Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 I have chronic regional pain syndrome. Was called rsd. Its from soft tissue injusries, surgeries, whatever it can happen to anyone. Im not sure i can post links on here. But there are a lot of sites about it. I have that on top of the ra and psoriasis... Jolene In a message dated 3/20/2008 12:16:32 P.M. Eastern Daylight Time, pamhunt56@... writes: What are crps? Someone at work last night told me it sounded like I might have a bone spur in my foot. I've heard of it but I don't really know what it is. Pam _Jolenefive@..._ (mailto:Jolenefive@...) wrote: I have crps in my foot. Jolene In a message dated 3/19/2008 9:29:36 P.M. Eastern Daylight Time, _iMarzz@..._ (mailto:iMarzz@...) writes: You may have some RA associated tendonitis. My feet are full of painful lumps and bumps, tendonitis and ganglions - lovely. I hope you feel better soon. -- In _ @-- In _RA-S-- In _ @_ @groRA-SUPP_ (mailto: ) ) , " Pam Hunt " <pamhunt56@.pa> wrote: > > I've been having some pain in my right foot. It is in one spot, on the > left side right above the heel. It isn't a sore. It looks red but it > is underneath the skin, but it's not hard like a callus would be. It > hurts when I walk or push on it with my finger. I have arthritis in my > feet. Does anyone have any idea what could be causing this. I don't > know if it's arthritis are caused from something else. Thanks. > Pam > ************************<WBR>**Create a Home Theater Like the Pros. Watch Home. (_http://home.http://home.http://home.<WBRhttp://home.<Whttp://hohttp://home.< WBRhttp://ho_ (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) ) [Non-text portions of this message have been removed] Pamela Hunt --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. [Non-text portions of this message have been removed] **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 What are crps? Someone at work last night told me it sounded like I might have a bone spur in my foot. I've heard of it but I don't really know what it is. Pam Jolenefive@... wrote: I have crps in my foot. Jolene In a message dated 3/19/2008 9:29:36 P.M. Eastern Daylight Time, iMarzz@... writes: You may have some RA associated tendonitis. My feet are full of painful lumps and bumps, tendonitis and ganglions - lovely. I hope you feel better soon. -- In _ @groRA-SUPP_ (mailto: ) , " Pam Hunt " <pamhunt56@.pa> wrote: > > I've been having some pain in my right foot. It is in one spot, on the > left side right above the heel. It isn't a sore. It looks red but it > is underneath the skin, but it's not hard like a callus would be. It > hurts when I walk or push on it with my finger. I have arthritis in my > feet. Does anyone have any idea what could be causing this. I don't > know if it's arthritis are caused from something else. Thanks. > Pam > **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 bio identic progesteron cream might help with your pain in your feet. > > Hello all. Diagnosed with lupus 2/08. Started ldn 3/29/08 at 1.75 mg > and now on a week of 4.5 mg. Have had astounding results when finally > went to 4.5. (I feel like I am dreaming this). Brain fog is gone and > have great energy. One problem seems to persist...pain in the bottoms > of my feet. I am not sure it is lupus related as have never heard > anyone discuss this. I also have some fibro issues but they have > diminished. It feels as though there is no pad on the bottom at the > pressure points and I can only wear croc sandals as they are soft. > Any suggestions? It seems to be the most painful when weight > bearing. Many thanks to all you wonderful folks for all your help and > support!! I feel so fortunate that I found LDN so early in my > disease. At age 60 I sure need a head start! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Thank you Zahavi. Can the bio id. progesterone cream be purchased at a health food store or is it presription? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 here you can buy it http://www.sunrisewd.com/cgi-sunrisewd/sb/productsearch.cgi? storeid=*1c035af591ca1ea14101578ac71c5048 because it is hormone although bio identical i suggest you buy of dr. lee .what doctors do not tell you about menopause.if you have the cream and still do not know how to use it you can mail us.we might be able to help you. > > Thank you Zahavi. Can the bio id. progesterone cream be purchased at > a health food store or is it presription? