 years

> old. We are his guardians so we manage his finances. As his parents

> we still buy him things but legally the county must make sure his

> needs are met without our financial input.

> His DAN Dr. is paid by his medical assistance. I am fairly sure they

> are not reimbursing one iota of what they should for the time this dr

> spends with us but he is the Dad of a child with autism so devotes

> part of his practice to this.

> I am really jumping around. has a set amount that can be paid

> through his waiver. His supplements are paid for through this. I am

> hoping for an in-home testing device for his coagulation time (has to

> do with his artificial heart valve).

> , my heart goes out to you with your son's current situation.

> I will never forget the school that came to a meeting with a lawyer

> and plans to do an involuntary commitment on . Now he is going

> wonderful in school.

> has no problem taking meds or supplements. We do acidophillus

> but I'm wondering if we will have to increase it. Of course I found

> out that his thyroid meds need increasing which will throw off his

> other meds. ARGGGG

>

> Karyn

[Guest guest]

Irma,

We are in Wisconsin. 's program really isn't unusual here. Your

Medicaid committee should be contacting the people at our state human

services dept. We have specialists at the state level that manage the

waivers and interpret the regs.

I think our county is pretty progressive in some ways. There is at

least one group home in our county that has a sensory room. I'm

working on 's housemanager on this idea for and his room

mate. Their living room is starting to turn into one. There is a non-

profit group in our area whose mission is helping the elderly and

disabled to remain in the community. I'm sure I could get them to

build the room.

,

On the issue of forgiveness, I have struggled with forgiving people

from various agencies that have made life unbearable (I can't find a

word that truly describes the pain) at times in the last six years. I

am/was generally an optimistic, positive person but I have been

changed by these battles. I have been the only one in a whole room

full of people who cared if lived out his life in a locked unit

somewhere or enjoying his life in the community. I feel like I have

PTSD. OK enough, if you have been there you get it, if you don't get

it then thank your lucky stars and pray you never do.

Anyway, I pray for the ability to forgive these people and let go of

the anger. I work hard at it but the anger is still there. I have

been changed by these experiences.

Karyn

> >

> > Irma and ,

> > Thanks for the responses. At 's first group home three of

the

> > four guys had autism so they were quite well informed. His failed

> > placement, even though they were a program for people with

autism,

> > was lousy and uninformed. His current home is a supported living

> > arrangement so it is just and a housemate in a ranch style

home

> > with 24/7 staff. 1 on 1 staff part of the day or evening so the

guys

> > aren't stuck at him because they are both quite independent

thinkers

> > when it comes to where they are going and what they are doing in

the

> > community. This type of placement is not the norm in our area.

Group

> > homes of 4 to 8 beds are the norm. and his housemate both

ended

> > up together and in this setting because 's group home failed

him

> > and his housemate was not managing in a group home either.

> > 's placement and care is funded through a waiver. He now has

> > what is termed a fully funded slot so the state and feds foot the

> > whole bill. Well, to make life complicated the waiver doesn't pay

for

> > room and board which is what his SSI and supplemental is supposed

to

> > cover but our county has to provide some assistance during the

high

> > heating cost months.

> > is not our financial responsibiltiy since he turned 18

years

> > old. We are his guardians so we manage his finances. As his

parents

> > we still buy him things but legally the county must make sure his

> > needs are met without our financial input.

> > His DAN Dr. is paid by his medical assistance. I am fairly sure

they

> > are not reimbursing one iota of what they should for the time

this dr

> > spends with us but he is the Dad of a child with autism so

devotes

> > part of his practice to this.

> > I am really jumping around. has a set amount that can be

paid

> > through his waiver. His supplements are paid for through this. I

am

> > hoping for an in-home testing device for his coagulation time

(has to

> > do with his artificial heart valve).

> > , my heart goes out to you with your son's current

situation.

> > I will never forget the school that came to a meeting with a

lawyer

> > and plans to do an involuntary commitment on . Now he is

going

> > wonderful in school.

> > has no problem taking meds or supplements. We do

acidophillus

> > but I'm wondering if we will have to increase it. Of course I

found

> > out that his thyroid meds need increasing which will throw off

his

> > other meds. ARGGGG

> >

> > Karyn

>

[Guest guest]

Wanted to make sure I thank you greatly on your suggestion as I am

part of the committee board with the Bexar MRA which branched off with

the MHMR center here. Seems like I will make sure to follow through

here. Really appreciate it very much and prayers that will feel

better with the help of the DAN physician.

Been commuting out at the clinic is receiving his treatments

these past 2 days. I am just amazed some of the other family and I

observe how much progress he has shown as he undergoes the

IV Chelation, Ozone, PK, supplements and of course following his diet

the best I can and the latest lab results are showing some decrease in

certain areas like metals, etc..

is dx's with Mitochondrial dysfunction, knock on wood no

recurrent infections, can't remember if I have mentioned ruled out

Lyme Disease and no test needed to see if he was affected with

Leukemia which several medical physicians kept aiming towards, his

white blood count have shown some tremendous improvement.

I have made friends with several around the community as one

particular owner who have open a small Health like cafe/bakery who

also has a 20 y/o son with DS & AU and are pretty aware of what to

make for him which is nice as his son is on the Gluten diet and this

is why they had begun their business as they noticed a need, it was

really just going to be a curio art type.

They actually make GF/CF Choc. Ding Dongs which loves.

It is limited due to the sugar, no allergies towards choc or cocoa

which the latest lab results have shown, it does contain eggs too

which is a no no but so far a-ok.

This is why I support the alternative biomedical approach and will

probably plan on attending as one of my Dear friends here locally has

signed up to host a Community Discussion as President-elect Obama has

made it clear that health care reform is one of his top priorities.

That's why the Obama-Biden Transition is asking people to give their

own thoughts and ideas for how to fix the system at Health Care

Community Discussions all across the country.

Apologies getting carried away chit chat.

My Best,

Irma,20,DS/ASD

>

> Irma,

> We are in Wisconsin. 's program really isn't unusual here. Your

> Medicaid committee should be contacting the people at our state human

> services dept. We have specialists at the state level that manage the

> waivers and interpret the regs.

> I think our county is pretty progressive in some ways. There is at

> least one group home in our county that has a sensory room. I'm

> working on 's housemanager on this idea for and his room

> mate. Their living room is starting to turn into one. There is a non-

> profit group in our area whose mission is helping the elderly and

> disabled to remain in the community. I'm sure I could get them to

> build the room.

> ,

> On the issue of forgiveness, I have struggled with forgiving people

> from various agencies that have made life unbearable (I can't find a

> word that truly describes the pain) at times in the last six years. I

> am/was generally an optimistic, positive person but I have been

> changed by these battles. I have been the only one in a whole room

> full of people who cared if lived out his life in a locked unit

> somewhere or enjoying his life in the community. I feel like I have

> PTSD. OK enough, if you have been there you get it, if you don't get

> it then thank your lucky stars and pray you never do.

> Anyway, I pray for the ability to forgive these people and let go of

> the anger. I work hard at it but the anger is still there. I have

> been changed by these experiences.

>

>

> Karyn