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Hi,

 

My name is and together with my husband, Greg, we have the pleasure of

parenting 5 children.  Our eldest son,PJ, is turning 18 next week; he has Down

Syndrome and some very difficult behavioral issues that are out of the norm

for Down Syndrome. Our eldest daughter is 11 and is still apparently suffering

the ill effects of the first 10 months of her life in an orphanage.  She began

around 2 years old with a Dx of PDD-NOS and now hangs out on the ASD as

Asperger's.  Any ASD Dx for her is the least of her problems as mood

disorder, disordered attachment, and math learning disability top the stress-er

list.

Our other children 10 year old son, 9 year old daughter,and 5 year old son are

relatively " typical " ..  Two of these guys also spent the beginnings of their

life in orphanages and suffered no ill effects.  Go figure.

I have joined the list because we are trying to explore adult options for

our eldest.  I'm curious what things are like other places.  I fear that there

is nothing here in NE Tenn except beautiful mountains. 

 

So, I'm curious about other locations- things like the waiting list for services

and what those might be when and if you get off the list.  Here there is little

hope of PJ getting enough state funding for a supported living situation and not

much employment options, and without us doing it- no recreation. My husband and

I both like to keep busy, but we are wearing out on parenting PJ and his

confrontational- augmentative manner is sapping the joy out of parenting out

other children.  

 

If this topic has been discussed in the past I'd be glad to read the archives if

I had any clue as to how to find them.  My competency on the computer is

limited.

 

 

Thank you,

 

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