Re: type of CMT and foot surgery

[Guest guest]

,

My CMT type was diagnosed actually AFTER the original diagnosis since I was a

child and the technology was barely available and tortuosus. However, an adult

baseline EMG/NCV test in 1997/8 showed all firings in the 'normal' range, thus

suggestive of Type 2. I have not been DNA tested because there are but a few

types of 2 that there are types for right now, and secondly my neurologist has

concluded I have a Recessive type due to no family history. I'd rather take a

primo vacation with the $ for testing and forget about what my subtype is!

Secondly, I've had tendon surgery on both feet. Although this was many years

ago, it has lasted quite a long time. Best to get several opinions from

orthopedic surgeons who specialize in feet and know about CMT.

Gretchen

[Guest guest]

Hello.

Found out I have CMT 1A.....so can so,me one tell me what the difference is? All

my life I thought I had CMT 2.

Geri

,

My CMT type was diagnosed actually AFTER the original diagnosis since I was a

child and the technology was barely available and tortuosus. However, an adult

baseline EMG/NCV test in 1997/8 showed all firings in the 'normal' range, thus

suggestive of Type 2. I have not been DNA tested because there are but a few

types of 2 that there are types for right now, and secondly my neurologist has

concluded I have a Recessive type due to no family history. I'd rather take a

primo vacation with the $ for testing and forget about what my subtype is!

Secondly, I've had tendon surgery on both feet. Although this was many years

ago, it has lasted quite a long time. Best to get several opinions from

orthopedic surgeons who specialize in feet and know about CMT.

Gretchen