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Hi Sugargpaw - This is a bit delayed in response, but I ran across this post while looking for Lupus-related info. To answer your question, Yes, it is possible that the pain on the bottom of your feet is Lupus related. It's a less common symptom, but could be a neuropathy. I have it too, but mine seems to present itself a little differently than yours. Mine is intermittent and when it does happen, it's first thing in the morning and will subside after walking around a few minutes. It almost never comes back later in the day and if it does is so mild it could be overlooked if I weren't so attentive of keeping track of my body's " status " . Hopefully, whatever's causing it hasn't done anything permanent and the LDN can correct it. Wishing the best of health & pain-free feet! - Abby > > Hello all. Diagnosed with lupus 2/08. Started ldn 3/29/08 at 1.75 mg > and now on a week of 4.5 mg. Have had astounding results when finally > went to 4.5. (I feel like I am dreaming this). Brain fog is gone and > have great energy. One problem seems to persist...pain in the bottoms > of my feet. I am not sure it is lupus related as have never heard > anyone discuss this. I also have some fibro issues but they have > diminished. It feels as though there is no pad on the bottom at the > pressure points and I can only wear croc sandals as they are soft. > Any suggestions? It seems to be the most painful when weight > bearing. Many thanks to all you wonderful folks for all your help and > support!! I feel so fortunate that I found LDN so early in my > disease. At age 60 I sure need a head start! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Hi, Foot pain is also a classic symptom of bartonella, one of the tick-borne co-infections that may accompany Lyme, or come alone. Just food for thought. In a message dated 7/29/2008 1:47:11 A.M. Eastern Daylight Time, smylze111@... writes: Hi Sugargpaw - This is a bit delayed in response, but I ran acrossthis post while looking for Lupus-related info. To answer yourquestion, Yes, it is possible that the pain on the bottom of your feetis Lupus related. It's a less common symptom, but could be aneuropathy. I have it too, but mine seems to present itself a littledifferently than yours. Mine is intermittent and when it does happen,it's first thing in the morning and will subside after walking arounda few minutes. It almost never comes back later in the day and if itdoes is so mild it could be overlooked if I weren't so attentive ofkeeping track of my body's "status". Hopefully, whatever's causing ithasn't done anything permanent and the LDN can correct it. Wishing the best of health & pain-free feet! - Abby>> Hello all. Diagnosed with lupus 2/08. Started ldn 3/29/08 at 1.75 mg > and now on a week of 4.5 mg. Have had astounding results when finally > went to 4.5. (I feel like I am dreaming this). Brain fog is gone and > have great energy. One problem seems to persist...pain in the bottoms > of my feet. I am not sure it is lupus related as have never heard > anyone discuss this. I also have some fibro issues but they have > diminished. It feels as though there is no pad on the bottom at the > pressure points and I can only wear croc sandals as they are soft. > Any suggestions? It seems to be the most painful when weight > bearing. Many thanks to all you wonderful folks for all your help and > support!! I feel so fortunate that I found LDN so early in my > disease. At age 60 I sure need a head start!> Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Yes. Many Lymies are using LDN, with varying results from what I have heard. For me it has been great, but many of my symptoms were/are MS-like, and the LDN seems to be exceptional for that. I've been sick approx 15 years, and on LDN for 10-11 months. It has begun what I hope is to be a turnaround. The beginning was rough though. In a message dated 7/29/2008 10:24:38 P.M. Eastern Daylight Time, smylze111@... writes: Interesting! Has anyone used LDN for Lyme?>> Hi,> > Foot pain is also a classic symptom of bartonella, one of thetick-borne > co-infections that may accompany Lyme, or come alone. Just food forthought.> > Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Interesting! Has anyone used LDN for Lyme? > > Hi, > > Foot pain is also a classic symptom of bartonella, one of the tick-borne > co-infections that may accompany Lyme, or come alone. Just food for thought. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 >Dear Cookie, I have the chair mat massager & it really is great. When I have the pain, I arrange it where I can lay on it for 15-30 minutes, three times a day if possible. And it truly does wonders. It has even helped improve the strength in my feet, ankles, and legs. > Hi Gang, > > > > I totally forgot about this till now!! When I was having major pain in my > feet and hands and neck I had this brush vibrator (I know it sounds kinky_ > that I bought thru Avon and did not know it was a vibrator. Anyway I set > this on the highest setting and it really helped the pain. > > > > I still get pain in my feet when I used different shoes or really flat shoes > and I have a massaging foot machine that I use and wow it is great. I got it > for Christmas and have used it for many years. I am sure the new ones are > better. Don't get the vibrator foot thing get the one that rolls. Oh and I > did use the vibrator foot pillow (at that time from GNC) when