Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 > > Has anyone on our list heard anything about this? Cyndi B > If you find the article/news on this please send it my way, ok. I have heard something similar to it but with the remarkable progress going on these months compared to the awful experience of what we had gone through, you bet I am going to write and call to share our story on the alternative biomed intervention. It is politics, there is a lot going on. Welcome to the world when your child is dx'd with some disability, whether we like it or not, always have to voice our concerns. This is what I have been busy lately, another chapter. One of the mistakes that some of the DAN physicians make is mentioning the word " cure " so this stirs red flags and of course then there are some DAN doc's that do more harm than good. This article is in regards to the treatment center attends. Here's the link http://www.autism-watch.org/reports/casd/overview.shtml Irma,20,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Irma, I just read that article and it is hogwash. If I did not see the difference in my so with my own (2) eyes then maybe I would feel that way. But everything I have been doing for since April is helping him feel better, and because of this I am thank ful. I will continue to do biomedical because the regular MD. community has failed my child to many time to count. Sign me up for where we complain. I am glad that is improving and it is because of you that it is happening. Some people have nothing else better to do with their lives then try to disrupt the lives of others. I saw the legal action on another website but no legal letters as of yet. Just discussion about the ARI and what is taking place. Thanks for sending me the link. Cyndi Burns > > > > > > Has anyone on our list heard anything about this? Cyndi B > > > > If you find the article/news on this please send it my way, ok. > > > I have heard something similar to it but with the remarkable progress > going on these months compared to the awful experience of what we had > gone through, you bet I am going to write and call to share our story > on the alternative biomed intervention. > It is politics, there is a lot going on. > Welcome to the world when your child is dx'd with some disability, > whether we like it or not, always have to voice our concerns. > This is what I have been busy lately, another chapter. > > One of the mistakes that some of the DAN physicians make is mentioning > the word " cure " so this stirs red flags and of course then there are > some DAN doc's that do more harm than good. > > This article is in regards to the treatment center attends. > > Here's the link > > http://www.autism-watch.org/reports/casd/overview.shtml > > Irma,20,DS/ASD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 This is in regards to the CARE clinics, not in regards to the DAN doctor, but still it is addressing about the Biomedical intervention. Please keep me posted should you hear more in regards to the subject line. At the end of the article it says: Be Wary of CARE Clinics and the Center for Autistic Spectrum Disorders (CASD) Barrett, M.D. CARE Clinics and CASD offer services that are unsubstantiated and lack a plausible rationale. I am very skeptical of their activities and would like to hear from parents of autistic children who have used them. I can be reached at . All information provided to me will be confidential. I have missed out on attending several of the sessions that the Texas Health Freedom group have held out at the capitol due to addressing some of the adult issues out at several of the committee meetings which is also part of my challenges these days. Another arena where I also have to tackle due to one of the Medicaid Waiver is under and is an adult. There is a proposal of decreasing funds for some of us parents/caregivers who wish to keep our individuals living at home and become Care Providers or seek alternative avenues with the residential settings of choice without being financially penalized. I have until the end of this year to write to the Texas Legislative but having to meet deadlines with other issues going on. On the computer with other Texas online friends as this is our via communication to stay on tabs with one another. Here is one of the stories related to it, when you have a chance to read it. Funding cuts put foster-care businesses in peril http://www.dallasnews.com/sharedcontent/dws/news/texassouthwest/stories/DN-foste\ rcuts_02met.Central.Edition1.113b4a0.html Plus along with the Texas issues going on with the Waiver funds, here is one of the latest that some of us from the Community Now! Organization are addressing when it comes to state schools and our Adult support group (TAIID) have become busy with these days. I have been busy informing the media of one the candle vigil we will have out at the state schools next week and so far 2 responses, no promises but all good should it happen. WHEN you have a chance to read this article, this is here in Texas. Letter: DOJ Findings Of State Schools http://www.click2houston.com/download/2008/1202/18190454.pdf or click under the Houston report site and scroll down to access it. http://www.click2houston.com/hot-button/18190486/detail.html Just staying on top of things due to the challenges thrown our way and have found some remarkable routes where has benefit from, so of course seek action where needed and I know I am not alone. Here is more in regards to making sure not to miss out like when receiving this information on the dietary supplements, here we go again, another challenge to tackle. A little of the information from the National Health Federation: SHAKING DOWN THE CROWD FOR SHEKELS †" WHAT IS REALLY GOING ON WITH THE FDA By Tips President, National Health Federation December 1, 2008 You would have thought Pearl Harbor was being bombed. FDA SAYS " NO SHIPMENT ACROSS STATE LINES IF STUDIES ABOUT SUPPLEMENT HAVE EVER BEEN PUBLISHED! " To read