Re: messy personal stuff/

[Guest guest]

My suggestion, if you do not want to be part of the family of ds-asd and

grieve with us and rejoice with us - fine! Read the archives.

Had it not been for Glen Vatter - one of the earliest people on this list

who shared the agony he and Dot were going thru (and surviving), I would not

have found the strength to live thru the earlier trials with my son. I

heard their pain as athey made difficult decisions, and how it affected

their family life. Yes, it was very personal. But it helped me when I

needed that kind of help.

TYou are not interested. That is your privilige. You are still welcome

here. Even though I disagree with you - you are still welcome here.

And just for the record - without political action, you and your child will

be in a very bad way as he grows and needs moare and different services

outside the family home. Without political action by those of us ahead of

you, there will be NOTHING!

> Ok,

>

> I have been a lurker for awhile, reading and ignoring most of what is

> posted. In MY opinion, there is more " social " information being

> passed here than " meat " information. I can understand that some of

> you have been on this group for 10 years or so and you have developed

> personal relationships with others. I applaud that. HOWEVER, as a

> new member I am looking for support, and information, not personal

> updates. I am sorry that some posters have been going through

> rough " personal " times and I pray everyday that my plate does not get

> any fuller with " personal " issues. I just feel that personal updates

> should be just that, personal. I apologize if I offend anyone for

> saying this but if this is suppose to be a support group for parents

> that have a dual diagnosis of DS and ASD shouldn't that be the only

> information that we share? Things that are relavant to our issues,

> like the discussions of what works in school, where are children are

> now, what attorney or DAN doctors are in our area? I am not an EXPERT

> at all I came here looking to find the parents that are the EXPERTS

> but instead (NO OFFENSE INTENDED) I find myself reading about

> personal updates and peoples political views.

>

> I as a parent of an 8 year old do NOT have the experience that some

> of you with children that are in their early teens/twenties have,

> give me a break, share with me how you made it work, don't make me

> hit the same stumbling blocks you did when your child was my child's

> age.

>

> I strive to make a difference in the life that makes it easier for

> the people coming behind me. Isn't that what this is supposed to be

> for?

>

>

>

--

Sara - Life is a journey- we choose the path.