foot pain

[Guest guest]

>snip

I've heard people taking Neurontin for neuropathic pain - anybody care to

share how that works for them? I feel like if I could get this one symptom

under control, all the others would be so much easier to deal with. There

has to be SOMETHING one can do

I take neurton, for seizure control and never thought it was controlling

pain. but I guess it is, because I no longer have the type of pain you are

talking about. my pain was terrible and I thought all the antibiotics

cleared that up. but, I realize I stopped having the severe pain after

starting the neurontin. I still have terrible, awful, headaches. I am scared

to death of these as they render me useless and my neuro will only prescribe

florinal (spelling?, Pronunciation?) anyway, this has a lot of caffeine and

makes sleeping impossible and doesn't really help the headache.

roe

[Guest guest]

Deb,

Remember how young Crenna was on that show!

Look at him now.....then look in the mirror.....Yeowwww, what happened to

us!????

Anyway, Neurontin has helped me tremendously with my foot pain, I

understand some people get drowsy from it but I never had that experience.

I am on a pretty high dosage 2400mg daily, started with I think about 600mg

way back when. At one time I had heel spurs as well as the bottom of the

foot pain so I had a double whammy, I did get a cortisone shot and that

helped that a lot. But as for limping around, it is either the neuropathy

or the arthritis stiffness that has me hobbling like Walter Brennan....now I

know why he was so cranky on the show!

Marta

----- Original Message -----

From: " Deb " <dmthompson4@...>

>

> Ha! I do remember watching the Real McCoys as a little girl. And I can't

> help but think of Grandpa with every step I take. Guess I got a " git in

my

> hitch " .

> I've heard people taking Neurontin for neuropathic pain - anybody care to

> share how that works for them? I feel like if I could get this one

symptom

> under control, all the others would be so much easier to deal with. There

> has to be SOMETHING one can do!

>

> Ouch, Ouch, Ouch!

>

> NurseDeb

[Guest guest]

Hi,

Was anyone's foot pain first dx'd as " plantar fascitis " ? (sp?) That was

the very first symptom I had of anything going wrong. I did PT for a

while, and orthotics do help, but it comes back if I walk a lot. I have

heard anecdotally that Lyme patients often get heel pain. I had always

thought this was isolated -- just something that happened to me (in my

20s!) from wearing Keds sneakers, w. no support. I'd be very interested

to hear if anyone else had that dx before (or during) Lyme.

Thanks, and healing to all,

Marie

[Guest guest]

Marie,

Yes, plantar fascitis is another name for heel spur. Mine began about a

year after my tick bite, I got a cortisone shot and it helped immediately,

once in awhile I can feel the pain if I step down a certain way, but for

awhile there it was sheer agony, especially since the other foot hurt too,

but not in the heel so much. Have you ever seen an xray of a heel spur? It

looks just like a hook. Ugly! I have heard of several other patients with

LD suffering with this. Post this question on a larger forum, you will be

surprised how many have had it or do have it.

Marta

----- Original Message -----

From: " Marie Henson " <henson2@...>

> Was anyone's foot pain first dx'd as " plantar fascitis " ? (sp?) That was

> the very first symptom I had of anything going wrong. I did PT for a

> while, and orthotics do help, but it comes back if I walk a lot. I have

> heard anecdotally that Lyme patients often get heel pain. I had always

> thought this was isolated -- just something that happened to me (in my

> 20s!) from wearing Keds sneakers, w. no support. I'd be very interested

> to hear if anyone else had that dx before (or during) Lyme.

>

> Thanks, and healing to all,

> Marie

[Guest guest]

I have been dxed with plantar fascitis too, but LLMD says that is common, and

the chetes seem to love the heel for some reason. It's also in my achilles

tendon, (which was dxed as tendonitis, doh!). The docs don't seem to go any

further to find out WHY ;you have these symptoms!

The human spirit is stronger than anything that can

happen to it.

C.

[Guest guest]

> I have been dxed with plantar fascitis too, but LLMD says that is common,

Hi,

Do you mean that it is common w. Lyme?

