Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Lori - In our experience, adherence to the 504 date is important and our school system does it's level best to at least have a meeting scheduled prior to the evaluation date. I would call the school and begin with the guidance counselor to nudge them along. It is very important that the inclusion of the elevator be added according to doctors recommendation. It has been my experience that an IEP is more strictly regulated by date due for renewal. An IEP for Other Health Impaired has been much more beneficial to my son than his 504 was. The IEP has provided for more explicit accommodations. Good Luck. > > My son's school has not re-written my son's 504 this year. His Anniv date was 9/15/10. I understand it should be re-written or evaluated every year on his anniversary. Is there a timeframe for which the school has to do this or should it have been done by the 15th? anyone familiar with what I am asking about? I really just asked that they add elevator use and nothing else changed. > > Thanks > > Lori > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Hmm. Tough spot Lori. I just had my hands on the report from our last meeting, so I grabbed it again. I guess the two districts we have last dealt with kept it up-to-date by being ahead of the date and not before. The Eligibility Meeting date was May but the meetings are in March. It says the annual review date will be 3/15/11 and the reevaluation date 5/21/2011. I am not sure why different dates other than the meeting was held in March but the eval was not really due until May. Sad thinking, we only have ONE more meeting left and he is off to college! Mark > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Thanks , They would not allow for an IEP, just the 504. It is the guidance counselor who is the 504 coordinator and she is the one dragging her feet. I did meet with the teachers already but the formal Plan has yet to be completed and signed off on. Lori > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Lori, Request the 504 plan in writing. Get the request signed and dated by whomever does 504's. Keep a copy for yourself. That should kick start the process. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Lori, In my experience the 504 plans are pushed aside unless the parent stays on top of it. I forgot one year and it was never done. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2010 Report Share Posted September 23, 2010 Sorry didn't mean to email that to the whole list, just From: [mailto: ] On Behalf Of MommyToJase@... Sent: Tuesday, September 21, 2010 3:10 PM Subject: Re: Section 504 question Lori, Request the 504 plan in writing. Get the request signed and dated by whomever does 504's. Keep a copy for yourself. That should kick start the process. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2010 Report Share Posted September 23, 2010 I have last years and she asked me to review and get back to her with any changes I wanted to make. I had already told her what changes I wanted to make. There was a delay in her getting the electronic version of the plan to modify for this year although she could have re-typed it as she most likely will anyway. I am sure I will get a copy when it is complete but it should have been done by now I would think. Luckily they gave me my request of a teacher team meeting to explain my concerns to the staff. That went well although we ran out of time. Thx Lori From: [mailto: ] On Behalf Of MommyToJase@... Sent: Tuesday, September 21, 2010 3:10 PM Subject: Re: Section 504 question Lori, Request the 504 plan in writing. Get the request signed and dated by whomever does 504's. Keep a copy for yourself. That should kick start the process. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 Lori, I have to correct something. We do not have a 504 for our son. He has an IEP. After posting this to you the other day, I had a long talk with another CMT parent and learned there is quite a difference and they were totally dumbfounded that we had an IEP and not a 504. His IEP was all about the CMT related issues and classified as " Other health impaired " with no other classifications or learning impairments. Maybe this is why we have an easier time with the school district complying. Mark > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 My daughter is a 5 yr old 1st grader with CMT . in kindergarten, the school did a health plan. this year they want to do a 504. we wanted an IEP but because her school work and grades are not effected yet they say they can't. Becca > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 We started the process that led to the diagnosis when my son was in second grade. It was not a long trip to that diagnosis because of the long family history and my prior diagnosis. At the time in public school they were desperately trying to classify him as ADD or something similar just to get him classified and covered by grants that paid for the second teachers in the classroom. In the course of the testing, IQ tests were done, and that finally showed them in black and white what we had been trying to tell them - he was ahead of the classwork, would zip through it, and then be bored while the teacher was still working with the 32 other kids in the class. During this whole process, my wife and I were growing more and more disillusioned with this school district (look at that class size!) so we decided to move him to a private school. There had to be enough other parents in this town that felt the same way because there were no less than 3 other private pre-K or K-8 schools right in town! We selected a small