I was first > diagnosed. > > > > Hope this helps at lot of you with pain. > > > > cooky > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 So you know I was on to something here :-))) _____ From: rheumatic [mailto:rheumatic ] On Behalf Of mrs_sears_guy1999 Sent: Saturday, August 09, 2008 7:40 PM rheumatic Subject: rheumatic Re: foot pain >Dear Cookie, I have the chair mat massager & it really is great. When I have the pain, I arrange it where I can lay on it for 15-30 minutes, three times a day if possible. And it truly does wonders. It has even helped improve the strength in my feet, ankles, and legs. > Hi Gang, > > > > I totally forgot about this till now!! When I was having major pain in my > feet and hands and neck I had this brush vibrator (I know it sounds kinky_ > that I bought thru Avon and did not know it was a vibrator. Anyway I set > this on the highest setting and it really helped the pain. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 I've had the same thing, especially after long walks. Soaking my feet in epsom salts (magnesium sulfate) is very helpful for me Foot pain Question: I am noticing more and more adults starting to have trouble with their feet. Pain in the bottom center esp at night when they first get up. Some are put in a brace, others have inserts put in. Some call it plantar fasciitis or it may be something else. Any ideas of natural therapies for this problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 I haven't had this myself. However, I was on a thyroid group where a couple of people said their plantar fascitis was improved after raising their thyroid hormone levels to a proper level. If one hormone helped some, then it would seem possible that other hormones may also be relevant. I have a friend who developed this, & he used the inserts. It appears that the inserts strengthened the arch and in time enabled him to walk longer without pain. That's probably the worth a shot. My friend bought those Walk Fit inserts that were on an infomercial. wrote: > > Question: > > I am noticing more and more adults starting to have trouble with their > feet. > > Pain in the bottom center esp at night when they first get up. > > Some are put in a brace, others have inserts put in. Some call it > > plantar fasciitis or it may be something else. > > Any ideas of natural therapies for this problem. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Hi All, No harm trying Vit-E, 400 units daily. ___________________________________ Apricot85 wrote: > I haven't had this myself. However, I was on a thyroid group where a > couple of people said their plantar fascitis was improved after raising > their thyroid hormone levels to a proper level. If one hormone helped > some, then it would seem possible that other hormones may also be > relevant. > > I have a friend who developed this, & he used the inserts. It appears > that the inserts strengthened the arch and in time enabled him to walk > longer without pain. That's probably the worth a shot. My friend bought > those Walk Fit inserts that were on an infomercial. > > > wrote: > >> Question: >> >> I am noticing more and more adults starting to have trouble with their >> feet. >> >> Pain in the bottom center esp at night when they first get up. >> >> Some are put in a brace, others have inserts put in. Some call it >> >> plantar fasciitis or it may be something else. >> >> Any ideas of natural therapies for this problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 > > Question: > > I am noticing more and more adults starting to have trouble with their feet. > > Pain in the bottom center esp at night when they first get up. > > Some are put in a brace, others have inserts put in. Some call it > > plantar fasciitis or it may be something else. > > Any ideas of natural therapies for this problem. Hi , I had foot pain, mainly around the heel and arch, and diagnosed myself with plantar fasciitis. I'm middle aged, and have been working on cement floors for over 30 yrs. I started to stretch and massage the foot, and rub the arch and heel with magnesium oil in the mornings before work. I also wear sneakers (tennis shoes) everyday, and invested in some Saucony Hurricanes with arch support and quality cushioning. I have to say that my pain is gone. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 I had plantar fasciitis for a while. I am thyroidless, and on my support groups, we have noticed that many thyroid patients develop plantar fasciitis and it goes away when thyroid levels are improved enough. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 You are right, it is plantar faciitis. Symptoms are pain on the bottom of the foot near the heel, when first arising in the morning. Itr appears massage, arches and improved thyroid levels will help. Any other therapies for this??  thanks, From: Amberlyn <amberlyn@...