This is so terribly interesting to me bec. it meant I was already sick a

year before other things started to happen to me....

Thank you,

Marie

[Guest guest]

Yep, I mean that heel pain is common in lyme, according to my LLMD. He told me

that's a sure sign of lyme. That's what he said. I have had the foot pain off

and on for many years.

The human spirit is stronger than anything that can

happen to it.

C.

[Guest guest]

Dear Marie,

This association just struck me very strangely. I had severe foot problems,

finally requiring 4 surgeries, including shaving the heels because of extreme

bone pain, in 1981. Had a lot of nerve pain along the big toe, and also between

the little toe and the one next to it.

I always thought it was because I wore " too small " shoes, shoes with lots of

straps, and very high heels as a young girl. Never thought of it as being

Lyme-related until now (infected in 1958). This is a new consideration - one I

will probably never know the answer to.

I still have a lot of numbness, don't have full feeling in my feet, and have

foot pains a lot still. Only wear one pair of " very sensible " shoes now. Have to

have a slightly elevated flat heel, open toes, and straps at the ankle for

support ofr I will suffer a lot of pain and not be able to balance properly.

Love ya, Rose

Marie Henson <henson2@...>

Subject: Re: Foot Pain

Hi,

<snip>Was anyone's foot pain first dx'd as " plantar

fascitis " ? (sp?) That was

the very first symptom I had of anything going

wrong. <snip>

<snip> I have

heard anecdotally that Lyme patients often get

heel pain. I had always

thought this was isolated -- just something that

happened to me (in my

20s!) from wearing Keds sneakers, w. no support.

I'd be very interested

to hear if anyone else had that dx before (or

during) Lyme.

Thanks, and healing to all,

Marie

T.O.I.L. for Lyme!

T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform; L=Labor

for Lyme literacy

*My Lyme Disease Story & Website*

http://www.angelfire.com/tx3/RoseWriter

---------------------------------

[Guest guest]

just found it....sorry....ignore the message.

Patty

Foot pain

> I recently read a letter where someone mentioned that their foot pain

> had gone completely away with a supplement.

[Guest guest]

just found it....sorry....ignore the message.

Patty

Foot pain

> I recently read a letter where someone mentioned that their foot pain

> had gone completely away with a supplement.

[Guest guest]

just found it....sorry....ignore the message.

Patty

Foot pain

> I recently read a letter where someone mentioned that their foot pain

> had gone completely away with a supplement.

[Guest guest]

Here was the message:

Foot pain

> Patty,

> Could you tell us what the supplement for footpain is?

> Rose

>

> >just found it....sorry....ignore the message.

> >Patty

> > > I recently read a letter where someone mentioned that their foot pain

> > > had gone completely away with a supplement.

[Guest guest]

Here was the message:

Foot pain

> Patty,

> Could you tell us what the supplement for footpain is?

> Rose

>

> >just found it....sorry....ignore the message.

> >Patty

> > > I recently read a letter where someone mentioned that their foot pain

> > > had gone completely away with a supplement.

[Guest guest]

I have it too, and they gave me a steroid injection that did nothing to help.

Jeannie in N.C.

Re: [ ] Foot Pain

> I have been dxed with plantar fascitis too, but LLMD says that is common,

Hi,

Do you mean that it is common w. Lyme?

This is so terribly interesting to me bec. it meant I was already sick a

year before other things started to happen to me....

Thank you,

Marie

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[Guest guest]

Hi Amy,

One thing we were joking about at the doctor's was that since Josh hadn't been feeling well and was lots less active than he had been, his ankle pain has basically stopped. So maybe it was from overuse? It would only be stiffened sometimes upon awakening but mostly towards the end of the day was when it was hurting him the most. Anyway, since Josh was resting so much and not walking/playing much, it's not hurting him anymore.Well .... either that or those gel heel inserts I bought really do work!

