Re using scooters

[Guest guest]

I feel as we all try to dialogue about our experiences with CMT that it is

helpful to remember that all we can really speak to from a position of authority

is what we have experienced and to tell those stories and leave it to others to

draw their own conclusions if there is anything that might be helpful for their

own circumstances. It becomes damaging when we start telling people what they

should or should not do.

It's okay, I think, for me to encourage others to give a wheelchair a try out of

a desire for others to experience freedom and ease, but it would be very wrong

of me to say, " you should do this because it's been this way for me it must be

the right way for you. "

I also, want to say to the parents who have been writing on this thread that you

have my admiration for your desire to seek the best solutions for your children

physically, socially, and emotionally. Only you are in positions to know if AFOs

or scooters or wheelchairs or playing sports or not playing sports or... are

best for your kids.

And, you are probably gonna make some mistakes along the way, and that's okay.

These are complex issues and a choice might be good in one facet and not so good

in another. It's about finding what best works for you, your child, and your

family.

Peace to all,

Lynna

> > >

> > >

> > >