CMT coverage during the MDA telethon

[Guest guest]

It's encouraging to know that CMT will get other regional coverage

during the telethon.

This article

<http://www.thebostonchannel.com/asseenon5/24842865/detail.html> is from

WCVB TV in Boston.

--

* " Life is 10% what happens to us and 90% how we react to it. " *

<http://denver.bcycle.com>

[Guest guest]

There are several families of CMTers that will appear on the local telecasts

here in Orlando. We will get the word out!!!

>

> It's encouraging to know that CMT will get other regional coverage

> during the telethon.

> This article

> <http://www.thebostonchannel.com/asseenon5/24842865/detail.html> is from

> WCVB TV in Boston.

> --

> * " Life is 10% what happens to us and 90% how we react to it. " *

>

> <http://denver.bcycle.com>

>

>

>

[Guest guest]

Thanks for the link Dick! Great article!

I might add, that in my opinion, no one should get so caught up on CMT not being

MD. The bottom line is that for over 40 years MDA has helped patients with CMT

and their families with services, equipment, camp and medical clinics. The

statement that it is one of the most common forms of MD just means one of the

most common diseases that falls under the umbrella of MD. Let's all try to move

past the symantics of it all and be grateful to the MDA AND to the CMTA for all

the research they are funding. Finding the cure is what's most important and as

a mom I really don't care who finds it first, as long as it's found! To that

end I will gladly support the telethon AND CMT Awareness activities AND The STAR

Program.

Just my thoughts....

>

> It's encouraging to know that CMT will get other regional coverage

> during the telethon.

> This article

> <http://www.thebostonchannel.com/asseenon5/24842865/detail.html> is from

> WCVB TV in Boston.

> --

> * " Life is 10% what happens to us and 90% how we react to it. " *

>

> <http://denver.bcycle.com>

>

>

>

[Guest guest]

Well put, .

I think each of us probably has s set reply for the inevitable 'What's CMT?'

Right or wrong, what I usually say is that CMT is a type of peripheral

neuropathy and is unique is the sense that it's hereditary.

I was lead to the Boston article (I live in the Denver area)by using a Google

feature, Google Alerts. You can enter a keyword (I have 'Charcot'set up as one

the items I trace)and Google will constantly search for news occurrences

containing the search term(s).

The URL in order to set it up is http://www.google.com/alerts

You may have to be 'signed up' with Google in order to use it.

When Google gets a 'hit', I get an email with a link pointing to where the term

was found.

It can pull in more than you need/want. Because of that, I discovered that

'Charcot' is the name of the ship that is currently being used for Titanic

imaging mission.

> >

> > It's encouraging to know that CMT will get other regional coverage

> > during the telethon.

> > This article

> > <http://www.thebostonchannel.com/asseenon5/24842865/detail.html> is from

> > WCVB TV in Boston.

> > --

> > * " Life is 10% what happens to us and 90% how we react to it. " *

> >

> > <http://denver.bcycle.com>

> >

> >

> >