Only time will tell : )

Aloha, Georgina

----- Original Message -----

From: Amy Luker

Buzz's pain was just above the ankle and in the arches. He would complain about his feet after running around playing, at the end of the day and sometimes in the morning. The orthotics really seem to be working. He also told us to make sure we kept him in shoes that had good support and not to let them get worn down. We have already had to buy shoes after just 4 months. The way he walks wears his right shoe out. The Rheum. said it was compensating for hip pain. Buzz just doesn't realize he's walking that way. Maybe orthotics would help , they have helped alot for Buzz.

[Guest guest]

Maybe that was what was causing his pain. I sure hope so.

That would be great.

Amy

Re: Foot Pain

Hi Amy,

One thing we were joking about at the doctor's was that since Josh hadn't been feeling well and was lots less active than he had been, his ankle pain has basically stopped. So maybe it was from overuse? It would only be stiffened sometimes upon awakening but mostly towards the end of the day was when it was hurting him the most. Anyway, since Josh was resting so much and not walking/playing much, it's not hurting him anymore.Well .... either that or those gel heel inserts I bought really do work!

Only time will tell : )

Aloha, Georgina

----- Original Message -----

From: Amy Luker

Buzz's pain was just above the ankle and in the arches. He would complain about his feet after running around playing, at the end of the day and sometimes in the morning. The orthotics really seem to be working. He also told us to make sure we kept him in shoes that had good support and not to let them get worn down. We have already had to buy shoes after just 4 months. The way he walks wears his right shoe out. The Rheum. said it was compensating for hip pain. Buzz just doesn't realize he's walking that way. Maybe orthotics would help , they have helped alot for Buzz.

[Guest guest]

Dear List:

I found some custom made insoles on the internet for about $100 and they

really helped my flat feet feel better. Unfortunately they are not so padded

as the gel insoles I was using, and now my foot arthritis is really a lot

worse. So I am not walking anymore.

I did a web search and found silicon shock absorbing ones for $375, but am

broke so that seems out of the question.

In another vein:

It is funny that for years as a child I was always afflicted with colds,

sore throats, runny nose and alergies, yet I never suffered from any

psoriasis or psoriatic arthrities. I hated feeling so weak.

For the past year or two I have been the healthiest I have been in years. No

colds or anything.

Just unending foot pain from arthritis!

Sincerely,

Mendel

> I tried custom-made orthotics ordered by the podiatrist and cannot for the

> life of me understand how duplicating the pathology of your foot in

plastic

> for $400 or more can be therapeutic unless the cost is so shocking it just

> shuts you up. I bought orthotics at the state fair and when those wore

out

> I got some I saw advertised on TV. Still expensive but half the price of

> custom-made and they work way better. I cannot walk without some kind of

> support. No more 3 " heels and dressy pumps. But I work 10 hour shifts on

> concrete and can still manage to get up and do it again the next day. I

> went to the Good Feet store in Portland, OR, for my orthotics. They have

> lots of different kinds.

>

[Guest guest]

In a message dated 9/17/02 10:39:57 AM Central Daylight Time,

davidevans@... writes:

> There was a recent article that discussed the discovery of a very potent

> antibiotic in the skin of psoriasis suffers that the researchers named

> Defensin.

>

>

>

>

>

http://ourworld.compuserve.com/homepages/FAntognini/iacfa/berlinabss/conf98_02.

> htm

>

Sounds intrigueing do you reckon us psoriatics may get paid some day for

the immune chemistry we make? Orin

[Guest guest]

There was a recent article that discussed the discovery of a very potent

antibiotic in the skin of psoriasis suffers that the researchers named

Defensin.

http://ourworld.compuserve.com/homepages/FAntognini/iacfa/berlinabss/conf98_02.

htm

I too have not suffered any infection like a cold for years. Maybe PA

makes our body produce a lot of Defensin? On the other hand I often joke -

How would I know if I had flu because I already have the symptoms!