non-denominational school that was a mission of a Methodist church. The other was run by a Lutheran Church, and the last your neighborhood Catholic school (which had a long waiting list, especially if you were not a member). Putting him in this small setting was the best thing we could do! They became his strongest advocates and the best " consultants " we could have asked for! Living in NJ, the laws state all the services are the responsibility of the district, so even in the private school, he received PT and OT the whole time he was there (through 5th grade, and then we moved). I guess the IEP came because of his high level and they needed to have a plan to keep him working to that level, tying it to the CMT as an " Other Health Impairment. " I offer all this as an example and possible approach for you to try. We have had a far easier time with the IEP than it sounds like anyone with a 504. Mark > > My daughter is a 5 yr old 1st grader with CMT . in kindergarten, the school did a health plan. this year they want to do a 504. we wanted an IEP but because her school work and grades are not effected yet they say they can't. > > Becca > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 I'm not a special ed teacher so I don't know all the details by heart, but I am a thirteen-year classroom teacher. To my knowledge, a 504 provides accommodations without special education services or changing the educational standards, such as preferred seating, modified due dates, etc. An IEP (Individualized Education Plan) provides for challenges in academic achievement, such as discrepancies between ability and performance (handwriting, etc). The IEP provides for special education services as well as (possibly) modified standards and curriculum (reduced homework, etc). An IEP is all about academics. If a student is achieving to academic standards, the state does not offer an IEP. For physical challenges, the 504 is usually used to give students accommodations without special education services. Hope that helps. Of course, every state is a little different, and many parents know the system much better than teachers (they learn it first hand, while teachers are usually only involved in helping students meet their IEP goals, not in creating the IEP). So if I messed up information, sorry- feel free to correct me Best wishes, Lenka > > My daughter is a 5 yr old 1st grader with CMT . in kindergarten, the school did a health plan. this year they want to do a 504. we wanted an IEP but because her school work and grades are not effected yet they say they can't. > > Becca > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 I recommend getting an advocate. Wish I had done that in the beginning. ________________________________ From: <becca3299@...> Sent: Fri, September 24, 2010 6:27:32 PM Subject: Re: Section 504 question  My daughter is a 5 yr old 1st grader with CMT . in kindergarten, the school did a health plan. this year they want to do a 504. we wanted an IEP but because her school work and grades are not effected yet they say they can't. Becca > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 I recommend the same. I wish I had hired an advocate from day one. In a message dated 9/25/2010 9:31:32 A.M. Pacific Daylight Time, rkmtlm77@... writes: I recommend getting an advocate. Wish I had done that in the beginning. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 This information is from the MDA. The MDA also has a download regarding classroom modifications for CMT. If anyone needs it and cannot locate it on the site listed at the end of post, let me know. I can email it or upload it into the group's files. To ensure that students needing adapted school environments were afforded a high standard of educational rights, Congress passed the Individuals with Disabilities Education Act (IDEA) in 1997, and reauthorized it in 2004 . This legislation resulted in a tool for educators and students known as an Individualized Education Plan (IEP). Another available tool is a " 504 plan " derived from Section 504 of the Rehabilitation Act of 1973. IEPs and 504 plans are important vehicles designed to ensure that you or your child are provided with the most rigorous academic schedule possible within the least restrictive academic setting. IEP: an Individualized Educational Plan What it is: a legal document that mandates that the school provide a pre-determined set of services, as established by a team of professionals, advocates and community members who are familiar with you/your child; this team should include the parents/guardians of the student as well as the student (if age appropriate). IEPs are based on the individual needs of each student, and are covered by the Individuals with Disabilities Education Act (IDEA) which governs how states and public agencies provide early intervention, special education and related services to children and young adults with disabilities. What is does: an IEP addresses physical assistance, academic adaptations, specialized instruction, technological equipment, and related services like occupational, physical and speech therapy The 504 plan: What it is: Covered by the civil rights law, Section 504 of the Rehabilitation Act prohibits discrimination against individuals with disabilities. Section 504 ensures that children with disabilities have equal access to an education. The Rehabilitation Act (and therefore Section 504) applies to all federally funded programs, including schools, libraries, etc What it does: The 504 is a modified academic plan, and addresses the same areas as an IEP except for specialized instruction. MDA has several articles (listed below) at