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Geri,

If you go to the link I provided, (it is about Publications) scroll down (look

down for the CMT Brochure.) click on that and download it then read it. It DOES

mention cold. If you can't find that, phone the CMT at the 800 number and ask

for a few brochures to be sent. Or however many you wish. Great for family and

friends to read and get more understanding about CMT.

Thank you..... but I couldn't find anything about cold on that sight

Geri

Re: cold and heat

Geri,

I can't find anything in our Files at the moment, but definitely check our

Message Archives. The CMTA has a brochure that mentions the cold. You can

download it here - scroll down to about the 11th publication.

https://secure.charcot-marie-tooth.org/publications.php

Gretchen

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I don't think they publish enough on this subject. I guess to science it's

obvious that if you don't have muscles to insolate you are susceptible to

heat and cold. I would like to see more in print.

In a message dated 9/3/2010 4:42:34 P.M. Pacific Daylight Time,

hotwheels@... writes:

Looking for something in the files about cold and heat tolerance!

Geri

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I needed a note from my doctor stating I cant handle the cold because of CMT.

He wont give me one because he hasn't found anything on the subject....

needless to say I'm decussated..

Geri

I don't think they publish enough on this subject. I guess to science it's

obvious that if you don't have muscles to insolate you are susceptible to

heat and cold. I would like to see more in print.

In a message dated 9/3/2010 4:42:34 P.M. Pacific Daylight Time,

hotwheels@... writes:

Looking for something in the files about cold and heat tolerance!

Geri

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Dont it make you want them to be in your place for a day!

Geri

We had also asked the doctor to add something for the school about 's

intolerance to heat and he would not as he also said nothing is shown to prove

this.

Lori

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