[

[Guest guest]

Randy,

My PA began in my feet years ago and that remains the place that still hurts

more than any other - probably because of all the permanent damage they've

sustained. For years, I convinced myself that drugs such as MTX were " evil " and

would do more harm than good, but I reached the point where I was ready to try

anything. I had to come off MTX because it elevated my liver panels, but

while I was on it, I felt better than I had in years. I was never free of pain,

but I was able to do things I thought I would never do again - and I did them

in a relatively pain-free environment. There WERE some side effects, but I

considered them minor inconveniences in exchange for the level of relief I

received.

My prescription drug plan requires me to try (and fail) two DMARDS before I

will be eligible for Enbrel so I am now on Arava with periodic shots of

cortisone and daily doses of Mobic. The Arava does not seem to work as well for

me

as the MTX, but my body is still adjusting to it. I always take the view that

something WILL work rather than assuming something will fail and that is my

view of Arava. My bloodwork is being monitored frequently as Arava can also

cause other problems. In the end, however, I now know that there are medicines

out there that can help and that they are an important part of my overall

lifestyle to live as happily as I can, PA notwithstanding.

ALL medicines have potentially damaging side effects, but so does doing

nothing to medically combat PA. MTX is often condemned, but it has been used

for

over 20 years to treat RA and PA and its long term problems are known and can

be monitored. The same cannot be said of the biologics which are too new to

determine the problems that may be associated with long term use, although they

hold out real long term promise for many sufferers.

Continue to educate yourself on your options (and there are many) and I'm

sure you'll make the right choices for you.

Best wishes,

Kathy

[Guest guest]

Thanks for the email. I enjoyed hearing from someone with all this footpain.

When I was a kid, I saw my father use some special shampoo for his psoriasis.

I never dreamed I would be fighting such an ailment as pa. Thanks again. Randy

Re: [ ] Foot Pain

Randy,

My PA began in my feet years ago and that remains the place that still hurts

more than any other - probably because of all the permanent damage they've

sustained.

[Guest guest]

This possible solution has probably been mentioned many times by now, but I

haven't been following the thread so here's my .02, just in case:

My son (7 1/2, ASD) gets bad leg and foot cramps if he doesn't get his

calcium twice each day (I divide the dose). Sometimes I'll forget to give it to

him

in the AM (we use a liquid) and by evening, he's complaining. In fact, now

he'll say, " Mom, my legs hurt...you forgot to give me my calcium! "

- Becky B.

www.infeat.org

[Guest guest]

CA previously wrote: " My rheumy sent me to an orthopedic foot doctor who said

there is nothing in my feet in the places they hurt except muscle attachments.

He said it is a rheumatological problem. "

CA,

This would be consistent with Reactive Arthritis and related disorders. In ReA

the insertion points of ligaments (cartilage) into muscles and joints become

inflamed causing pain and discomfort, possibly swelling.

Ray Neal

[Guest guest]

Well, I'm not a doctor but it sure sounds like plantar fascitis. Those with

Reiter's are more prone to plantar fascitis. It's an inflammation of the

thick fibrous, band that runs the length of the bottom of the foot. But,

the pain is often felt where you describe at the sides. My doctor told me

to wear shoes all the time, not to take a single step even out of bed first

thing in the morning without shoes on. That's one of the recommendations

for plantar fascitis. Custom-made orthotics are another. Have any of your

doctors recommended custom-made orthotics (shoe inserts) to see if that

would ease your foot pain?

You might try to see a podiatrist if you can. Foot anatomy is really

complex, and podiatrists seem to know it best.

I hope that helps! Good luck to you.

Janet in SF

ReA since 1973; diagnosed 1997

[Guest guest]

I was prescribed orthotics and although they helped the heel pain,

wearing shoes just kills me. It seems the shoes make my feet burn

more and I just " have " to take my shoes off. It's worse in the

summer. I wear flip flops which is not good because it causes the

fascia?? to tear, which I guess aggravates everything.

Does anyone else's feet burn on the bottom of their feet? It is

really bad after I've been standing on them and sit down that I really

notice the burning pain. Ouch!

> Well, I'm not a doctor but it sure sounds like plantar fascitis.

Those with

> Reiter's are more prone to plantar fascitis.