www.mda.org/advocacy/school/ •A Teacher's Guide to Neuromuscular Disease •Quest Article - Building the IEP Puzzle •Quest Article - Getting Creative with Adaptive P.E. •Quest Article - ph's IEP •Quest Article - 504 Plans: What Parents Should Know •Quest Article - How to Get Your Child's School to Provide Assistive Technology or Help with Learning Disabilities •Quest Article - IEP Resources for Assistive Technology and Learning Disorders •Quest Article - Friendships Matter: A New IDEA •Quest Article - Friendships Matter: Building IEPs that Build Social Relationships •Quest Article - Law Requires Mediation in Special Ed Disputes •Quest Article - Learning at Home •Quest Article - Homebound Programs: Two stories •Quest Article - Homeschooling: Two stories •Voice Article – Making the Most out of 504 and IEP Plans Hope this helps...JoAnn ps You can also ask your MDA representative to attend 504 or IEP meetings with you. > > My daughter is a 5 yr old 1st grader with CMT . in kindergarten, the school did a health plan. this year they want to do a 504. we wanted an IEP but because her school work and grades are not effected yet they say they can't. > > Becca > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2010 Report Share Posted September 26, 2010 We had to go to court to get one of my sons an accommodation for AT that would work for him and proper testing. They threw an alpha smart in front of him and thought it would solve all problems. J In a message dated 9/25/2010 4:49:03 P.M. Pacific Daylight Time, finetuned65@... writes: Quest Article - How to Get Your Child's School to Provide Assistive Technology or Help with Learning Disabilities Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2010 Report Share Posted September 26, 2010 Great resources! Thanks for posting. Lori From: [mailto: ] On Behalf Of Joann Sent: Saturday, September 25, 2010 6:33 PM Subject: Re: Section 504 question This information is from the MDA. The MDA also has a download regarding classroom modifications for CMT. If anyone needs it and cannot locate it on the site listed at the end of post, let me know. I can email it or upload it into the group's files. To ensure that students needing adapted school environments were afforded a high standard of educational rights, Congress passed the Individuals with Disabilities Education Act (IDEA) in 1997, and reauthorized it in 2004 . This legislation resulted in a tool for educators and students known as an Individualized Education Plan (IEP). Another available tool is a " 504 plan " derived from Section 504 of the Rehabilitation Act of 1973. IEPs and 504 plans are important vehicles designed to ensure that you or your child are provided with the most rigorous academic schedule possible within the least restrictive academic setting. IEP: an Individualized Educational Plan What it is: a legal document that mandates that the school provide a pre-determined set of services, as established by a team of professionals, advocates and community members who are familiar with you/your child; this team should include the parents/guardians of the student as well as the student (if age appropriate). IEPs are based on the individual needs of each student, and are covered by the Individuals with Disabilities Education Act (IDEA) which governs how states and public agencies provide early intervention, special education and related services to children and young adults with disabilities. What is does: an IEP addresses physical assistance, academic adaptations, specialized instruction, technological equipment, and related services like occupational, physical and speech therapy The 504 plan: What it is: Covered by the civil rights law, Section 504 of the Rehabilitation Act prohibits discrimination against individuals with disabilities. Section 504 ensures that children with disabilities have equal access to an education. The Rehabilitation Act (and therefore Section 504) applies to all federally funded programs, including schools, libraries, etc What it does: The 504 is a modified academic plan, and addresses the same areas as an IEP except for specialized instruction. MDA has several articles (listed below) at www.mda.org/advocacy/school/ ..A Teacher's Guide to Neuromuscular Disease ..Quest Article - Building the IEP Puzzle ..Quest Article - Getting Creative with Adaptive P.E. ..Quest Article - ph's IEP ..Quest Article - 504 Plans: What Parents Should Know ..Quest Article - How to Get Your Child's School to Provide Assistive Technology or Help with Learning Disabilities ..Quest Article - IEP Resources for Assistive Technology and Learning Disorders ..Quest Article - Friendships Matter: A New IDEA ..Quest Article - Friendships Matter: Building IEPs that Build Social Relationships ..Quest Article - Law Requires Mediation in Special Ed Disputes ..Quest Article - Learning at Home ..Quest Article - Homebound Programs: Two stories ..Quest Article - Homeschooling: Two stories ..Voice Article - Making the Most out of 504 and IEP Plans Hope this helps...JoAnn ps You can also ask your MDA representative to attend 504 or IEP meetings with you. > > My daughter is a 5 yr old 1st grader with CMT . in kindergarten, the school did a health plan. this year they want to do a 504. we wanted an IEP but because her school work and grades are not effected yet they say they can't. > > Becca > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2010 Report Share Posted September 26, 2010 My son was also issued a NEO this year (portable laptop) he refused to use it though so it sits in his locker. Lori Quote Link to comment Share on other sites More sharing options...
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