Guest guest Posted August 7, 2010 Report Share Posted August 7, 2010 Jenn, We have only heard of one man with CMT who had some kind of stem cell treatment in China. He returned to his native Holland, I think But I have not read any conclusive scientific evidence about his treatment, nor has he come forward publicly to witness. Go back in our Message Archives to read about him and Caroline's posts too. Hyperbaric Oxygen Therapy is not a treatment for CMT. You can try it I suppose, but I would research it much further and be very careful. Years ago a man I knew with CMT tried it to no avail, he subsequently died.http://en.wikipedia.org/wiki/Hyperbaric_medicine Best treatment is taking good care of yourself: eating a heart healthy diet, exercise to the extent possible, keep negative people and thoughts out of your life. Also join the CMT registry so when trials come out for new therapies for your type, you'll get a notice. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2010 Report Share Posted August 8, 2010 I agree with Gretchen ..... On Sun, Aug 8, 2010 at 12:15 AM, gfijig <gfijig@...> wrote: > > > Jenn, > > We have only heard of one man with CMT who had some kind of stem cell > treatment in China. He returned to his native Holland, I think But I have > not read any conclusive scientific evidence about his treatment, nor has he > come forward publicly to witness. Go back in our Message Archives to read > about him and Caroline's posts too. > > Hyperbaric Oxygen Therapy is not a treatment for CMT. You can try it I > suppose, but I would research it much further and be very careful. Years ago > a man I knew with CMT tried it to no avail, he subsequently > died.http://en.wikipedia.org/wiki/Hyperbaric_medicine > > Best treatment is taking good care of yourself: eating a heart healthy > diet, exercise to the extent possible, keep negative people and thoughts out > of your life. Also join the CMT registry so when trials come out for new > therapies for your type, you'll get a notice. > > Gretchen > > > -- May you be well and happy Caroline Quote Link to comment Share on other sites More sharing options...
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