> Subject: Re: Foot pain Longevity Date: Sunday, November 2, 2008, 7:02 AM I had plantar fasciitis for a while. I am thyroidless, and on my support groups, we have noticed that many thyroid patients develop plantar fasciitis and it goes away when thyroid levels are improved enough. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Yes, I used the herb safflower. BJ Re: Foot pain Longevity Date: Sunday, November 2, 2008, 7:02 AM I had plantar fasciitis for a while. I am thyroidless, and on my support groups, we have noticed that many thyroid patients develop plantar fasciitis and it goes away when thyroid levels are improved enough. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Ok need some advice, went to the fair with my son today, he could only walk about 15-20 minutes before his feet hurt so much he had to sit down. We were really having a good time and it was a shame he just couldn't enjoy it so much. so my question is this, would AFOs help this? He only wears splints at night currently to help stretch his tendons. His current sneakers are about a year old, should we replace them possibly? We are going to the physiatrist next week so will mention this to him but was wondering what has helped other people with the foot pain. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Lori, Can he describe the pain? Ask him if his feel like they are burning. Burning is a type of pain. To stop the burning, take shoes off and use some BioFreeze or any cold lotion. I've had this my whole life, I also walk on cold tiles to cool my feet, or soak in cold water and my orthotist did make the last topcover in a special material that helps. Changing shoes throughout the day can help. Massaging can help. (Your son can learn to self-massage - even with something as simple as a tennis ball). I doubt AFOs will help with foot pain, since the pain is on the bottom of the feet (I am assuming, that's where the burn starts) I also have some Spenco liners which help too. But no AFOs, because they are for footdrop. As for his shoes - they should be replaced about every 4 months - and have plenty of room in the toe and metatarsal area, while snug in the heels. There are medications that can help - but don't know if you want to go that route. Your neurologist, orthotist, phys should all work together for your son. My orthotist also has certain brands and lasts of shoes that he recommends for his clients. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Thanks Mark, Going to dr diamond, our physiatrist next Monday. will ask him about it. Have to think hard about the trip to Detroit or we are considering going to CHOP possibly instead. cannot stand all these dr's and therapies etc so we try and keep it to a minimum. He qualified for a study at CHOP but refuses to do it. We are heading for Lancaster tomorrow morning (lots of walking around) and of course he has been in so much pain these last few days. Put new inserts into his shoes but going to get him new sneakers tonight (fingers crossed) that will help. On an aside, I am waiting to hear back from local diner about sept 21st, have to stop back in I guess and looking into a partylite fundraiser where CMTA would get 50% of everything sold. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 Don't feel so dismayed, you have a great son. There are lots of great afo's out there and they are getting better every day. One thing about CMT I have learned is it's not fatal and studies have shown that most people with CMT live longer than the norm. Just find your son some afo's he likes and will wear and get him started on them. > > Hi Lori, > > We had our visit with Dr. Shy and the talented staff today. Much to my > surprise, (and complete dismay, it was very much agreed that it was time > for Zack to be fit for AFOs. He tried the Blue Rockers like I have. > After walking the halls for a good amount of time, he very strongly felt > they helped him walk much easier and everyone in the staff felt it would > be so much easier for Zack in school and any time he had a lot of > walking to do. They said he would not need them all the time, but he > would know when it was right. Maybe the same is true for son too. > > Dismay? Yes, it was one of those moments when a parent feels all the > weight of passing on an inherited disorder to their child. The > generations up to me did not know about this. I was already an uncle 4 > times over before I was diagnosed, so my bro and sis did not know > anything other than the " Griffiths Foot " ran in the family, but neither > of them had any signs of it. So then the heavy guilt and weight of this > really came crashing down on my today hearing those words. Was I > narcissistic in having children? What was I thinking? > > I know this, my life would be nothing without my family. I guess I have > to channel this more into the drive to stopping this so no more > generations have this. > > Mark > Quote Link to comment Share on other sites More sharing options...
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