Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 I have to say this group has been a life line for me. I has been wonderful. Having a son diagnosed with something I had never heard of before was just devastating to me at the time. The neurologist was away when the results came back and he never returned my call. He was waiting for me to make an appt to see him but I didn't know that. We never did go back and see him but we have moved on to specialists who can help the CMT diagnosis and people from this group have helped me go in the correct direction. This group has been wonderfully supportive and answered all my questions and given me feedback on many an issue. Thanks so much, I really feel like a have many a friend out there! Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 On this 1st day of September, you are reminded to focus on " All That Is Positive " each and every day. Whether an inner thought, an outward motion, doing something good for someone and not telling them, creating more awareness of CMT among your non-CMT friends, good experiences with schools, topics are endless. Sure you can post other topics, but do keep in mind our focus here. And take a look at our new design on the main page! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Thank you for that Gretchen. I appreciate that positive healing and positive momentum is always your focus. It was a welcome post following some fairly negative and angry sounding posts that I was just lamenting over. Glad you're here to keep redirecting that energy to a better place. No matter what our issues or degree of affectedness, martyrdom only worsens our situation. Looking at it from the other direction (the glass half full, if you will)only improves our situation. Not that it's always easy, I get that. But I think that is partly what is about. Love the new homepage graphics! But there are no high arched footprints that we are all so familiar with! LOL. Holli > > On this 1st day of September, you are reminded to focus on " All That Is Positive " each and every day. Whether an inner thought, an outward motion, doing something good for someone and not telling them, creating more awareness of CMT among your non-CMT friends, good experiences with schools, topics are endless. > > Sure you can post other topics, but do keep in mind our focus here. And take a look at our new design on the main page! > Quote Link to comment Share on other sites More sharing options...
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