Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 I know exactly how you feel....I myself have had to chase doctors down the hall to finish talking to them. But what I usually do is grab my file out of their hands and find a new doctor...course I inherited a lack of respect for demi gods in the medical profession from my parents. And my behavior is not always wise but I refuse to be treated like what I have to say or ask about MY body and health don't matter. Alley/Pat wrote: > haaaaaaaaaaaa don't panic lol > > My doc WAS in a hurry to get his butt out the door to lunch and I DID > have > to chase him down the hall to get his attention, so I am ready to just > > launch into total B*** mode if necessary ahhaha. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 I know exactly how you feel....I myself have had to chase doctors down the hall to finish talking to them. But what I usually do is grab my file out of their hands and find a new doctor...course I inherited a lack of respect for demi gods in the medical profession from my parents. And my behavior is not always wise but I refuse to be treated like what I have to say or ask about MY body and health don't matter. Alley/Pat wrote: > haaaaaaaaaaaa don't panic lol > > My doc WAS in a hurry to get his butt out the door to lunch and I DID > have > to chase him down the hall to get his attention, so I am ready to just > > launch into total B*** mode if necessary ahhaha. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 I know exactly how you feel....I myself have had to chase doctors down the hall to finish talking to them. But what I usually do is grab my file out of their hands and find a new doctor...course I inherited a lack of respect for demi gods in the medical profession from my parents. And my behavior is not always wise but I refuse to be treated like what I have to say or ask about MY body and health don't matter. Alley/Pat wrote: > haaaaaaaaaaaa don't panic lol > > My doc WAS in a hurry to get his butt out the door to lunch and I DID > have > to chase him down the hall to get his attention, so I am ready to just > > launch into total B*** mode if necessary ahhaha. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 I know exactly how you feel....I myself have had to chase doctors down the hall to finish talking to them. But what I usually do is grab my file out of their hands and find a new doctor...course I inherited a lack of respect for demi gods in the medical profession from my parents. And my behavior is not always wise but I refuse to be treated like what I have to say or ask about MY body and health don't matter. Alley/Pat wrote: > haaaaaaaaaaaa don't panic lol > > My doc WAS in a hurry to get his butt out the door to lunch and I DID > have > to chase him down the hall to get his attention, so I am ready to just > > launch into total B*** mode if necessary ahhaha. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Sondra After reading your posts I would say yes you do need a new doctor. A glass of wine what is he thinking about? In answer to your other question about working. My husband is on SS because he cannot work. He was to the point he could not work before he started the treatment but he was seeing a doctor for 4 years who misdiagnosed his illness for 4 years so he was pretty sick from the stuff and the PCT he has with it by then. Once he started the treatment he was then unable to work and 3 weeks into it the doctor said to apply for SS and he would help him out getting it and he did. Not everyone has all the sides he does and are able to continue working so don't get discouraged yet about that everyone is so different. The sides did kick his butt though and we cannot make any plans to do anything in advance because of the sides. He is now on the new Peg Intron A after being on the Combo for a year and a half and we were hoping the sides would not be as bad but they are the same and we just keep hoping they will get better but so far after three months they have not. He is hanging in there though and we are both staying positive that we are adding years to his life and keeping him in remission - the Hep C and the PCT he has - and that he will stay in remission once off the treatment. Good luck to you. Just remember everyone is different and you may get along fine on the treatment like so many others that I know. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Sondra After reading your posts I would say yes you do need a new doctor. A glass of wine what is he thinking about? In answer to your other question about working. My husband is on SS because he cannot work. He was to the point he could not work before he started the treatment but he was seeing a doctor for 4 years who misdiagnosed his illness for 4 years so he was pretty sick from the stuff and the PCT he has with it by then. Once he started the treatment he was then unable to work and 3 weeks into it the doctor said to apply for SS and he would help him out getting it and he did. Not everyone has all the sides he does and are able to continue working so don't get discouraged yet about that everyone is so different. The sides did kick his butt though and we cannot make any plans to do anything in advance because of the sides. He is now on the new Peg Intron A after being on the Combo for a year and a half and we were hoping the sides would not be as bad but they are the same and we just keep hoping they will get better but so far after three months they have not. He is hanging in there though and we are both staying positive that we are adding years to his life and keeping him in remission - the Hep C and the PCT he has - and that he will stay in remission once off the treatment. Good luck to you. Just remember everyone is different and you may get along fine on the treatment like so many others that I know. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Sondra After reading your posts I would say yes you do need a new doctor. A glass of wine what is he thinking about? In answer to your other question about working. My husband is on SS because he cannot work. He was to the point he could not work before he started the treatment but he was seeing a doctor for 4 years who misdiagnosed his illness for 4 years so he was pretty sick from the stuff and the PCT he has with it by then. Once he started the treatment he was then unable to work and 3 weeks into it the doctor said to apply for SS and he would help him out getting it and he did. Not everyone has all the sides he does and are able to continue working so don't get discouraged yet about that everyone is so different. The sides did kick his butt though and we cannot make any plans to do anything in advance because of the sides. He is now on the new Peg Intron A after being on the Combo for a year and a half and we were hoping the sides would not be as bad but they are the same and we just keep hoping they will get better but so far after three months they have not. He is hanging in there though and we are both staying positive that we are adding years to his life and keeping him in remission - the Hep C and the PCT he has - and that he will stay in remission once off the treatment. Good luck to you. Just remember everyone is different and you may get along fine on the treatment like so many others that I know. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Sondra After reading your posts I would say yes you do need a new doctor. A glass of wine what is he thinking about? In answer to your other question about working. My husband is on SS because he cannot work. He was to the point he could not work before he started the treatment but he was seeing a doctor for 4 years who misdiagnosed his illness for 4 years so he was pretty sick from the stuff and the PCT he has with it by then. Once he started the treatment he was then unable to work and 3 weeks into it the doctor said to apply for SS and he would help him out getting it and he did. Not everyone has all the sides he does and are able to continue working so don't get discouraged yet about that everyone is so different. The sides did kick his butt though and we cannot make any plans to do anything in advance because of the sides. He is now on the new Peg Intron A after being on the Combo for a year and a half and we were hoping the sides would not be as bad but they are the same and we just keep hoping they will get better but so far after three months they have not. He is hanging in there though and we are both staying positive that we are adding years to his life and keeping him in remission - the Hep C and the PCT he has - and that he will stay in remission once off the treatment. Good luck to you. Just remember everyone is different and you may get along fine on the treatment like so many others that I know. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Edie You are doing great - hang in there I am sure your family is happy to help you out around the house and isn't it funny how you are not nearly as picky now with the house as you were I know I am not now either so I know what you are talking about there. I know it has to be tough for you but I also know it would help my husband so much if he could get out there and work to help with the finances but he just is not able to but does help around here in between the awful headaches, flu like symptms and well you know what I am talking about so hence I am not so picky about the house either now. Been thinking about you and wondering how that new job was going. My husband can't even drive due to the awful brain fog he gets - he has gotten lost a few times and couldn't find his way home which really scared him so he hasn;'t driven since 3 weeks into thetreatment. He can remember things from years and years ago but not where he put anything 5 minutes ago. Hang in there and stay positive!!! Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Edie You are doing great - hang in there I am sure your family is happy to help you out around the house and isn't it funny how you are not nearly as picky now with the house as you were I know I am not now either so I know what you are talking about there. I know it has to be tough for you but I also know it would help my husband so much if he could get out there and work to help with the finances but he just is not able to but does help around here in between the awful headaches, flu like symptms and well you know what I am talking about so hence I am not so picky about the house either now. Been thinking about you and wondering how that new job was going. My husband can't even drive due to the awful brain fog he gets - he has gotten lost a few times and couldn't find his way home which really scared him so he hasn;'t driven since 3 weeks into thetreatment. He can remember things from years and years ago but not where he put anything 5 minutes ago. Hang in there and stay positive!!! Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Edie You are doing great - hang in there I am sure your family is happy to help you out around the house and isn't it funny how you are not nearly as picky now with the house as you were I know I am not now either so I know what you are talking about there. I know it has to be tough for you but I also know it would help my husband so much if he could get out there and work to help with the finances but he just is not able to but does help around here in between the awful headaches, flu like symptms and well you know what I am talking about so hence I am not so picky about the house either now. Been thinking about you and wondering how that new job was going. My husband can't even drive due to the awful brain fog he gets - he has gotten lost a few times and couldn't find his way home which really scared him so he hasn;'t driven since 3 weeks into thetreatment. He can remember things from years and years ago but not where he put anything 5 minutes ago. Hang in there and stay positive!!! Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Edie You are doing great - hang in there I am sure your family is happy to help you out around the house and isn't it funny how you are not nearly as picky now with the house as you were I know I am not now either so I know what you are talking about there. I know it has to be tough for you but I also know it would help my husband so much if he could get out there and work to help with the finances but he just is not able to but does help around here in between the awful headaches, flu like symptms and well you know what I am talking about so hence I am not so picky about the house either now. Been thinking about you and wondering how that new job was going. My husband can't even drive due to the awful brain fog he gets - he has gotten lost a few times and couldn't find his way home which really scared him so he hasn;'t driven since 3 weeks into thetreatment. He can remember things from years and years ago but not where he put anything 5 minutes ago. Hang in there and stay positive!!! Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Connie We know exactly what you are talking about when you say you have to learn to do without and quickly that is no lie. You have done a beautiful job in this email explaining about the side effects and how they hit you. One day my husband will feel pretty good and we will start to go get in the car and go do something but he will start to sweat and feel sick to his stomach and his head will start to hurt so we have to come right home. We make no plans ahead of time but the doctor and any tests he has to have then you have to go. One day he does not need his cane to get around and the next he can't get around without it. He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. We hang in there just like you do. I know working would make him feel better about himself but he just can't and he has slowly learned to accept that so we just keep hoping that he will be done with the treatment soon and he will stay in remssion with the Hep C and PCT he has and will be able to work again in the future. We are just concentrating on adding years to his life and making his liver better but it has been a long hard road just like eveyone else. Staing positive as always for the future. Winne Sometimes I sit and think about how I wish I could work, then days might not drag so long where you have time to think about aches and pains. Also, I might have some money to do something once in a while. It is kind of hard after working all your life to go to poverty level and exist, but not low enough to qualify for help ($158 too much a month) with programs like Medicaid. It is a really a rude awakening, you have to learn to do without and quickly. There are good days and bad days from the side effects. If you are able to stay working it is probably best for you.......Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Connie We know exactly what you are talking about when you say you have to learn to do without and quickly that is no lie. You have done a beautiful job in this email explaining about the side effects and how they hit you. One day my husband will feel pretty good and we will start to go get in the car and go do something but he will start to sweat and feel sick to his stomach and his head will start to hurt so we have to come right home. We make no plans ahead of time but the doctor and any tests he has to have then you have to go. One day he does not need his cane to get around and the next he can't get around without it. He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. We hang in there just like you do. I know working would make him feel better about himself but he just can't and he has slowly learned to accept that so we just keep hoping that he will be done with the treatment soon and he will stay in remssion with the Hep C and PCT he has and will be able to work again in the future. We are just concentrating on adding years to his life and making his liver better but it has been a long hard road just like eveyone else. Staing positive as always for the future. Winne Sometimes I sit and think about how I wish I could work, then days might not drag so long where you have time to think about aches and pains. Also, I might have some money to do something once in a while. It is kind of hard after working all your life to go to poverty level and exist, but not low enough to qualify for help ($158 too much a month) with programs like Medicaid. It is a really a rude awakening, you have to learn to do without and quickly. There are good days and bad days from the side effects. If you are able to stay working it is probably best for you.......Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Connie We know exactly what you are talking about when you say you have to learn to do without and quickly that is no lie. You have done a beautiful job in this email explaining about the side effects and how they hit you. One day my husband will feel pretty good and we will start to go get in the car and go do something but he will start to sweat and feel sick to his stomach and his head will start to hurt so we have to come right home. We make no plans ahead of time but the doctor and any tests he has to have then you have to go. One day he does not need his cane to get around and the next he can't get around without it. He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. We hang in there just like you do. I know working would make him feel better about himself but he just can't and he has slowly learned to accept that so we just keep hoping that he will be done with the treatment soon and he will stay in remssion with the Hep C and PCT he has and will be able to work again in the future. We are just concentrating on adding years to his life and making his liver better but it has been a long hard road just like eveyone else. Staing positive as always for the future. Winne Sometimes I sit and think about how I wish I could work, then days might not drag so long where you have time to think about aches and pains. Also, I might have some money to do something once in a while. It is kind of hard after working all your life to go to poverty level and exist, but not low enough to qualify for help ($158 too much a month) with programs like Medicaid. It is a really a rude awakening, you have to learn to do without and quickly. There are good days and bad days from the side effects. If you are able to stay working it is probably best for you.......Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Connie We know exactly what you are talking about when you say you have to learn to do without and quickly that is no lie. You have done a beautiful job in this email explaining about the side effects and how they hit you. One day my husband will feel pretty good and we will start to go get in the car and go do something but he will start to sweat and feel sick to his stomach and his head will start to hurt so we have to come right home. We make no plans ahead of time but the doctor and any tests he has to have then you have to go. One day he does not need his cane to get around and the next he can't get around without it. He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. We hang in there just like you do. I know working would make him feel better about himself but he just can't and he has slowly learned to accept that so we just keep hoping that he will be done with the treatment soon and he will stay in remssion with the Hep C and PCT he has and will be able to work again in the future. We are just concentrating on adding years to his life and making his liver better but it has been a long hard road just like eveyone else. Staing positive as always for the future. Winne Sometimes I sit and think about how I wish I could work, then days might not drag so long where you have time to think about aches and pains. Also, I might have some money to do something once in a while. It is kind of hard after working all your life to go to poverty level and exist, but not low enough to qualify for help ($158 too much a month) with programs like Medicaid. It is a really a rude awakening, you have to learn to do without and quickly. There are good days and bad days from the side effects. If you are able to stay working it is probably best for you.......Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 <<He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. >. me too! hey yall just a quick note.. I lived thru day one at work! haaaaaaaaaaa a boost drink for breakfast, ginseng at morning break and lots of aspirin all day lol Laters alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 <<He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. >. me too! hey yall just a quick note.. I lived thru day one at work! haaaaaaaaaaa a boost drink for breakfast, ginseng at morning break and lots of aspirin all day lol Laters alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 <<He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. >. me too! hey yall just a quick note.. I lived thru day one at work! haaaaaaaaaaa a boost drink for breakfast, ginseng at morning break and lots of aspirin all day lol Laters alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 <<He always knows when it is going to rain though because the joint and muscle pains he has are a lot worse on those day. >. me too! hey yall just a quick note.. I lived thru day one at work! haaaaaaaaaaa a boost drink for breakfast, ginseng at morning break and lots of aspirin all day lol Laters alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 For some reason I didn't get Sondra's original post. If Sondra has no liver damage, alcohol isn't that big of a deal (assuming you're not an alcoholic or frequent drinker). In fact, last nite I had my first glass of wine since ending treatment. Sure tasted good! But nothing compares with TexMex food haha. Since my liver damage is very very tiny, doc says go for it, just don't over do it. I think I could do more damage taking Tylenol for my constant joint pain than I could ever do with an occasional drink (and I do mean occasional). So Sondra, if you have liver damage, alcohol is kinda like pouring alcohol on a fire,just makes it worse, makes your liver work harder. Sometimes you really gotta kinda weigh the bad and the good and make some common sense decisions. Even doctors can't predict why some people have no damage why some do with this Hep C. Sometimes it's a guessing game. What works for one might be a killer for someone else. I might advise reading more about it, and weighing that information with how much liver damage your liver biopsy revealed. I mean, is it worth the risk? Which would you rather be, dead, almost dead, or living long? )) It's all so individual it's unreal. What is ok for me would kill Winne's husband, for instance. Ya know? I think the hard part is knowing where YOU fit in the Hep C equation. Will alcohol + Hep C + Liver Damage + Sondra = higher cirrhosis possibility? If there's a doubt, SHOUT it out! ahhah ok i'm a commercial. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 For some reason I didn't get Sondra's original post. If Sondra has no liver damage, alcohol isn't that big of a deal (assuming you're not an alcoholic or frequent drinker). In fact, last nite I had my first glass of wine since ending treatment. Sure tasted good! But nothing compares with TexMex food haha. Since my liver damage is very very tiny, doc says go for it, just don't over do it. I think I could do more damage taking Tylenol for my constant joint pain than I could ever do with an occasional drink (and I do mean occasional). So Sondra, if you have liver damage, alcohol is kinda like pouring alcohol on a fire,just makes it worse, makes your liver work harder. Sometimes you really gotta kinda weigh the bad and the good and make some common sense decisions. Even doctors can't predict why some people have no damage why some do with this Hep C. Sometimes it's a guessing game. What works for one might be a killer for someone else. I might advise reading more about it, and weighing that information with how much liver damage your liver biopsy revealed. I mean, is it worth the risk? Which would you rather be, dead, almost dead, or living long? )) It's all so individual it's unreal. What is ok for me would kill Winne's husband, for instance. Ya know? I think the hard part is knowing where YOU fit in the Hep C equation. Will alcohol + Hep C + Liver Damage + Sondra = higher cirrhosis possibility? If there's a doubt, SHOUT it out! ahhah ok i'm a commercial. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 For some reason I didn't get Sondra's original post. If Sondra has no liver damage, alcohol isn't that big of a deal (assuming you're not an alcoholic or frequent drinker). In fact, last nite I had my first glass of wine since ending treatment. Sure tasted good! But nothing compares with TexMex food haha. Since my liver damage is very very tiny, doc says go for it, just don't over do it. I think I could do more damage taking Tylenol for my constant joint pain than I could ever do with an occasional drink (and I do mean occasional). So Sondra, if you have liver damage, alcohol is kinda like pouring alcohol on a fire,just makes it worse, makes your liver work harder. Sometimes you really gotta kinda weigh the bad and the good and make some common sense decisions. Even doctors can't predict why some people have no damage why some do with this Hep C. Sometimes it's a guessing game. What works for one might be a killer for someone else. I might advise reading more about it, and weighing that information with how much liver damage your liver biopsy revealed. I mean, is it worth the risk? Which would you rather be, dead, almost dead, or living long? )) It's all so individual it's unreal. What is ok for me would kill Winne's husband, for instance. Ya know? I think the hard part is knowing where YOU fit in the Hep C equation. Will alcohol + Hep C + Liver Damage + Sondra = higher cirrhosis possibility? If there's a doubt, SHOUT it out! ahhah ok i'm a commercial. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 For some reason I didn't get Sondra's original post. If Sondra has no liver damage, alcohol isn't that big of a deal (assuming you're not an alcoholic or frequent drinker). In fact, last nite I had my first glass of wine since ending treatment. Sure tasted good! But nothing compares with TexMex food haha. Since my liver damage is very very tiny, doc says go for it, just don't over do it. I think I could do more damage taking Tylenol for my constant joint pain than I could ever do with an occasional drink (and I do mean occasional). So Sondra, if you have liver damage, alcohol is kinda like pouring alcohol on a fire,just makes it worse, makes your liver work harder. Sometimes you really gotta kinda weigh the bad and the good and make some common sense decisions. Even doctors can't predict why some people have no damage why some do with this Hep C. Sometimes it's a guessing game. What works for one might be a killer for someone else. I might advise reading more about it, and weighing that information with how much liver damage your liver biopsy revealed. I mean, is it worth the risk? Which would you rather be, dead, almost dead, or living long? )) It's all so individual it's unreal. What is ok for me would kill Winne's husband, for instance. Ya know? I think the hard part is knowing where YOU fit in the Hep C equation. Will alcohol + Hep C + Liver Damage + Sondra = higher cirrhosis possibility? If there's a doubt, SHOUT it out! ahhah ok i'm a commercial. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 Congrats, Pat.....knew you could do it! Alley/Pat wrote: > <<He always knows when it is going to rain though > because the joint and muscle pains he has are a lot worse on those > day. >. > > me too! > > hey yall just a quick note.. I lived thru day one at work! > haaaaaaaaaaa > > a boost drink for breakfast, ginseng at morning break and lots of > aspirin > all day lol > > Laters > > alley > > > Quote Link to comment Share on other sites More sharing options...
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