What CMT Means To Me

[Guest guest]

What CMT means to me.In short,It means I am a person who is ready to go

through adversity and come out of it a better man,so bring it on I say.I am

happy to say I am now dealing with it in a very positive way and will share

my CMT story with anyone who will listen.I must be crazy but I love my CMT

it has helped to make me the person that I am today, who I love to be.

Geoff the CMT Drummer on PHX

[Guest guest]

what an awesome lady you are...thanks so much for all you do... i am a member

here but i don't always have the time to read every email,although i wish i did.

i wonder why it is,that the emails that are connected to each topic aren't all

together,meaning when someone starts a topic,and then someone responds why is it

not on the same page so you know what they are responding to,and who...just a

thought? please don't take that in an ugly way...just wondering...thanks again

for all you do...Be BLESSED in ALL YOU DO....tracey.. as to what it means to

me, well i will post that a lil later although you have pretty much summed up my

life, the duck walk, stork legs and ppl talking crazy to me,but like you i try

to educate them, but they still have their opinions, and to me that is all that

it is...yes it does hurt tho....

From: gfijig <gfijig@...>

Subject: Re: What CMT Means To Me

Date: Monday, August 2, 2010, 12:18 PM

 

What CMT means for me is Charcot Marie Tooth (disease)and I have it. This means

I founded abput 13 years ago to encourage positive global discussion and

networking. I am an advocate for treatment and complete arrestment. This means I

am a Support Group Leader (3) I have no time to complain or spend in self-pity.

The 12 steps teach me nothing is impossible - even with CMT. My attidue is one

of gratitude for each and every breath I have to give.

References to animal oddities such as " stork legs " or " duck walk " or " slow as a

turtle " to describe CMT and me personally are offensive and discriminatory and I

quickly educate anyone who may even have the audacity to imply that.

Simply stated, I am a woman with CMT, working to create a more positive and

nationally recognized understanding of this neuromuscular disease.

Gretchen