more about this threat, we had to skip first across the, as usual, prominent DONATION button and scan down the page, but we were able to make out that this organization claimed that the end might be near for dietary supplements unless action was taken now. Because of this organization's previous and current exaggerated claim to have been responsible for the placement of certain saving language in the FDA Amendments Act of 2007 ( " Nothing in this title (or an amendment made by this title) shall be construed to affect-- (1) the regulation of dietary supplements under the Dietary Supplement Health and Education Act of 1994 (Public Law 103-417 " ), when in fact the language was already in place in the bill at the time of the organization's call for action, we raised yet another collective eyebrow at its most recent cries of calamity. For the average person receiving these sendouts, and hoping to be factually informed, it is impossible to know, without extensive research, what is factual and what is not. Of course, through our attorneys and lobbyist, we were aware that the Food and Drug Administration (FDA) was requesting comments about implementing a 2007 law that prohibits interstate shipment of foods with drugs in them or for which substantial clinical trials have been conducted and published. And although the National Health Federation is often at odds with the dietary-supplement and health-food industry trade associations, we saw that those associations had submitted well-researched and well-reasoned comments, with which we generally agreed, to the FDA on the issue. Here is what is really happening. The Facts Last July, the FDA requested comments be submitted..... Hope you could find the article here. National Health Federation http://www.thenhf.com/ For more information on the FDA click here- http://www.thenhf.com/fda.html Lots going on and of course sending it over to our president elect as we have met up with some of the Texas Senators. January will be more on the Legislature meetings so will make sure to address what I can. Gee, with the battles dealing with Special Education sure gives the push for when they age out of the school system to the long term care. Irma,20,DS/ASD > > Irma, I just read that article and it is hogwash. If I did not see > the difference in my so with my own (2) eyes then maybe I would feel > that way. But everything I have been doing for since April is > helping him feel better, and because of this I am thank ful. I will > continue to do biomedical because the regular MD. community has > failed my child to many time to count. Sign me up for where we > complain. I am glad that is improving and it is because of > you that it is happening. Some people have nothing else better to do > with their lives then try to disrupt the lives of others. I saw the > legal action on another website but no legal letters as of yet. Just > discussion about the ARI and what is taking place. Thanks for sending > me the link. Cyndi Burns Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Here is the original article that started it all in my case as my son has been making tremendous progress compared to what he has been through where all conventional doc's he is seen by where unable to detect on what was going on with what he was suffering from but yet knew there was something going, just could not pin point it. This center is not a quack, can vouch for it and many other families to who I am still sending this information to, to seek action. Consumer Health Digest site: http://www.consumerhealthdigest.com/ Consumer Health Digest #08-48 > > November 25, 2008 > > Current # of subscribers: 11,707 > > Consumer Health Digest is a free weekly e-mail newsletter edited by > Barrett, M.D., and cosponsored by NCAHF and Quackwatch. It > summarizes scientific reports; legislative developments; enforcement > actions; news reports; Web site evaluations; recommended and > nonrecommended books; and other information relevant to consumer > protection and consumer decision-making. > Autism clinic criticized. > > > Autism Watch has posted a detailed investigative report about CARE > Clinics, of Austin, Texas, and its " nonprofit " twin, the Center for > Autistic Spectrum Disorders (CASD). CARE 's diagnostic evaluations, > which cost at least $9,000 per patient, feature genetic tests that > supposedly serve as a guide to " detoxification " and " correction of > biomedical imbalances. " However, the recommended tests and treatments are unsubstantiated and lack a plausible rationale. [barrett S. Be wary of CARE Clinics and the Center for Autistic Spectrum Disorders (CASD). > Autism Watch, Nov 25, 2008] > http://www.autism-watch.org/reports/casd/overview.shtmlCARE's medical director, Jesus Caquias, M.D., has been disciplined twice by the Texas Board of Medicine. > > http://www.casewatch.org/board/med/caquias/2007_order.shtml > Concerns re nominee for HHS Secretary. > > > > Tom Daschle, who is President-Elect Barack Obama's nominee for Secretary of Health and Human Services, provided strong support to unscientific practitioners while serving in the U.S. Congress from 1979-2003. During several sessions, he was a prime supporter of " access to treatment " legislation intended to weaken state licensing boards. A 1997 version, for example, would have given individuals the right to have nearly any desired treatment and permitted practitioners to provide any treatment that would not pose an " unreasonable risk. " > > http://www.quackwatch.org/07PoliticalActivities/amta.html Although > couched as efforts to preserve patient freedom, such bills would thwart regulation of physicians who engage in quack practices such as chelation therapy. Daschle also spearheaded the passage of laws that increased Medicare payments to chiropractors and forced the U.S. > > Veterans Administration to add chiropractic services. Quote Link to comment Share on other sites More sharing options...
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