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In a message dated 2/17/01 12:37:33 PM Eastern Standard Time,

ROBLISFISH@... writes:

<< Your saw my post because I e-mailed it to you directly. Is there a way

that

messages are posted to the whole group??

>>

,

You sent both of your posts to the whole group. :-) We found Seth's

autism when we went to the psych for eating problems. LOL As far as school

placements, Seth will just be leaving preschool this coming fall, and I

haven't found a class I feel comfortable with. Seth is in an autistic

program, 6-1-1 class. I agree, even after 3 years of dealing with it, it is

still overwhelming! I think parents of older kids would agree at times too.

Sounds like you have a wonderful family. Wish I had some magic words for

you, but I am finding the more I learn, the dumber I get. There is so much

out there and trying to make the right choice is hard. I have resolved to do

what *I* think is best, and if it doesn't work, I will try something else.

Oh, if you see the return address as ds/autism, that is the group. e-groups

was much easier than yahoo! LOL Glad to have you aboard !

Gail

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Your saw my post because I e-mailed it to you directly. Is there a way that

messages are posted to the whole group??

I am and am Mom to Matt- 12 (almost 13-wow!), Allie- 11, AJ- 3 with

DS and Autism and Lizzie-2. Our wonderful dad and husband is Rob!

We found about AJ's autism when we went to a dr. to talk about dry skin. He

asked us other questions and then out of the blue said he had autism. We

did get a second opinion to confirm.

This came in December. It has been a bit of a roller coaster ride. We were

1 week before our first IEP. There was a lot of questions to if the

preschool we picked out, which he was starting to go in Jan., was the right

choice. For me, I knew it was going to be a big transition wherever he went.

He had been on home based services. The school said they could handle the

diagnosis. Some people thought he should be in a " behavior " program. It

was/is all so overwhelming. We decided to try out the original choice and

see how he did. His home based OT works there as well, she is a big sensory

proponent and has been doing sensory therapy with him for 6 months.

I am still not sure it has been the right choice. Unfortunately his

attendance has been poor because he was sick 1 week with the stomach

virus--the poor kid was the first to get it in our family, and still had it

when everyone else recovered. Now he has a horrible head cold and ear

infection. It has been close to a week already and nothing seems to be

touching it. Our dr. said we need to ride it out...easy for him to say

withal child who can't/won/t blow his nose and can't stand to have anyone

anywhere near his nose.

But we are committed to have him finish out until summer and do some

investigation of other schools until then. It is so hard..everyone says

they have the best approach!

Thanks for the e-mail! Talk to you soon.....

Re: welcome

> In a message dated 2/17/01 10:22:02 AM Eastern Standard Time,

> ROBLISFISH@... writes:

>

> << Help! I am a new subscriber to the group. I sent back my confirmation

and

> got a welcome note. I then sent a note out introducing myself, and my

> family, etc. But I can't see where that went, nor have I gotten any

> responses. I am getting a lot of e-mails that are going back and forth

to

> people, however, I am guessing the messages get posted elsewhere. >>

>

>

> Glad I saw your post ...and welcome! :-) I hope you will find this

> list worth the wait. LOL How about another introduction so we can get to

> know you.

> Gail

> Gail, Mom to; Seth-5 ds/asd/pdd/pica, jo-8, Becky-10, -23,

Jen-25,

> Grandma to Errick-4

> and wife to -my hero

>

>

>

> http://www.onelist.com/community/

>

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  • 7 years later...

Welcome Delia. What does a inclusion facilitator do? I know what a

facilitator does I just have not heard the term inclusion.I welcome

anyone with knowlege that can possible help my son.Dr. Capone

and KKI in Baltimore land has wrote articles on getting the dual

dx and why it is so hard to get. My son was 9 yrs old before we got a

true dual dx. I knew after he turned 3 yrs old. Does your brother

have autism as well as DS? Cyndi B

>

> Hi,

>    My name is Delia and I am  new to the group.  I have a brother

who has Downs and a son who is developmentally disabled.  I have been

involved in Special Education for 30 years as a sibling, parent and

teacher. I come to the group because I am an inclusion facilitator in

a northwest suburb of Chicago.  In recent months, I have noticed an

increase in students who have the dual diagnosis of Downs and

Autism. Teachers have come to me asking for help on how to service

their students.  It has become apparent that I need to know more to

help them.  In my role as an inclusion facilitator, I also want to

help the children enjoy the life they deserve in every aspect. 

Having lived most of my life being involved with children with

special needs, I know how important this is. I am also a professor at

a local university, teaching special education to graduate students

who will be getting a degree in special education.  I feel that it is

> important for them to know about students with dual diagnosis. I

hope that I will be able to offer the group knowledge that I've

gained from years of experience while I become more informed about

children with the dual diagnosis of Downs and Autism.

>  

>  

>  

> Dr. Delia J. Ross

>

>

> Inclusion Facilitator-School District 300

>                    and

> Aurora University-Dept. Special Education

>

>

>

>

>

>

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